How Did You Feel After Learning That Your Son Was Affected By Spina Bifida?

The mother reports that the child responded well to different people and family members and friends reported the child was easy to care for. The mother however reported that being a single mother was stressful.

He also likes to play with kids tells them never to give up in school and tells them kind words and makes them fell happy about there day.Talks to kids about football and tells them to never give up in school if you want to be where he is one day if you want to be in football you haft to succed.

And the childs world is never quite whole again.” (Steinbeck 19-20) This is a bueatiful quote; explaining feelings and emothions a child goes through once they realize adults are not always as: perfect,wise,kind, or intellagent as they may seem when you are a very young child. Adam could relate to the feelings of this quote when he caught his father out and realized his father was not a great man. He also realized his fathers training methods were only used to make him a better man, not to benifit Adam or his brother.

Before Adam could become a Navy SEAL and be a hero to his country, he was a hero to his family. Adam had one older brother, Shawn, and a twin sister, Manda. Together with their parents, Janice and Larry, they were a family of five. Adam was always over protective of his twin sister. According to the author, Adam’s protective side would shine when he and Manda would walk to school. They had to make their way past the middle school handball courts. Any smaller kid within range would be bombarded with tennis balls. Adam would spread his arms out and side shuffle, guarding me, keeping me close to him so the balls wouldn’t hit

E: I went to school with a girl that had her baby prematurely. The baby ended up having to stay in the hospital for a while, but she is 3-years-old now and has no issues.

For the past two years, I have been working with a child who was diagnosed with spina bifida at birth. He is paralyzed from the waist down, and uses a manual wheelchair for mobility. Like most twelve-year old boys, he enjoys being outside and loves basketball. The neighborhood he lives in has an outdoor basketball court for the community to enjoy, however; there are many barriers interfering with his ability to access to area. His neighborhood was developed prior to 1990, so the public areas are not in compliance with ADA standards. The basketball court is located down the street from his home, and currently there are no sidewalks available for him to safely maneuver his wheelchair. The parking lot outside the court is an uneven gravel terrain

This was not my first pregnancy , but it would prove to test my faith like it has never been tested before. I spent many nights in that old recliner pounding at my thoughts. Maybe, If had done something that GOD was angry at me for, or maybe he turned his back on me. I try to live my life right that was pleasing to GOD. I prayed daily. I walked by faith and not by sight. I gave my last to help a fellow man. I prayed for my family more than I prayed for myself. So when, the doctor told me 5 months ago that my twins had Spina Bifida I didn’t understand. Not one but both girls had Spina Bifida. Spina Bifida is a birth defect where there is incomplete closing of the backbone and membranes around the spinal cord. I even blame myself because as an License Practical Nurse for 11 years I was aware that Spina bifida was linked to an folic acid deficit. My doctor quickly reassured me that this was not the case. All my lab work was okay. My faith taught me that GOD don’t make

On November 26th 2013, I got diagnosed with Cystic Fibrosis (CF). Needless to say, it was an extremely difficult period for everyone in my family. I got admitted in the hospital for emergency treatment. My whole family came together in this crisis.

He was born on June 11, 1969. Studied in the University of Pennsylvania. He loves visiting the zoo, museums and the beach. His favorite sports are biking, skiing and playing

However, the doctor speculated that Aries was both blind and deaf among other problems; despite this I had hope for Aries I loved him from the moment of his existence. The doctors were able to initially diagnose that his seventh, ninth and tenth cranial nerves were undeveloped or damaged. As a result Aries’ face appeared asymmetrical and he was not able to breastfeed or takes a bottle, as an alternative a feeding tube was inserted into his tiny nose. Looking back I know that I must have been scared, although, somehow I did not even admit my fear to myself. Because of Aries complexities, I was asked several times by hospital staff if I was sure that I understood the complexity, and weight of the role in being Aries’ mother. I expressed that I felt confident in raising my son and that I was willing to learn whatever I had to, in order to care for him competently. At the same time, I was upset that I was asked more than once if I felt that it was responsible to raise Aries myself, I questioned whether I would have been asked the same questions if Aries’ had been born without disabilities (?) probably not. I received training to learn how to tube feed and Aries was discharged from the hospital on October 30, 2003. Aries was in the hospital for the first five weeks of his life, comparatively most babies go home 24 hrs after

I can honestly say going through labor was the most painful thing I had ever experienced. Once Freddrick finally did arrived I knew that I would love him unconditionally for the rest of my life. He was just as precious as he could be and didn’t have a worry in this world. I didn’t know the type of mother I would be, but I was determined to be a different type of teenage mother. I wanted to show everyone I might be young with a son, but I made sure Freddrick was taken care of financially, Freddrick came first in my life at all times, Freddrick had disciplined in his life, and that he would know that mommy would always love him regardless of what happens through life.

People always think that once you have a kid, it will be all sunshine and daisies. Maybe sometimes it can be like that, but not always. There are joys and challenges with everything in life. Many people have different ways of describing the joys or challenges of taking care of an infant, for example, some people would find that first outing as a joy and some people find it as a challenge. Men and Women both have perspectives with how they raise their children, whether together or as a single parent.

Although I gained the knowledge to be a more stable and positive individual, something was still missing in my life. The missing piece soon fell into place upon the birth of my twin boys, Irijah and Isaac. A multiple birth was a miracle within itself. It seemed unreal because no one in my family was ever blessed with two babies. Although it took a lot of adjustment, we made it through the baby period. The hard part did not come until they became toddlers. (During this time), I noticed complications (in the development) (of the twins). I soon learned that although they were perfect on the outside my boys were suffering with autism. Irijah is severely autistic while Isaac’s is mild. I knew that in order to conquer this obstacle, changes would have to be made. In the beginning I was unaware of what needed to be done, but I never gave up. I continue to fight for my boys and struggle to keep my sanity. This has been the toughest fight of my life because it involves a series of changes. These changes dealt with acceptance, transition, and adaptation. These were necessary steps because it gives the boys a chance to lead a somewhat normal life. Through the love of my sons, I have learned to adapt to change and have gained strength and perseverance that is necessary in life.

I will never forget the moment my labor began, the moment that marked that step in my journey into motherhood. I can remember everything about it so clearly. My mom, fiancé, and I woke up early Friday morning to make our way to Western Missouri Medical Center. I stood in front of the mirror looking at my belly knowing it would be my last time standing in that bathroom with my baby inside of me still. It was a bittersweet moment that I cherished as long as I possibly could. I was set to be induced that morning and very excited, yet a little bit nervous. I had no idea what to expect. I’d been waiting a very long 37 weeks to finally meet this precious human that had been growing inside me. I had ideas of what he might look like, and what the experience might be like, however nothing could have prepared me for what was in store over the next few days.

Mother: I have a case of moderate arthritis from playing tennis and gardening, so my doctors were concerned about my body's ability to carry the pregnancy to full term and handle the full ordeal of the delivery. The birth of our child took a long time. I was in labor for nearly four days. We hired a lovely midwife who has specialized knowledge in handling special births, but after the second day, we decided to load me up in the car and head for the hospital. It was frightening, I suppose, but I also felt a clarity of purpose. I really wanted this baby and I knew that the baby's best chance and my best chance for survival was for me to stay calm and coherent as possible, for the sake of my family.