Family Members Of Palliative Or End Of Life Patients

Palliative care is a holistic approach to support a patients symptoms who have an advanced progressive condition. Healthcare professional’s objectives are for the patient and families to have the best quality of life throughout their illness, this also involves psychological, social and spiritual support (NCPC, 2015).

The life transition of death and dying is inevitably one with which we will all be faced; we will all experience the death of people we hold close throughout our lifetime. This paper will explore the different processes of grief including the bereavement, mourning, and sorrow individuals go through after losing someone to death. Bereavement is a period of adaptation following a life changing loss. This period encompasses mourning, which includes behaviors and rituals following a death, and the wide range of emotions that go with it. Sorrow is the state of ongoing sadness not overcome in the grieving process; though not pathological, persistent

Death is inevitable. It is one of the only certainties in life. Regardless, people are often uncomfortable discussing death. Nyatanga (2016) posits that the idea of no longer existing increases anxiety and emotional distress in relation to one’s mortality. Because of the difficulty in level of care for end-of-life patients, the patient and the family often need professional assistance for physical and emotional care. Many family caregivers are not professionally trained in medicine, and this is where hospice comes into play. Hospice aims to meet the holistic needs of both the patient and the patient’s family through treatment plans, education, and advocacy. There is a duality of care to the treatment provided by hospice staff in that they do not attempt to separate the patient’s care from the family’s care. Leming and Dickinson (2011) support that hospice, unlike other clinical fields, focuses on the patient and the family together instead of seeing the patient independent of the family. Many times in hospitals, the medical team focuses solely on the goal of returning the patient back to health in order for them to return to their normal lives. They do not take into account the psychological and spiritual components of the patient’s journey and the journey that the family must take as well. For treatment of the patient, Leming and Dickinson agree that hospice does not attempt to cure patients, and instead concentrates solely

The World Health Organisation (2010) defines palliative care as: An approach that improves the quality of life of patients and their families facing problems associated with life threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other problems, physical, psychosocial and spiritual. It is also our duty to support John and his wife`s in their decision for John to die at home, Department of health (2008) patients should have a choice over the care they receive and where.

Getting prepared for death can be an exhausting experience for the patient and their family. It is very important that the patient not only knows what they want as far as their right to receive or reject treatment and medications or knowing whether they want to receive palliative care at home or in a hospital setting to include the advantages and disadvantages of each. The main focus of this paper is to give the reader an in depth look on how an end of life crisis affects a patient and their family. Ella is a breast cancer patient who just came out of remission and is at the end of her life.

Before I started this class I thought palliative care was only used as end of life care, or for when a curative treatment was unavailable or had failed. As we learned about the different models of care, and how they have changed over the years, it became evident that the use of palliative care has changed drastically over the past several decades. In the 1800s to 1900s, palliative care was only used once the patient had reached the dying stage, and only included the patient in this care, not their families1. Before taking this course, this is what I thought of palliative care as well. Since the late 1900s though, palliative care has been used in a more proactive approach. From the moment an individual receives a life threatening illness, palliative care begins. This includes caring for the family of the patient as well. This care increases as the patient’s illness progresses, and even continues for the family after the death of the patient. Learning this has really made an impact on how I would like to work as a

According to Allen et al. (2012), “millions of people with chronic illnesses endure unrelieved pain, uncontrolled physical symptoms and unresolved psychosocial or spiritual problems.” This issue occurs because palliative care is often considered a form of end-of-life care. Palliative care is a treatment that can be used for patients who suffer from chronic illnesses and diseases while receiving curative treatment. (Horowitz, Grambling & Quill, 2014) purposely states the misconceptions of palliative care and advocated for seriously ill patients that education must bring under control the misconceptions. Some patients do not receive appropriate symptom management because the palliative care treatment needed is often confused with end-of-life care. However, end-of-life care attempts to relieve pain and suffering when a disease is no longer responsive to curative treatment. Pain and suffering could ultimately be controlled or even eliminated through the proper utilization of palliative care. Patients who are not referred to palliative care in a timely manner is more likely to have poor quality of life, uncontrolled symptom management and increased amounts of visits to the emergency room during the disease process. Patients with life limiting illnesses bear the burden of increased discomfort and increased suffering. Nurses experience clinical practice issues and difficulties in the clinical setting during the delivery of comfort and symptom management. These issues

Palliative care is designed for individuals who have chronic, long-term and severe illnesses. This care option is available for patients with diverse illnesses like kidney failure, cancer, Alzheimer's disease, ADIS and other chronic diseases. No matter how old or young the patient is, our staff members provide them with the support and care that they need.

