Analysis of The Immortal Life of Henrietta Lacks

“The Immortal Life of Henrietta Lacks” is the story of Hela cells and the women and family behind them. HeLa cells are the cells that have helped scientists all around the world discover cures and vaccines that have saved thousands of lives. But before they did all those things, they were inside a woman, named Henrietta Lacks, and were taken from her without her knowledge. Her family would not know about her cells until years after her death and millions of dollars in revenue gained from the HeLa cells. At the time doctors did what was considered common practice but did they cross a line? Or were the amazing scientific achievements enough to excuse the violation of personal privacy? Despite good intentions doctors should never have taken Henrietta’s cells without her consent, and furthermore her family deserves compensation for the work those cells have helped accomplish, and the sometimes horrible circumstances they have had to deal with because of the cells.

The scientific community is culpable of viewing Henrietta Lacks as an abstraction rather than a human being in that they disregarded her right to privacy in extracting her cells

Clearly, these researchers had their own agenda to acquire a medical breakthrough that would change the history of science and contribute to the greater good of society. However, their authority was used in an unwarranted manner to accomplish their goals, regardless of their respectable intentions in wanting to make medical progress. In reviewing these researchers and medical practitioners’ actions during the 1950’s which entails series of unethical behaviors and violation of human right, it develops an essential need to establish guidelines in the attempt to protect patient’s rights and privacy. Furthermore, due to the alternatives that arise throughout this case, there are many possible outcomes to be considered that could have a significant impact on stakeholders if these courses of action are fallowed. These solutions consequences may involve the tentative research, an advance way of life for the Lack’s family, political turmoil, economic health impact and a society whose cells may have similar experience.

The social contract of nursing is important because it reflects the nursing's code of ethics, which is to provide care to all who are in need, regardless of their cultural, social, or economic standing. The social contract exists because we rely on a guideline to continue to provide ethical care that is within our scope of practice. Unfortunately, in Rebecca Skloot’s (2010) book, “The Immortal Life of Henrietta Lacks” there were many ethical violations throughout the whole process about the Henrietta Lacks’ cells (HeLa). The author reveals the story about the life of Henrietta Lacks, an African American woman who was diagnosed with a fast-growing cervical cancer at a young age. The cells retrieved from her cervical tumor became the first immortal cell that could survive in the lab and replicate continuously without dying. Without the consent of Henrietta Lacks and her family, these cells later became key components to the development of many groundbreaking inventions such as the polio vaccine and in vitro fertilization. Therefore, the purpose of this paper is to examine the social covenant of nursing in relation to the ethical issues behind the use of the HeLa cells without the patient’s and her family’s consent.

Henrietta Lacks died in 1951 of cervical cancer, leaving behind a husband, five children and some cells taken from her without her permission. These cells continue to revolutionize the scientific field today and have played an integral role in some of the most important advances in medicine: cloning, chemotherapy, gene mapping, the polio vaccine and in vitro fertilization. The Immortal Life of Henrietta Lacks answers a lot of questions regarding the Lacks family, but also poses a number of questions regarding ethics, consent and how far society is willing to go to make medical advances.

For this week’s assignment I am to discuss ethical principles, specifically the ethical principles that were violated during the research in regards to Henrietta Lacks. Henrietta Lacks was a wife and a mother of five. She was a black tobacco farmer and was a native of rural southern Virginia but a resident of Turner Station in Dundalk, MD. Henrietta had mentioned to family that she had felt a “knot” inside her while pregnant with her fifth child but her family just assumed that it was due to the pregnancy. After giving birth, Henrietta started bleeding abnormally and profusely. Her local doctor tested her for syphilis, which

Bobette met a research scientist who said he had been working with cells from a woman named Henrietta Lacks, Bobette’s reaction can be seen here, “But Bobette kept shaking her head saying, ‘how come nobody told her family part of her was still alive?’ ‘I wish I knew’ he said. Like most researchers, he’d never thought about whether the woman behind the HeLa cells had given them voluntarily’” (Skloot 180). The research scientist she talked to, along with countless other scientists, had never thought about the woman behind the cells and this is part of the reason nobody ever told the family about the cells. Bobette finally found out about the HeLa cells after twenty-five years of no information and a revolution in medicine caused by her late mother-in-law. But it did not get better for the Lacks family after discovering Henrietta’s cell line. Every time one of the Lackses asked questions about Henrietta’s cells, the professionals would never take time to answer their questions, to help them understand what had happened at Johns Hopkins with the cells, or to explain to the Lackses what Henrietta’s cells accomplished. The doctors did not care about the patients and their families, but more about what was in it for them. The doctors did not look at the situation ethically by not telling the family about the cells. They also violated privacy values, which are now rights. They

In this semester’s book club, I have enjoyed the book called The Immortal Life of Henrietta Lacks. This book describes a true and famous cell line in the medical research field, that is the first immortal cell line in the world, HeLa cells. Not until I finished reading this fantastic book, I know that the HeLa cells were taken from a cervical cancer patient, Henrietta Lacks, without letting her know the truth about using her cells in research, even though she died. What more surprising to me was that her family lived a hard life without health insurance while the researchers make many profits from developing HeLa cells, they were never informed about their family member’s devotion to the scientific research.

