Jon 's Parents Feared Of Having A Child With Mental Retardation Essay

For this research paper my client will be known as H.C. This particular client has suffered from multiple diagnoses during his time at Sonoma Developmental Center (SDC). My client has lived at SDC since 1947, at the age of 13 years old. H.C. willingly came to SDC when his family could no longer cope with his behaviors. He liked to be independent and was an active worker when he worked at his job sites. H.C. had a bundle of past achievements that he enjoyed mentioning to his aides by pointing at pictures. At a frail age H.C. could do his activities of daily living, but needs assistance from time to time. Physically H.C. was a short man with balding white hair and had poor eyesight so he wore glasses. His walking gait was failing and his feet would shift against the floor, so he had a walker that he could use. He was socially withdrawn and would only communicate when he felt that his needs were pressed. He had trouble finding words to communicate what he wanted to say and would like to do things on his own rather than relying on staff. He also lived by his set schedule, so anytime there was an appointment set for him he needed to be reminded before his day began.

In the essay “On Being a Cripple”, Nancy Mairs shows us a class of two subcultures: being a parent and being disabled. Looking at the intersection between these culture and identities will show us important facets of disability that all people should understand. Throughout the essay Mairs explains the effects Multiple sclerosis and how it negatively and positively affects her life and the lives of her gracious family.

Deception surrounds daily life whether it is a lie about homework being completed or acting a different way to gain one’s approval. More times than not, deception is meant to protect someone, including another person or one’s self. In The Memory Keeper’s Daughter, written by Kim Edwards, one of the protagonists, David Henry, constructs a lie about his daughter in order to protect his family. When Norah Henry gives birth to her twin babies, David Henry discovers that his daughter, later named Phoebe, has down syndrome. Norah, sedated after enduring harsh labor pains, is kept away from the children and doesn’t get the chance to see her daughter, who was a surprise.

In my time volunteering at Adams Camp, I have received the opportunity to be able to know Jordan Ficke. Jordan Ficke is a brunette, young woman who has devoted most of her life to helping other people. While she has spent over a decade of her life helping people with developmental disabilities, she has also worked at schools and a rehabilitation center. She stated that “if you love what you do, you will never have to work a day in your life!” She truly has lived by this motto, as her life has been lived for the benefit of others. Prior to moving to Colorado, she lived in Baltimore, working at a day habilitation program. She “served clients with dual diagnosis in mental health as well has an intellectual disability that

In the process of growing up as a child, Daniel admired his grandfather and specially all the effort and dedication he put into his jobs. His grandfather was always a man of determination, and used to work very late to bring food to his family, but always showing a big smile always inspire his grandsons. Daniel also describes his childhood as very usual of having friends, playing with his twin brother and exploring the world. The best memory of Daniel during his childhood was when he received his first dog. Even though it was just a little pet he got, he never taught he could get one of his own. On the other side, one of the worst experience in his life was on a thanksgiving dinner at his aunt house when he was 11 years old. Daniel and his twin were dressed up very nicely for the dinner and playing around the backyard with a stick. All of a sudden his twin brother push him with the stick and make him fall into the pool. Therefore, Daniel got all his clothes wet and his mother was very upset and blaming Daniel for the

Jayber talk about lose with his parents dying . After his parent die he go to stay with his aunt and uncle until they die. Jayber handle eveything that was throw at him without anyone help but his

One boy out of a school of more than three hundred boys. Wilfred, the lad’s name, was an orphan and as is often said, ‘birds of a feather flock together.’ It could not be accurately said that Wilfred shared much in common with John, but they both lacked parents. John’s lack of a nurturing father existed because Formonsus senior withheld all fatherly contact and benevolence, and was as deleterious to John’s health and development by making him through strictures a motherless child. He lacked a mother because his father forbad her to have anything to do with the boy other than she was permitted to see to his .necessities’ when he was sick. A state with which he was rarely affected. Therefore, John was without normal parental interactions and benefits, and Wilfred was a orphan whose parents had died when he was young, leaving him dependent on the charity of the town. In these circumstances, each of their situations held points of similarity that were greater than any differences between

