HIV Patients and Case Managers during End of Life Experience
Jennifer R. Molestina
Albizu University
April 2015
Abstract
As researchers develop more and more treatments for HIV that improve patients ' quality of living and extend their lives, it is necessary to remember the importance of pain control, symptom management, excellent communication, and psychosocial support from time of diagnosis to time of death. Case managers must remember the fact (and prepare themselves accordingly) that, despite their best efforts, patients with HIV infection will eventually die and that helping prepare them and their loved ones for that eventuality is an important part of caregiving. Ultimately, all treatments for chronic and incurable
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What is crucial for these patients is to relieve pain, helping them psychologically, spiritually and socially enable them and their caregivers to work through their pain, emotions and grief. The course of HIV/AIDS is very unpredictable, with many symptoms and alternating period of episodes of acute illness that being said, palliative care for HIV/AIDS is a balance between acute treatment and attending control of chronic symptoms and conditions. There is a wide range of treatments available for patients with this illness, but their high cost means they are not available to most patients especially in developing countries. As HIV/AIDS is so broad, we are going to concentrate on talking about how a case manager can provide social support to these patients and their families.
People living with HIV/AIDS experience emotional and psychiatric problems for many reasons, but their quality of life can be improved when health workers, family members and carers understand these problems and support the patients that are experimenting them. Depression is common, sometimes can be treated with counseling alone, but if the symptoms are severe, treatment with anti-depressants drugs is needed, it is very important to address these symptoms and to have a professional make a recommendation because people living with HIV/AIDS may consider suicide. Anxiety is also a common symptom in people with advanced HIV
By consolidating what these men learned in this group, we will be able to understand where each member stands. In this group, members should have learned how to deal with their stress levels and find meaning in their diagnosis. Ethically, I need to recap during the last sessions with the clients to remind them what they have learned so the group experience was not for naught. Accordingly, I want to summarize with the group what they learned about the challenges of being HIV positive while encouraging them to use the skills they learned in the group outside of the group, while keeping the confidentiality of the group members.
Discussion of end-of-life care rarely occurs in the Haitian household until the patient reaches the hospital and it is too late. This leads to family members unaware of patient preferences and unnecessary treatments. The participants’ knowledge
Death is inevitable. It is one of the only certainties in life. Regardless, people are often uncomfortable discussing death. Nyatanga (2016) posits that the idea of no longer existing increases anxiety and emotional distress in relation to one’s mortality. Because of the difficulty in level of care for end-of-life patients, the patient and the family often need professional assistance for physical and emotional care. Many family caregivers are not professionally trained in medicine, and this is where hospice comes into play. Hospice aims to meet the holistic needs of both the patient and the patient’s family through treatment plans, education, and advocacy. There is a duality of care to the treatment provided by hospice staff in that they do not attempt to separate the patient’s care from the family’s care. Leming and Dickinson (2011) support that hospice, unlike other clinical fields, focuses on the patient and the family together instead of seeing the patient independent of the family. Many times in hospitals, the medical team focuses solely on the goal of returning the patient back to health in order for them to return to their normal lives. They do not take into account the psychological and spiritual components of the patient’s journey and the journey that the family must take as well. For treatment of the patient, Leming and Dickinson agree that hospice does not attempt to cure patients, and instead concentrates solely
of life in individuals with HIV disease (Corless et al., 2004, p. 292). The sample consisted of 40 subjects: 23 men and 17 women. The HIV-positive adults in a primary care clinic were asked to participate, so this study has a sample of
An ogre named Shrek is mad at Lord Farquaad for putting all fairy tail creatures in his swamp. He goes to his castle with an annoying donkey to make him get rid of the creatures. Lord Farquaad makes him a deal. He tells Shrek to go save Princess Fiona so she can be his wife and he can become king. If Shrek does this, he can get his swamp back.
HIV has affected people all across the world. HIV comes with physical and mental symptoms. The body symptoms include skin flaking off, being dry, skin peeling off (Saliba 23) , fingernails falling off (32), and weight loss (14). Mentally it is hard to sleep, people become weak, and are tired all the time (23). People all across the world are infected with this disease, and the problem with this is the fact that most do not even know they have it. The most people who are infected each year are African Americans, gays, or bisexuals. 10,315 African Americans were infected in 2015. The U.S.A. has estimated about 1.1 million are infected with the disease. Equally to about 12,333 deaths happened in 2014 from AIDS related diseases, and 6,721 deaths from AIDS directly. Although there are a large amount of people getting infected, on the other hand eighteen percent of the population with HIV is declining since 2008-2014 (“U.S. Statistics”). In the world about 33.2 million people worldwide have HIV, with 22.5 million people in sub Saharan Africa are living with this condition, one out of nine people who live in South America have HIV or AIDS (Saliba 8).
In my vulnerable population paper I referenced the HIV population and the struggles they go through. It is my experience that has shown me that al lot of times it is difficult to get the patient to open up and convers about what they are feeling about this horrible diagnosis. Some of them like my aunt have dealt with it for so long that it becomes easy for them to mask how they feel. I would like to suggest out of sense of resilience they have learned to suppress their
Social workers play a pivotal role in the delivery of palliative care (Cadell, Johnston, Bosma & Wainwright 2010). While many other members of the healthcare team focus solely on the medical-side of a person’s wellbeing, social workers are trained to take a much wider view. By addressing physical, psychological, social, spiritual and practical problems, they aim to alleviate a person’s suffering and improve their quality of life (Bosma, Johnston, Cadell, Wainwright, Abernethy, Feron, Kelly & Nelson 2010). This ‘holistic’ model of care requires social workers to undertake a multitude of tasks including educating clients about their condition; assessing their biopsychosocial needs; and providing a range of practical and emotional resources to address these issues (Small 2001). However, the recent cuts to staff numbers and services in the south-east is threatening the ability of social workers to perform these roles.