The treatment of African Americans in The Immortal Life of Henrietta Lacks demonstrates the lack of ethics in the United States health care system during the 1950s and 1960s. Under the impression that medical doctors at Johns Hopkins Hospital were solely injecting radium treatment for cervical cancer, Henrietta Lacks laid on the surgical bed. During this procedure Dr. Lawrence Wharton Jr. shaved two pieces of tissue from her vagina, one from a healthy cervical tissue and one from the cancerous tumor, without Henrietta’s prior knowledge. After recovering from her surgery Henrietta exited the door marked, “Blacks Only,” the door that signified the separation between White and African-American patients. Had Henrietta been White, would the

Henrietta Lacks case was different than Mississippi and Tuskegee in some ways. In Henrietta’s case the doctors took her cells from her cervix but like in the Mississippi and Tuskegee cases they took them without Henrietta’s permission and launched a multimillion-dollar medical industry after she died. The purpose of taking Henrietta’s cells was to just run a couple tests until they died but they ended up living and growing. Instead of telling Henrietta and her family what they have been doing the doctors kept the discovery to themselves. When the discovery of the immortal cells because known every doctor got their hands on them and started running experiments on them, sending the cells to space, running test on the cells to find a cure to aids and cervical cancer etc…

In a HIPAA-conscious society today, some of the most obvious and concerning examples of the objectification of Henrietta and her family are the inconceivable breaches of privacy. Deborah Lacks, Henrietta’s youngest daughter, originally chose to not request access to her mother’s medical records because “she was afraid of what she might find and how it might affect her” (Skloot 209). In 1985, however, Science 85 reporter Michael Gold published a book about Henrietta’s “Immortal Legacy” including extensive verbatim quotes from Henrietta’s medical records, including details about her previous medical history, diagnosis, pain, decline and death, and even autopsy (210). Skloot recounts Gold’s offenses, “No one in Henrietta’s family had ever seen those

When the family expressed concerns about privacy, the scientists removed the sequence from the Internet. Hudson and other NIH leaders then met with the Lacks family. Together, the family and the NIH came to an agreement. Researchers can use the HeLa genome by applying to the NIH for access. A group of scientists and Lacks family members review the applications. From now on, when a scientist publish a research conducted using HeLa cells, it must include a thank you note to the Henrietta Lacks and her family for their everlasting gifts to science (Barone 2). Science has used HeLa cells in many ways. For example, HeLa cells are used to study HIV, the virus that causes AIDS, HeLa cells prove that HPV can cause cervical cancer, there is a vaccine that protects against some strains of the virus now, and HeLa cells are also tested to see how quickly they can absorb nanoparticles, which can suggest new methods for delivering drugs to cancer cells. It’s crazy that Henrietta is technically alive after being dead for 60+ years. Her cancerous cells continue to thrive and multiple till this day, around the world. Her cells have help further the medical field, such as find vaccines and doing further studies for HPV and HIV (Barone 3-4). I’m so happy that Henrietta’s family and Henrietta get the acknowledgement they deserve, but still very disappointed that

Ethics, in our society, are the moral principles that govern our behavior, dictating what is right from wrong. The specifics of ethics changes as values in our society change and evolve. This occurs in Rebecca Skloots book, The Immortal Life of Henrietta Lacks. One major reoccurring theme in the book is the lack of informed consent and autonomy. Fortunately, now there are safeguards which protect human rights in regard to health care and research. The Commission for the Protection of Human Subjects of Biomedical and Behavioral Research, now part of the Department of Health and Human Services, created The Belmont Report, which is one such safeguard establishing principles for all human research (USDHHS, 1979). This paper will discuss the ethical issue of informed consent within The Immortal Life of Henrietta Lacks, the disregard to parts of the Belmont Report, as well as compare the role of the nurse in charge of Henrietta’s care versus the standards of care set for modern nurses.

Henrietta Lacks: an unknown name up until recent years. A name that had been known to the world only as HeLa; The first two letters of a name that belonged to a poor African American tobacco farmer that unknowingly changed science and life as we know it today. Her life has finally been portrayed in a very intimate story that not only does her life some justice but also transcendentally brings to mind the philosophical issues concerning medical ethics both of the past, present, and the future. In a world of constantly evolving medical advancement, science is a pivotal force that propels ideas forward. Although most will agree that the knowledge and cures found are a positive aspect, there is also a necessary evil that is involved, including

The book The Immortal Life of Henrietta Lacks by Rebecca Skloot, was a nonfiction story about the life of Henrietta Lacks, who died of cervical cancer in 1951. Henrietta did not know that her doctor took a sample of her cancer cells a few months before she died. “Henrietta cells that called HeLa were the first immortal human cells ever grown in a laboratory” (Skloot 22). In fact, the cells from her cervix are the most important advances in medical research. Rebecca was interested to write this story because she was anxious with the story of HeLa cells. When she was in biology class, her professor named Donald Defler gave a lecture about cells. Defler tells the story about Henrietta Lacks and HeLa cells. However, the professor ended his