A Research Study On Palliative Care

Death is inevitable. It is one of the only certainties in life. Regardless, people are often uncomfortable discussing death. Nyatanga (2016) posits that the idea of no longer existing increases anxiety and emotional distress in relation to one’s mortality. Because of the difficulty in level of care for end-of-life patients, the patient and the family often need professional assistance for physical and emotional care. Many family caregivers are not professionally trained in medicine, and this is where hospice comes into play. Hospice aims to meet the holistic needs of both the patient and the patient’s family through treatment plans, education, and advocacy. There is a duality of care to the treatment provided by hospice staff in that they do not attempt to separate the patient’s care from the family’s care. Leming and Dickinson (2011) support that hospice, unlike other clinical fields, focuses on the patient and the family together instead of seeing the patient independent of the family. Many times in hospitals, the medical team focuses solely on the goal of returning the patient back to health in order for them to return to their normal lives. They do not take into account the psychological and spiritual components of the patient’s journey and the journey that the family must take as well. For treatment of the patient, Leming and Dickinson agree that hospice does not attempt to cure patients, and instead concentrates solely

The World Health Organisation (2010) defines palliative care as: An approach that improves the quality of life of patients and their families facing problems associated with life threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other problems, physical, psychosocial and spiritual. It is also our duty to support John and his wife`s in their decision for John to die at home, Department of health (2008) patients should have a choice over the care they receive and where.

The purpose of this paper is to examine communication strategies related to palliative and end-of-life care with a focus on Aboriginal clients. Firstly, I will explain the role of cultural competence in the nursing care of an Aboriginal client. Secondly, I will argue the cultural challenges a nurse may face when caring and communicating with Aboriginal clients receiving palliative end-of-life care. Thirdly, I will present solutions to the aforementioned communicative challenges. Lastly, I will discuss the impact I believe this experience may have on my future practice.

Before I started this class I thought palliative care was only used as end of life care, or for when a curative treatment was unavailable or had failed. As we learned about the different models of care, and how they have changed over the years, it became evident that the use of palliative care has changed drastically over the past several decades. In the 1800s to 1900s, palliative care was only used once the patient had reached the dying stage, and only included the patient in this care, not their families1. Before taking this course, this is what I thought of palliative care as well. Since the late 1900s though, palliative care has been used in a more proactive approach. From the moment an individual receives a life threatening illness, palliative care begins. This includes caring for the family of the patient as well. This care increases as the patient’s illness progresses, and even continues for the family after the death of the patient. Learning this has really made an impact on how I would like to work as a

According to Allen et al. (2012), “millions of people with chronic illnesses endure unrelieved pain, uncontrolled physical symptoms and unresolved psychosocial or spiritual problems.” This issue occurs because palliative care is often considered a form of end-of-life care. Palliative care is a treatment that can be used for patients who suffer from chronic illnesses and diseases while receiving curative treatment. (Horowitz, Grambling & Quill, 2014) purposely states the misconceptions of palliative care and advocated for seriously ill patients that education must bring under control the misconceptions. Some patients do not receive appropriate symptom management because the palliative care treatment needed is often confused with end-of-life care. However, end-of-life care attempts to relieve pain and suffering when a disease is no longer responsive to curative treatment. Pain and suffering could ultimately be controlled or even eliminated through the proper utilization of palliative care. Patients who are not referred to palliative care in a timely manner is more likely to have poor quality of life, uncontrolled symptom management and increased amounts of visits to the emergency room during the disease process. Patients with life limiting illnesses bear the burden of increased discomfort and increased suffering. Nurses experience clinical practice issues and difficulties in the clinical setting during the delivery of comfort and symptom management. These issues