What was once believed to be a form of neglect has resulted in a change in practice with the idea that doing less is more. Culture is an important factor in how care is rendered and thus, the limitations of palliative and hospice care lie within the desires of the family and patients. A thorough understanding of our surrounding demographics helps to ensure a seamless approach to providing care without bias or imposition of ones beliefs. However, just as with all things, providing care for the sick and comforting the dying should be rendered in moderation as to prevent the effects of burn out. Likewise, the same effects occur in the caregivers who sacrifice their responsibilities in order to care for their love ones. Finally, and with some closing thoughts, the writer wishes to express with gratitude the benefit of having taken this course to better understand oneself and others in the realm of healthcare. The lessons learned throughout have expanded this writer's knowledge and understanding of the human desire to make a connection through communication, emotion, compassion, and spiritually - the platform from which this writer wishes to continue seeking further knowledge and
Patients with chronic conditions are living with a disease that impacts every aspect of their lives; though many are able to live seemingly normal lives, anyone who is familiar with a diabetic or HIV+ individual understands the deep emotional and physical toll of dealing with the disease day to day. Despite diagnosis of these conditions being tantamount to a death sentence (albeit very far in the future), patients with
Illness uncertainty is a cause of a persistent and all-encompassing mental anxiety for people existing with human immunodeficiency virus (HIV)/acquired immune deficiency syndrome (AIDS), and basically changes how well they live and their coping ability with the disease. Social support or the lack thereof is a precursor of uncertainty in illness according to the Uncertainty in Illness theory. In 2013, a cross-sectional correlational study was conducted by Moosa, Mayam, Narges, and Fatemeh to examine uncertainty in 80 people living with HIV and how it related with social support in Iran. The outcome proved the theory and confirmed a high level of illness uncertainty in people living with HIV and a negative correlation amid apparent social support and illness uncertainty (Sajjadi, M., Rassouli, M., Bahri, N., & Mohammadipoor, F. 2015). In another study done by Deimling, Musil, Moore, Schneider & Wonghongul, on 2000 breast cancer survivors. The survivors
In nursing, the goal of care is usually to restore the patient back to the highest level of health possible. In some cases, however, the goals of care change when a curative approach is no longer appropriate. The new goals of care could simply be palliation and pain control rather than a restoration back to full health. This type of care is called palliative care. Palliative care is not the same as end-of-life care, but the two go hand-in-hand at times. The goal of end-of-life care is a “good” death, good being defined by the patient. Palliation is part of that “good” death. Both palliative care and end-of-life
When discussing the concept of friendship, the dilemma is, as Graham Allan once stated, that there is an absence of socially acknowledged and strongly agreed criteria for what makes an individual a friend (Allan, 1996, p.85). In one situation, an individual can describe another person as a friend, in another the title may appear less suitable. Some scholars, including Robert Bellah, draw upon Aristotle’s “Nicomachean Ethics” and suggest that there are three components of friendship: “Friends must enjoy each other’s company, they must be useful to one another and they must share a common commitment to the good” (Doyle and Smith, 2002). In modern western societies, it is easy to grasp the notions of utility and pleasure but the last component, common moral commitments, seems irrelevant in terms of friendship because today’s culture is dominated by utilitarian and expressive individualism (Doyle and Smith, 2002). Many recent commentators tend to describe friendship as voluntary, private and happening between people. This contemporary view contrasts with the main aspects of classical view, as it derives from a specific perspective of selfhood (Bell and Coleman, 1999, p.8).
I have always believed that health cannot be optimized through the treatment of disease only. Rather, health should be addressed on a biological, physical, psychological, social, and spiritual continuum. Palliative care addresses an often-overlooked aspect of the patient experience, which is symptom management of their chronic illnesses. Health care professionals tend to treat acute episodes of
The case study based on the palliative patient Mrs. Mavis looks at issues both the family and the patient are dealing with in regards to the end of life treatment Mrs. Mavis is receiving. Mrs. Mavis is a palliative patient, currently unconscious, who is dying and only wants comfort measures within her nursing care. This was made clear through her advanced care directive, which was made weeks before beginning to receive her end of life care. Mrs. Mavis’ comfort measures include pain relief, hygiene and keeping her comfortable. Mrs. Mavis’ family want her to have fluids and medications to help improve her health. They also want oxygen and pain relief to help with her breathing. Issues such as educating and supporting the family, pain management, the effectiveness of having an advanced care directive and pain assessment will be evaluated to determine the best effective interventions for Mrs. Mavis and her families care. Interventions that will be discussed through-out this essay include the use of analgesia medication, the use of subcutaneous injections and syringe drivers, emotional support for the family, effective communication, educating the family on Mrs. Mavis’ wishes and the importance of having an advanced care directive. These interventions will be evaluated to ensure they are the best practice for Mrs. Mavis’ care.