Essay about Inherited Diseases: Xeroderma Pigmentosum

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The sun is something we all take for granted; a big fiery star 92,960,000 miles up in space, that is there every day, waiting to greet us. We expect it to rise and set at a certain time and don’t think much more of it. What if you couldn’t go out in the sun? What if your flesh burned in the light and retired you to the darkness of your locked up home. This is how children live who suffer from the inherited disease, Xeroderma Pigmentosum, otherwise known as XP. It’s a rare disease that causes extreme levels of sensitivity to UV light. The human skin is normally able to repair the skin damage, but children living with XP cannot. Its strikes one in one million born in the U.S. and Europe but is more commonly found in Japan, North Africa, and…show more content…
The most important step is blocking the sun: boarding windows, doors, etc. (“Xeroderma Pigmentosum.” The New). On top of that, sunscreen should be applied outdoors as well as indoors. Complete coverage of the skin from long opaque clothing, to special shielding suits is also a good preventative (Hartree). As seen in the photo to the right, a young boy, Alex, received the first prototype UV protection suit in 2003. The suits are currently used today and seem to help against UV light. Aside from the suits there are also night camps dedicated to those suffering from XP. Camp Dermadilo in Texas is sponsored by the American Academy of Dermatology. This camp hosts activities that go on during the evening in a UV protected building, allowing the children to interact and have fun just like any child should be able to do (XP). To help further XP children’s “regular life”, treatment is needed to help better themselves. Although there is not a cure at the moment, there are measures one must take to protect the life of an XP child (XP). The general idea is to stay away from light, to minimize outdoor activities, and use high SPF sunscreen to all exposed areas (“Xeroderma Pigmentosum.” DermNet). But the most important thing is frequent doctor visits. Seeing as XP leads most towards skin cancer, XP patients need to have a skin examination every 6 months, along with frequent skin examinations from

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