Cultural Caregivers

According to the National Statement on Ethical Conduct in Human Research 2007, the assessment of risk-benefit ratio and consent from the participants are two important concerns of conducting any human research. These two issues help the participants to make an informed decision so that they can understand and outweigh the significance and possibilities of harm independently (Emanuel, 2008). Being a researcher, I would follow the National Statement on Ethical Conduct In Human Research 2007, hence, I must assess the magnitude of possible harm (physical, psychological, social, economic or legal) for the participants and handling the risk by identifying resources and monitoring them, thus, reducing the risk of their occurrence. (National statement on ethical conduct in human research,

To ensure the proposed study is academically, professionally, and ethically sound, researchers shall complete a risk assessment on the proposed method (participants, materials and design) of the study. This risk assessment will form the basis of the application to Swinburne University’s Research Ethics Office for ethical review. This application will address the risks identified with the participants used, including recruitment and informed consent, as well as data and publication arrangements.

Part I: The legal considerations would be to inform the participants that there would be no harm or risk to the participants. Since the participants are adolescents the researcher needs to obtain a secure informed consent from the parent or guardian before they participate. The researcher’s ethics are to provide full disclosure to the participants. The researcher should be open and honest to the participants regarding the study. The researcher’s ethical consideration is to protect the privacy of each participant. This can be accomplished by ensuring confidentiality and by having the data stored securely. Also, the researcher should

Who is the person the nurse is caring for? Where is that person from? Does this person speak English, or understand what the caregiver is saying? What is this person’s cultural background? What are the health beliefs of this person, what are their illness beliefs and practices? These questions are answered differently depending upon the person and their heritage. As healthcare providers it is important to have a broad knowledge base in regards to different cultures and people’s practices to deliver effective health care. In 2006, the population of

This provides a guideline that ensures that researchers minimize the amount of risk a study may impose to a participant. When planning a study, it is also important that each of the participants are provided with a sense of security and not placed at a disadvantage. When participants enter into a study, a level of trust is established, and their identities and the information they provide must be protected and never be used against them or exploited for any reason.

In essence context warns health personnel in particular to always consider real life situations such as culture and religion premised on immigrant backgrounds as well as the lack of knowledge regarding what facilities and services are available to affected communities. Among BACE communities for example, dementia is not recognized (Berwald, 2016). Thus education becomes a necessary type of intervention. The need for education is further evidenced in the study by Shanely et al (2007, 2) who state, “For people with dementia and their family carers it is essential that they know about, and are able to access, the range of dementia-related services available to them.’ Significantly, Shanely et al (ibid) point out that this is especially the case with CALD communities where information about the services may be lacking and where their importance may not be understood. Such contexts are the hosts for both barriers and enablers.

The research ethics, especially with the human subjects, is a very complex topic, and the completion of the certification opened my eyes on many aspects of research process. I learned how important it is to fully understand the research purpose and the methodology especially when selecting participants. I learned which populations are considered vulnerable, how to balance risk and potential benefits of research, and the importance of obtaining an informed, voluntary consent. I learned how important it is for researchers to ensure subjects confidentiality and privacy. Hardicre (2014) said that the research would be impossible without volunteers, and that the researchers “must act as patient advocates to ensure that every stage of the research

Failure to protect subject’s personal information, is an example of not complying the above two principles in the research industry. Researchers are in a position of dealing with a great deal of very personal information that their participants have agreed to disclose. Depending on the type of study, personal identifiers such as names, birthdates, places of residence etc. may or may not have to be collected. In situations where these data are collected, researchers may take several steps to ensure the confidentiality of their participants’

Our study will comply with standard ethical research procedures. We will obtain informed consent from our participants before they participate in our study. Our potential participants will be fully informed about what will happen during our study; in addition, they will understand the effects that our study will have on them and our research (Grinnell, Unrau, and Williams, 2014). We will not use bribery, deception, threats, or any other forms of coercion in order to gain participants for our study. The physical/emotional safety of the participants will come before the research; therefore, we will adhere to all ethical research procedures.

The benefits of the participation of this study for participants is to see if there can be a more

Ample research exists that focuses on care recipients and elder caregivers, but generally, with a white majority as participants. However, there is limited research that examines health disparities and socioeconomic inequities’ impact on aging organizations and health care providers’ cultural awareness, competence and sensitivity when delivering care and services to minority informal elder caregivers and their care recipients, and the effect of those influences. Montgomery and Kosloski (2009) contends that informal eldercare research has not been successful due to the inconsistencies in caregivers’ experiences. Due to the complexities of African American eldercare, it is important that this proposed qualitative narrative inquiry occur to

The Belmont Report establishes ethical standards for researchers seeking to involve human subjects (U.S. Department of Health and Human Services, 1979). Among these standards is respect for persons- the right of people to be treated as autonomous agents (U.S. Department of Health and Human Services, 1979). Privacy, anonymity, and confidentiality (PAC) fall under this standard (Farrimond, 2013). In research studies, privacy refers to an expectation that access to participants ' information will be limited to those that have a legitimate right to it (Farrimond, 2013). It is also expected that reasonable steps will be taken to prevent unauthorized access to the information. To expand on privacy, most studies allow anonymity- the removal of names and other identifying information (addresses, job titles, age) to protect the identities of participants (Farrimond, 2013). Anonymity increases the likelihood that potential subjects will agree to participate in a study, as they feel more comfortable disclosing information that may otherwise result in negative consequences (Farrimond, 2013). Confidentiality ensures study participants that their information will not be shared beyond the scope of the study (Farrimond, 2013).

Research Materials, Records, and Privacy Issues. (Identify the sources of material that will be obtained from subjects, what information will be recorded, concerns relating to privacy of subjects, and explain why this information is needed to conduct the research activities.) The information received from potential participants will be recorded and filed with a lock and key in the researcher’s office. Participant’s identity will be unknown to the researchers, and their responses will be

As was mentioned above, the data collection focused on human experience and I believe the subjects were protected in this study. This study was approved by university’s institutional review board and participants were provided with informed consent.

Participation in this investigation was voluntary, all results were kept anonymous and the participants had the