Children in Hospice

1016 Words5 Pages
Children in Hospice
Katrina Williams
April 26, 2012
Professor James Lazos

Children in Hospice
Research suggests that every year there are between 100,000 to 150,000 children born in the United States with a genetic disorder or defect. This represents approximately 20% of infant deaths each year. However, many of these children live to age well beyond the expectation, and some are enrolled in hospice. According to Armstrong-Daily and Zarbock (2001), “The concept of hospice today is applied to patients who are traveling through the final stages of their lives-in effect seeking shelter and comfort.” Hence, the main focus of this program is to prepare families for the death of a loved one. Although accepting these
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Even when hospitalized, parents must be prepared to fight for the right of their child to live because many medical professionals give the impression that any effort would be useless. Many parents are even willing to care for the child within the home but there are no resources available to assist with care other than nursing. This should be a key area for concern as the patient is expected to live six months in most cases and it is more than enough time to prepare for the child’s death. When that time has passed and the child is still progressing, one is only left to wonder the next step. At this point, time spent creating memories with family should be top priority.
It is my recommendation that the health care community implement a network of resources for parents who are not willing to accept and grieve but are willing to accept and fight to prolong the life of their child. Resources and information should be readily available to assist with any type of services that would bring relief for situations ranging from housing to therapy. Medical professionals also should be required to take a course in patient relations giving some insight into the emotional turmoil that many parents experience. This probably would change some parent’s perception of the medical profession because discretion and empathy would be used when providing information about the child’s condition. Any feelings of hopelessness may be eliminated and replaced with feelings of relief
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