Hospice is compassionate care provided to patients facing terminal illness or illness for which there is no cure. These patients are diagnosed with an illness from which they will never recover and usually have a life prognosis of six months or less (Hospice Foundation of America, 2014). The goal of hospice care is improving quality of life and managing the symptoms of disease and the dying process. The care hospice offers is focused on pain management and emotional and spiritual support for both the patient and family (National Hospice and Palliative Care Organization, 2012). Hospice care can be provided in many different settings, often the patient’s own home. Hospice care can also be provided in hospitals, nursing homes, long-term care facilities and free-standing hospice centers and is available to patients of all ages (NHPCO, 2012). A patient receiving care in a hospice program has a team of healthcare individuals that can consist of the patients own physician, nurses, home health aides, clergy, social workers, and speech and physical therapists (NHPCO, 2012). Usually, a care plan is developed by the hospice team and care of the patient is provided by family members with the support of the hospice staff (NHPCO, 2012). Nurses make regular visits to the patient and family and are on call 24/7. Once enrolled in a hospice program hospice covers everything that will be needed to care for you, from medications to manage pain to

Palliative care is designed for individuals who have chronic, long-term and severe illnesses. This care option is available for patients with diverse illnesses like kidney failure, cancer, Alzheimer's disease, ADIS and other chronic diseases. No matter how old or young the patient is, our staff members provide them with the support and care that they need.

Palliative care is a relatively new concept, stemming from the hospice movement of the 1960s. This type of care focuses on the quality of life of its patients at any time in their treatment process. Palliative care is a concept that is often used synonymously with hospice care. Although it can be congregated with hospice care, they are not the same thing. Thus, it can easily be misunderstood. Sherner (2015) explains that both clinicians and people alternate palliative care and hospice. Unfortunately, she says, these people believe that palliative care implies the patient is refusing curative care. The purpose of this analysis is to explore the concept, clarify the meaning, and differentiate the concept of palliative care.

Palliative care, somewhat similar to Hospice care, focuses on relieving or preventing suffering from a life altering illness. The goal for both Palliative and Hospice care is to provide the best possible quality of life to

There is a need for evidence on palliative care because improving strategies could potentially improve the patients end of life care and could ensure that they die in a dignified

AIDS, initially seen as a terminal illness, has transitioned to a chronic disease for those patients who are able to use antiretroviral therapy and despite the advancements in HIV therapies, around 15,000 to 16,000 persons still die from HIV in the United States each year. (Alexander, Back, & Collins, 2004, p. 5). These numbers are still low in comparison with the epidemic in the early years, but persons living with HIV still continue to experience pain, infections, and other physical and emotional symptoms that impact their life in a negative way forcing them to shift into less aggressive care (O'Neill, Selwyn, & Schientinger). Being a hospice case manager for over 4 years has given me the opportunity to take care of a few HIV patients that

National HIV/AIDS and Aging Awareness Day (NHAAAD), annually September 18, provides us with an opportunity to discuss the challenges facing HIV seropositive persons as they age, and the challenges older individuals at risk for HIV or have recently acquired it. This memo hopes to reiterate the unique challenges of the graying of the HIV epidemic, while providing context for current and future interventions, and addressing faults in the field. Statistics reveals that the HIV/AIDS epidemic is slowly becoming a chronic disease increasingly characterized by individuals beyond the age of 50 and of color. Incidence is high amongst older women whose biological changes makes them especially vulnerable to HIV infection. Reports have shown that the cause

I have always believed that health cannot be optimized through the treatment of disease only. Rather, health should be addressed on a biological, physical, psychological, social, and spiritual continuum. Palliative care addresses an often-overlooked aspect of the patient experience, which is symptom management of their chronic illnesses. Health care professionals tend to treat acute episodes of

Key importance of the palliative care approach in nursing is for it to be responsive, rather than

Older adults with HIV diagnosed later in life deal with a different mix of social isolation than their younger peers. The added stigmas of aging and contracting HIV through sexual activity keeps many older adults from admitting to their status or talking about their behavior openly (Cahill & Valadez, 2013). As the aging population tends to be viewed as asexual, doctors rarely assess for HIV risk factors let alone screen for the infection (Oyieng’o & Bradley, 2010). Symptoms of the infection are also mistaken for other serious diseases commonly found in elderly persons (Oyieng’o & Bradley, 2010). HIV also increases the speed of aging on the body, weakening the immune system (Zhao et al, 2011). Infectious diseases have the potential to spread exponentially, and practitioners should remember that even if only one case of HIV is prevented, an intervention can translate into the prevention of many more cases