Fibrodysplasia Ossificans Progressiva Essay examples

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Fibrodysplasia ossificans progressiva also known as FOP is a one of the rarest, most disabling genetic bone conditions known to medicine. FOP causes muscles, tendons, ligaments, and other connective tissues to turn in to bone. Movement becomes limited in the affected areas of the body. People with FOP typically have malformed toes at birth, meaning the big toe is typically shorter than normal and abnormally turned outward in a position called a valgus deviation. Symptoms of FOP start to show up in early childhood. Most people with FOP develop painful tumor-like swellings also known as fibrous nodules. The fibrous nodules are visible on the neck, shoulders, and back. When a patient starts to generate new bone, what doctors calls a…show more content…
Researchers believe the mutation of this gene causes too much bone to grow instead of muscle. FOP does not affect a person's intelligence or cognitive abilities. However it dose affects the child’s ability to safely access the school premises, and manipulate the school's materials. Changes though out the child school may need to be made to help keep the child safe. The parents may also want to have the teacher explain or have them send home a pamphlet with the parent of the other kids so they can explain why the student may look like them but they should be careful not to hurt him or her. The patents need s to walk around the school setting up safety tools like pads on sharp corners of tables, tapping down rugs and cords so the child would not fall. They might need to ask if the school can help buy a desk that is slated so the student can wright. Tables and desks should be at the right height for minimizing the strain on the child while playing and drawing. Many children with FOP have trouble sitting on the floor to play or work, have some appropriately sized surface should be available for him or her to use. Fostering independence is important, the coat hook of a child’s cubby can be lowered to a height that the child can manage on his or her own also reduce the dangers of crowds, the cubby itself should be in an area less prone to the traffic of children all going to their cubby at the same time.
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