Care, The Dying, And Their Families

Death is inevitable. It is one of the only certainties in life. Regardless, people are often uncomfortable discussing death. Nyatanga (2016) posits that the idea of no longer existing increases anxiety and emotional distress in relation to one’s mortality. Because of the difficulty in level of care for end-of-life patients, the patient and the family often need professional assistance for physical and emotional care. Many family caregivers are not professionally trained in medicine, and this is where hospice comes into play. Hospice aims to meet the holistic needs of both the patient and the patient’s family through treatment plans, education, and advocacy. There is a duality of care to the treatment provided by hospice staff in that they do not attempt to separate the patient’s care from the family’s care. Leming and Dickinson (2011) support that hospice, unlike other clinical fields, focuses on the patient and the family together instead of seeing the patient independent of the family. Many times in hospitals, the medical team focuses solely on the goal of returning the patient back to health in order for them to return to their normal lives. They do not take into account the psychological and spiritual components of the patient’s journey and the journey that the family must take as well. For treatment of the patient, Leming and Dickinson agree that hospice does not attempt to cure patients, and instead concentrates solely

Key people could be family, doctors, carers, religious leaders etc. Each may own distinctive role to play in order for the choices and preferences of the individual to be respected and carried out. [ Every person’s end-of-life trajectory is different and needs differ in intensity and quality over time. End-of-life care must adapt to the varying and changing needs of the individual over time and that it cannot be limited to certain settings or services. The provision of good

Caring for patients at the end of life is a challenging task that requires not only the consideration of the patient as a whole but also an understanding of the family, social, legal, economic, and institutional circumstances that surround patient care.

Death is an experience that we will all have to encounter at some stage in life, but for those with elderly parents or relatives, the experience becomes more real. “The experience of dying not only affects the person who is dying but also caregivers, family members, and friends who are left behind” (Osterbur, 2015, p. 102 ) and I can associate with that. My maternal grandmother suffered a major stroke and was later diagnosed with Alzheimer’s disease.  She died in the hospital 2 years ago. Unfortunately, she was not a recipient of hospice care and the task of caring for her was done at home with the help of a hired aide and family members. Novak (2012), explains that many are faced with the dilemma of institutional death or at home and the decision to prolong care or end treatment can be burdensome (p. 411). It was an uphill battle and emotionally draining for my mom and

Nurses: Assist the patients and families to cope with the end-of-life process such as assessing and

To begin, there are many aspects of helping patients that are dealing with grief, loss, death, or dying. Whether the patient has lost someone that was close to them or they themselves are dying, the situation is quite fragile. Some important aspects that may help when handling these patients are knowledge about the different cultures and their beliefs and traditions, different factors that have an impact on grief, and how to communicate with people living on the edge of life. These are all extremely important matters when it comes to such a sensitive situation.

My perception of palliative and Hospice care has changed slightly when it comes to communication with the family. I walked into the hospice unit mentally preparing myself to talk with patient families about their loved one and the dying process; this was certainly not the case. The family and the patient did not want to be bothered unless comfort interventions needed to be carried out and there was no conversation to be had about the patient and his situation. This shows that each family is different, each patient is different; and we need to respect and accommodate their unique

Dying is a process that involves the entire family; that is to say, the family that is defined by the person. The nurse must be aware that this is not only an individual process but a family process. This involves recognizing family dynamics and communication patterns and facilitating healthy interactions.

End of life issues involving education on palliative care and hospice; are these issues important to you and your loved ones? The purpose of this paper is to discuss end of life care and how the legislative process affects this important topic. As the American population keeps growing, so does the amount of an aging population. Is the amount of training and education in nursing school sufficient for palliative care and hospice? Do we need to provide more training to the medical field to help support the growing need for end of life care? At some point in our careers we might be faced with helping someone in their final days. Being educated and having the ability to provide appropriate care is part of our scope of practice. (American Nurses Association, 2010, pp.1-2)

As in all complicated matters such as this, the law is very contradictory in this field. Social workers who are well informed about life and death issues in the light of cultural and religious beliefs and practices, advanced directives, and the legislation related to them, will be more competent in assisting clients to express their desires and to make choices that encompass their life choices. Such knowledge enhances social work intervention by empowering the elderly to use their autonomous rights related to advanced directives while helping family members, through counseling, to negotiate difficult end-of-life procedures. There are certain forms for individuals to fill out that can state that they do not want medical treatment, or now, in some states like Oregon and Washington and now California, they are implementing the Death With Dignity Act. But what does this mean for the role of social workers in this field? As social workers, we advocate for living conditions conducive to the fulfillment of basic human needs and to promote social, economic, political and cultural values and institutions that are compatible with the realization of social justice. We also expand choice and opportunity, such as in end-of-life decisions, and they promote justice (NASW 2003). However, “social workers may not personally participate in an act of suicide when acting in their professional role” (NASW, 2003, P.9). This to me needs to change, to fit the laws that are now changing so that we

When it comes to the experience of grief that goes along with a terminal diagnosis or death the focus of care, therapy, and concern is often placed solely on the patient and his or her family and friends, and rightly so (Woolhouse, Brown & Thind, 2012). However, the health care professionals that help to care for these patients and their loved ones are often left in the shadows to cope with the grief that they may be feeling, alone (Woolhouse, Brown & Thind, 2012). Often, their grief is deemed unacceptable by their colleagues and society, and they are certainly not provided with the same level of care as someone who is experiencing real grief, first-hand (Leming & Dickinson, 2016). This paper discusses the differences that health

I t is important that end of life care is delivered in respect of patients Autonomy, Beneficence, and in a Truthful way. In what follows I argue that we as nurses need to fulfill obligation to support and assist the dying patient and his family’s right to self-determination as it relates to end of life care. I believe that we have made headway but still have much to achieve. Education and research in these areas by and for health care workers and the general population would do much to improve the quality of end of life care.

The three articles were most relevant to the topic and explored the implications that family involvement has during end-of-life in long term care from the family perspective. The three recurrent themes that family involvement has during EOL in long term care are: improved caregiver advocacy and improved quality of end-of-life care for patients achieved through improved communication.

An individual patient solution may include actions of a clinician such as a trial of therapy (Schlairet, 2013). Providers may propose a trial of therapy for an impaired patient that may offer greater clarity as to whether or not the patient is end stage or has a likely positive outcome. An agreement to neither intensify nor expand critical care interventions should accompany the trial if the patient’s condition weakens.

The increasing numbers of vulnerable adults in the United Kingdom has been accompanied several care challenges and policy makers caught their attention to do their part and come up with legislations to combat or overcome these challenges. Giving support and providing care for an individual in their last stage or end of life is a difficult thing to do. End of life care aims to put the person at the centre of the caring process, they should be involved in every decision to make when it comes to their personal care, maintain and enhance quality of life for the person involve and family if possible and provide bereavement support for families and carers after someone passed away. In lieu to this, this will not be possible if not being back up by legislation to oversee that quality care is delivered at the highest possible.