Palliative care, somewhat similar to Hospice care, focuses on relieving or preventing suffering from a life altering illness. The goal for both Palliative and Hospice care is to provide the best possible quality of life to

Cumulative grief is known as a caregiver’s emotional response to many episodes of grief (Shorter & Stayt). The multiple encounters with death give a nurse no opportunity to grieve adequately or completely for each individual patient that has died (Shorter & Stay, 2010). The unresolved grief accumulates and can lead to emotional and physicals problems which can then effect a nurse professionally and personally (Shorter & Stayt, 2010). The effects of cumulative grief include denial, feelings of decreased personal competency, overwhelming grief, low self-esteem, and pre-occupation with death (Shorter & Stayt,

Palliative care (pronounced pal-lee-uh-tiv) is specialized medical care for people with serious illness. It focuses on providing relief from the symptoms and stress of a serious illness. The goal is to improve quality of life for both the patient and the family.Palliative care is provided by a specially-trained team of doctors, nurses, social workers and other specialists who work together with a patient’s doctors to provide an extra layer of support. It is appropriate at any age and at any stage in a serious illness and can be provided along with curative treatment.

When it comes to the experience of grief that goes along with a terminal diagnosis or death the focus of care, therapy, and concern is often placed solely on the patient and his or her family and friends, and rightly so (Woolhouse, Brown & Thind, 2012). However, the health care professionals that help to care for these patients and their loved ones are often left in the shadows to cope with the grief that they may be feeling, alone (Woolhouse, Brown & Thind, 2012). Often, their grief is deemed unacceptable by their colleagues and society, and they are certainly not provided with the same level of care as someone who is experiencing real grief, first-hand (Leming & Dickinson, 2016). This paper discusses the differences that health

In 1970 hospice care was introduce in United State, this was a care that is given to dying patient and family member to provided compassionate care during their end of life. While, According to get palliative care, Palliative care focuses on providing relief from the symptoms and stress of serious illness. The goal is to improve quality of life for both the patient and the family. (Get Palliative care). The relationship between hospice and palliative care comes hands and hands to achieve best quality end of life. “palliative care does not have time limit, it’s start in diagnosis through the end of life”(Ihrig, 2009) we refer them to palliative care as as soon as we diagnose them with disease such as cancer or multi-organ failure. In addition,

The loss of a loved one is a very crucial time where an individual can experience depression, somatic symptoms, grief, and sadness. What will be discussed throughout this paper is what the bereavement role is and its duration, as well as the definition of disenfranchised grief and who experiences this type of grief. I will also touch upon the four tasks of mourning and how each bereaved individual must accomplish all four tasks before mourning can be finalized. Lastly, with each of these topics, nursing implications will be outlined on how to care for bereaved individuals and their families.

Psychological distress is common among people needing palliative care and is an understandable response to a traumatic and threatening experience. Patients draw on their own inner resources to help them to cope and many derive emotional support from family and friends. Some patients, however, are likely to benefit from additional professional intervention. To provide psychological care to the dying patient, the doctor should know the patient’s personality and the way that patient views death. Primary care doctors are ideal for this because of their long term relationship with patients and family members. In fact some families consider their family doctor as a family friend. Therefore a family doctor is in a unique position to provide comprehensive care to the patient while keeping a good doctor- patient relationship. The general practitioners should make sure that the psychological status of the patients and carers are assessed at key points of the disease and given appropriate psychological support. This can be done by being patient’s bedside, communicating effectively while showing concerns, touching the patient when appropriate, active listening to patient’s fears, frustrations, hopes and needs. Primary care doctors are able to reassure the patient and make them comfortable. Patients should be given hope when it is possible, so that they may live the remaining part of their life in good psychological health.