As a little boy Jeison was told things by doctors. He once said on a talk show "When I was a young boy, a doctor told my mom that I would amount to nothing.” (Aristizabal) For different people the scary thought can be based off of different reasons. Jeison also knew how people felt. As again talking on a talk show he had this to say. "Around the world, when families have a kid with a disability, they think that child won't be capable of much." (Aristizabal) Now most people will say this is true, but there are few like Jeison who know some can defy the

My nephew, Giovannie, has a mental disability. Naturally, he is not capable of completing tasks that a healthy seven year old boy can. Most notably would be his lack of using the “porcelain throne.” But regardless, Gio is the sweetest little boy you will ever meet. Whenever he came over he would greet me the same way; running in a full sprint, arms out, with a huge smile from ear to ear showing his missing front teeth. “DEENEEEE,” he would shout once he caught one glimpse of me. But two years ago, on a cloudy spring afternoon, Giovannie showed me a side of him that almost brought me to tears.

In A Life Beyond Reason, Chris Gabbard discusses life with August, his disabled son, and how it affects him and his family. During August birth, he was unable to take his first breathe which caused him to suffer severe brain damage because of several medical misjudgments (194). Eight month after August was born, the doctors did a CT scan of his brain; unfortunately, his brain had so many dead patches, it resembled Swiss cheese (194). August is legally blind, nonverbal, paraplegic and who must wear a diaper. (190).

Johnson's book also confronts the untimely predictions of her death that she and other children with neuromuscular diseases hear, especially from the telethons. She writes about "being a little girl who knows she will die" and right from kindergarten pursues an educated, engaged life as she accepts that knowledge. That she lived, as her title reminds us, decades beyond childhood--she died at age fifty in 2008-suggests the value of her engagements. Harriet McBryde Johnson offers an important account of the experience of living with a disability. Her personal stories argue urgently for social justice and remind medical caregivers that her interpretation of the experience of being human matters.

He never knows where he stands and feels like an outsider always looking in. He feels like he is too white on the Reservation and too Indian for Reardan. Junior can always rely on his parents not in a sense that they will always be there physically but emotionally he know’s they are there. Even though his Father is an alcoholic and they often go without food and have no money to buy petrol to get him to school Junior knows that he tries his hardest and loves him very

Ben is an 8 year old boy with a rare disease called canavan disease. Canavan disease is a non well known disease mainly incorporated in AshKenazi Jews. The disease affects the neurons in the brain causing the brain to develop oddly. Common symptoms of the disease are abnormally large skull, unable to develop proper motor skills and weak muscle tone growth. Ben’s parents have had trouble procreating in the past but Ben was a whole new catastrophe. When ben was born in January of 2003 he was not diagnosed with the disease until a whole 8 months of being alive. Ben’s parents immediately knew their son had something wrong with him due to his unable to stay calm without food, uncontrollable crying, and inability to sleep. Ben’s parents had no idea how much pain Ben was in. After countless months of routine checkups, Ben was taken to a new doctor where he was later diagnosed with the rare disease. Ben’s

There, children learned through beatings, deprivation, and fear to yield to their keeper. Keepers tormented their minds, abused their bodies, and determined every other aspect of their existence. Like most pauper children, John grew morose and sullen. He lacked the spontaneity of normal children, and lived in permanent dread that another tragedy might crush him.

Imagine giving birth to a child, being ecstatic to have a new baby around the house. As the child gets older you start noticing your child is not developing like other children. You go to the doctor for a visit and you are told your newborn baby has been diagnosed with Cerebral Palsy. Not knowing anything about this disability, you are frightened and concerned for your child. People living with this disability are living a life very different from the average person. Since they are living with this disability and live an altering life, they face difficult challenges that affect them in many ways. Although the diagnosis of Cerebral Palsy can be startling for parents, many patients are capable of living independent and fulfilling lives.