preview

Bioethics Inspired By Henrietta Lacks

Better Essays

By beginning this essay I will talk about a topic inspired by Henrietta Lacks and why her cells were such a big discussion, scientifically and emotionally. It is widely known in science that when we age, our cells die off and create new cells. If we change over time and our cells from five years ago or even two months ago, change too, why the Lacks family was upset the Henrietta’s cells were taken. While her cells became a break through to science, the family still felt there was some wrong doing in the making. People want to have the freedom to decide what is taken from them with permission. It gives us a sense of ethics to what we believe is right or wrong, what is ours to keep and give. I will be writing about the science of our cells and …show more content…

Unlock them, he said. Now pass them to the person behind you. They looked at him like, Are you nuts? They wanted to know, Why? What will they look at? How will they use that information? “In other words, they wanted to be informed, and they wanted to give consent,” Dr. Gray said later. Now imagine those phones are cells in your body containing all the genetic information that makes you you, he told the students. Do you want scientists to pass them around and use them in research without your consent? Because right now, they can. (The New York Times) In other words, they wanted to be informed, and they wanted to give consent, Dr. Gray said later. Now imagine those phones are cells in your body containing all the genetic information that makes you you, he told the students. Do you want scientists to pass them around and use them in research without your consent? Because right now, they can. The United States government recently proposed sweeping revisions to the Federal Policy for Protection of Human Subjects, or the Common Rule, which governs research on humans, tissues and genetic material. These changes will determine the content of consent forms for clinical trials, if and how your medical and genetic information can be used, how your privacy will be protected, and more. The most controversial change would require scientists to get consent for …show more content…

Lacks’s story is unusual because she lost her anonymity. But I’ve talked to other still-anonymous donors with strikingly similar experiences. Like the Lacks family, they’re proud they helped science. They believe tissue research is important, but they wish they’d been asked permission from the start, to avoid difficulties that followed: the shock of learning they were part of research, debates over who controlled samples, questions over profits. I’ve also heard from scientists and medical professionals who believe this transparency is overdue. And patients who want to control their tissues to, say, ensure their samples are used to study only their specific rare disease. So far, few of these people are part of the discussion. The Common Rule changes, like most such proposals, haven’t been widely publicized, and they’re laid out in a thick document even experts find confusing. But the Department of Health and Human Services has posted a brief summary and several explanatory videos. With few exceptions — like a public health emergency — the revised rule would require informed consent for research on all biospecimens, but not all genetic information inside them. How detailed that consent will be is up to researchers, but it can’t be less than “broad consent.” In a widely criticized move, the consent form template that would generally be required for “broad consent” hasn’t been released yet. Much of the debate has focused on what that form might look like, whether it can

Get Access