Genetic Privacy And The Human Genome Project

DNA testing is the most accurate way to identify an individual, and should therefore be used to increase the effectiveness of our justice system. This brings to light the issue of genetic privacy. Society questions the motives of government in DNA collection and floods the media, which acts as an informal actor on the court, with ideas of this invasion of privacy and encroachment of biological liberties. The 2010 article, Create a National DNA Database? stated that “such sensitive information is prone to misuse, and one should not have such blind faith in the security of government access to it.” EPIC, the electronic privacy

Personalized medicine is characterized by decision making that takes into account and that is specific to patient personal history, family history, social and environmental factors, along with genomic data and patient preferences regarding their own care (ch 25). In this approach, clinical decision making is explicitly patient-centered in new ways, bringing the best evidence at the genetic level to bear on many clinical scenarios, while incorporating patient preferences for acquiring and applying genetic information (Fargher et al. 2007). Personalized genetic medicine (Chan and Ginsburg 2011) is already generating data that outstrip the information and knowledge processing capabilities of practitioners, and many clinicians feel threatened by the impending tsunami of additional knowledge that they will need to master (Baara et al. 2005). As personalized medicine becomes the norm, primary-care and specialist practitioners alike will need to manage their patients by interpreting genomic tests along with myriad other data at the point of care. It is hard to imagine how clinicians will manage to

Bodily privacy is a significant issue in Genetic Profiling, as it is a human right which is in constant need of law reform. Technology is continually advancing, and genetic

Have you ever taken into account the fact that all your genetic information could be stored on one database; that at any time you could be identified for every action in a matter of seconds with the click of a button? This notion has caused a large amount of controversy among the global population causing a heated debate regarding the ethicality of having DNA databases. With a large amount of technological advancement and the growing fears of citizens, these DNA databases have started to rise in hopes of benefiting the global population. Critics opposed to this development have pointed out many flaws regarding the idea and continue to promote the restriction of the growth of these types of databases. Through extensive research, the

The Goal of the Human Genome Project is to obtain genetic mapping information and to determine the complete sequence of all human DNA by the year of 2005. The project started in 1990 and 180 million dollars are being spent on it annually. This adds up to a total of over 2 billion dollars for the 15 year budget. Of this 2 billion dollars budgeted, 5% is spent annually on the ethical, legal and social issues. This report focused on some of these issues.

From evaluating the history that eugenics has imposed, its negative practice has been marked in ways of unrighteous holocaust and genocides worldwide. The word “eugenics” has been worldly defined and seen as the destruction of undesirable traits, in all reality people. However, the practice of altering or ridding of specific genes or minority group has changed through the evolution of time. Subcategorizing, eugenics has modernized and has advanced to the use of prenatal screenings, intentional selective breeding within agriculture, gene therapy, and possible human genetic engineering. Both articles that will be discussed, centralizes around the idea of genome sequencing. Specifically by focusing on the discovery of specific variant traits

Nelkin and Lindee identify the three themes of understanding the human genome as “the essence of identity, a promise to enhance prediction of human behavior and health, and a image of the genome as a way to define natural order” (p. 340). Genetic research has recently started to function as way for people to understand past performance and future potential. The power of the genome is represented by words often used to label it like the Bible, a dictionary, a map, and a blueprint. A lot of research has been done to prove that genetic prediction will help control over behavior and disease. However, there is also the continuing question of the effects of nature and

Today’s society has an ever growing thirst for knowledge as we have for many hundreds of years now. Scientists work around the clock studying the affects of nearly everything they can think of to conduct experiments on. This quest for knowledge is the supposed start to a better life for man kind and ultimately a world without disease or hunger. The human genome project is one that has been going on for about 20 years. This project set out to map, down to the last detail, every part of the human DNA structure (“Human”). The project has recently been completed and the scientists are now starting another project with their newly found information, to cure mankind of its ailments.

The sequencing of the human genome has a new approach to health care in regards to promotion, maintenance, and treatment. Genetic research is defined as a new approach to a better understanding of the genetic components of common diseases: Cancer, diabetes, stroke, and creating new gene-based technologies for screening, prevention, diagnosis, and treatment of both rare and common diseases. Nurses are a main aspect within the first line of care, and therefore will contribute fully in genetic-based and genomic-based practice activities such as collecting family history, obtaining informed consent for genetic testing, and administering gene-based therapies. Lea, D, (January 31, 2008). My paper is based on an article Genomics in the public

In June 2000, the publicly funded Human Genome Project (HGP) and the private firm Celera Genomics Inc. announced that they had completed sequencing the human genome. This unprecedented accomplishment is expected to enable doctors to diagnose, treat and even prevent numerous genetic diseases. As these two entities worked on sequencing the human genome, there was also a separate and less publicized race to patent as many human genes as possible.

The more detailed structure of DNA analysis is to determine the nucleotide sequence. Over the time various methods have been developed to obtain the nucleotide sequence of DNA, currently the most widely used methods include automated sequencing and enzymatic chain termination. During this Case Study I will explain what a genetic mutation is and the difference between inherited mutations versus point mutations, I will also describe how the technology explained in "Cracking Your Genetic Code" can be used to detect mutations and predict your health, lastly I will give my opinion on whether or not genetic mapping should be utilize to develop and personalize medical treatment while identifying the dangers in knowing our personal genome.

Sir William Osler wittily compared the development of personalized medicine to an art form, saying that medicine would truly be a science if all humans had the same genetic makeup (Theodorescu, 24). One can easily imagine how each human started as a blank canvas and over time developed additional brushstrokes from factors such as genetic crossovers and mutations, making everyone a unique piece of art. Because no two individuals are exactly the same, there is a need for individualized treatment when people are ill, which is where personalized medicine takes on a role. Personalized medicine is a relatively new area of drug development that emerged in popularity after the sequencing of the human genome in 2003; it concentrates on getting “the

The Human Genome Project (HGP), an international scientific research project, has educated the public tremendously on various topics concerning DNA and genetics. This study has been beneficial to communities alike. As stated, the HGP sought to identify all the genes in human DNA, determine the sequences of the three billion chemical base pairs that make up human DNA, store this information in databases, improve tools for data analysis, transfer related technologies to the private sector, and address the ethical, legal, and social issues that may arise from the project. In favor of achieving these goals, scientists studied the genetic makeup of several nonhuman organisms (Human Genome Management Information System, 2011).

In this chapter we will explore the topic of genes. Genes help to determine who we are and take part in molding how our children will turn out to be. Many aspects will be investigated to gain insight into the world of genetics. Genes and the way they are transmitted will be explored. Hereditary gene mutations and its impact on a person’s health are analyzed. Experts opinions on what they believe will be the future of genetics in the healthcare industry and the ethical implications that can arise will be addressed. This paper will explain the way people can use the knowledge of genes and gene mutations to improve their health and the health of their families.

The human genome project is something that I have been very interested with ever since first learning of it. I had heard bits and pieces of what it is about, but my interest was greatly stimulated by Dr. Whited in basic genetics 311 last spring. The discussion that we had regarding the project left me with several ideas and questions about not only the process and ethics involved, but the future of the study of genetics as a whole.