Interprofessional Palliative Care Of An Als Patient Essay

ALS is also known as Amyotrophic Lateral Sclerosis is a disease in which the brain, nerves, and spinal cord deteriorate. It attacks every part of the body except the brain. Causing major body malfunction along with muscle weakening. Which includes lack of strength, the ability to move arms, legs and body, eventually you lose the ability to breathe. The average time of life after being diagnosed is two - five years. It was believed to be inherited or maybe an infection. After years of research scientist have found a major

“We can leave the mountain anytime we want but those with ALS are prisoners in their own body”-Alex Williams. People with ALS start losing their ability to move as the disease goes through their body. In the Book Tuesdays with Morrie by Mitch Albom Morrie Schwartz has ALS and he tries to give away all of his wisdom before he dies. Morrie teaches people to live life through showing love to family, not hiding or being scared of aging and accepting that Death is natural.

ALS (Amyotrophic Lateral Sclerosis) or Lou Gehrig’s Disease is a classified as a degenerative neurological disorder that inhibits motor neurons in the spinal cord and brain to function properly. This disease eventually results in paralysis and imminent death over a period of time. ALS patients have anywhere from a few months, to a couple years to live after diagnosis since their nervous systems are slowly destroyed, rendering the body useless, and sustaining life impossible.

Explain why individuals with dementia need to be supported to make advance care plans as early as possible

Death is inevitable. It is one of the only certainties in life. Regardless, people are often uncomfortable discussing death. Nyatanga (2016) posits that the idea of no longer existing increases anxiety and emotional distress in relation to one’s mortality. Because of the difficulty in level of care for end-of-life patients, the patient and the family often need professional assistance for physical and emotional care. Many family caregivers are not professionally trained in medicine, and this is where hospice comes into play. Hospice aims to meet the holistic needs of both the patient and the patient’s family through treatment plans, education, and advocacy. There is a duality of care to the treatment provided by hospice staff in that they do not attempt to separate the patient’s care from the family’s care. Leming and Dickinson (2011) support that hospice, unlike other clinical fields, focuses on the patient and the family together instead of seeing the patient independent of the family. Many times in hospitals, the medical team focuses solely on the goal of returning the patient back to health in order for them to return to their normal lives. They do not take into account the psychological and spiritual components of the patient’s journey and the journey that the family must take as well. For treatment of the patient, Leming and Dickinson agree that hospice does not attempt to cure patients, and instead concentrates solely

Hospice patients often receive palliative care to help them cope with the stress, pain, and anxiety that comes with hospice care. Galfin, Watkins, and Harlow (2011) explored the need to train palliative care nurses how to provide not just physical care, but also psychological care. The authors reference previous studies that addressed similar training programs, but point out that many lack an explanation of what the palliative care entails, or statistical evidence to show if guided self-help improved patient’s psychological distress.

Amyotrophic Lateral Sclerosis or ALS is a disease caused by concussions and head trauma. ALS is a rare neurological disease that mainly involves nerve cells, which control voluntary muscle movement, such as breathing, talking, or chewing. With this being a progressive disease that has no cure it has made a tremendous impact for check ups after blows to the head. A hit to the head does not always mean you have a concussion, but with symptoms and side effects the athlete should not take a chance and get it checked out immediately. This is more of a physical incapacity disease. ALS has become a common disease for athletes in the mid-twenties, and life expectancy is very slim once the diagnosis has taken place. The main reported life periods for ALS athletes has been 3-5 years, but with medication and treatments it has had higher life expectancies about 20% have 5 years, 10% have 10 years, and 5% have 20 years. The athletes lives have changed from the beginning of the diagnoses till the end of the lives they do live with the disease. Being a scary thing to think about athletes do tend to have the ability to walk away at retirement perfectly clear from ALS, which is a win.

An individual diagnosed with a terminal illness has one major battle to fight. Families of terminally ill patients suffer significant effects related to an illness, forcing some households to have large debts and making them unable to afford food and other necessaries. One specific terminal illness is called Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig's disease. ALS is a disease affecting the human nervous system like the brain, muscles, and spinal cord. It is a deadly disease that cripples and kills its victims. ALS is a terminal illness that is characterized by specific symtoms and has treatments.

This essay discusses the core principles of long-term conditions and management. Government guidelines and standards are also discussed in relation to how these will impact the care of the patients who are experiencing long term conditions. The reports, guidelines and plans that play an important role in directing the current nursing system today, are discussed with regard to the management of chronic conditions and lastly, palliative care and outcomes from the publication “Together for Health – Delivering End of Life Care” (2013)

The word “Amyotrophic” comes from the Greek language meaning “no nourishment”. ALS causes muscle weakness, problems with coordination, stiff muscles, loss of muscles, muscle spasms, over reactive reflexes, and fatigue. The symptoms of ALS increase rapidly, which makes an individual lose control of the muscles and begin having slurred speech. The arms and legs begin to feel weak and tired unexpectedly, while also experiencing cramps. When a medical professional diagnose someone with ALS they have about 2-5 years to live on average. Although about 10% of people with ALS live up to 10 years with the disease, while 25% live up to 5 years and 50% live up to 3 years. The average age that an individual is diagnosed with ALS is 55, but varies from the ages of

He said he cannot take care of his wife and his 14-year-old son, who is having a really hard time with understanding that his family needs his help right now. My uncle also said that ALS has taught him a lot about himself and about other people. He said that losing his independence to be able to help himself and his family is absolutely heart breaking. ALS would be considered a negative mutation, because it shortens your life span by quite a bit with an average life expectancy of two to five years from the time of

I would contact the palliative care office and perceive how they could bolster us. Some professionally helped help gatherings, casual dialog sessions, and adaptable time plans. We could do some questioning with another companion or a medicinal services proficient may likewise be useful. We could keep up an associate support framework and develope an emotionally supportive network out of the work

I have been a registered nurse at UCLA for 18 months. One particular issue that has captured my attention is the utilization of palliative care in health care. Because nurses are generally at the bedside all the time, they have an important role to play in voicing the importance of its utilization and implementation in the patient’s care.

A distinctive characteristic of ALS is that although the motor neurons die, the brain, cognitive functions and sensory neurons stay intact (Porth & Matfin, 2009). This makes the disease especially devastating because patients become trapped inside their dying body, with a fully alert mind, but are unable to move. It is not known what causes the exact death of the motor neurons in the body, but “five percent to 10% of cases are familial; the others are believed to be sporadic” (Porth & Matfin, 2009, p.

Care team members need to be aware of this tendency to overestimate survival, to reduce residents’ and families’ potential distress.