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Comprehensive Management Plan Summary

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The team should be able to provide and coordinate inpatient and outpatient care and services to patients and their family. Patients should be seen by all core team members at least yearly (children every 6 months) for a complete hematologic, musculoskeletal, and psychosocial assessment and to develop, audit, and refine an individual’s comprehensive management plan. Referrals for other services can also be given during these visits and also to initiate, provide training for, and supervise home therapy with clotting factor concentrates where available. Educate patients, family members and other caregivers to ensure that the needs of the patient are met. Physical activity should be encouraged to promote physical fitness and normal neuromuscular

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