Introduction
Bringing end-of-life care back into the community, specifically into-home, is a patient centered and cost effective option which provides an essentially holistic and comfortable environment for the dying and their families. The purpose of this paper will be to examine how bringing end-of-life care back into the community positively impacts patients, their families, the nurses in charge of their care and the relationships that are facilitated as well as provide an overview of the cost effectiveness of this type of health care. Keeping end-of-life care in-home when possible, makes it easier for loved ones to care for access their family member during an often difficult and stressful time. In a familiar setting, families are
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In this instance standard homecare referred to non-nursing care, further demonstrating that end-of-life health care in the home ensures further comfort and heightening that sense of confidence with the palliative system. As patients are in their home, loved ones have an opportunity to be more involved in their care as they have constant access to the health care team, as well as a defined safety and care plan which helps in reducing some of the stressors that the family may experience during the palliative period of their loved one. As care progresses, the relationship built with the health care team, specifically nurses, becomes paramount to ensuring patient comfort. Community nurses have the advantage of really getting to know their patients, intimately and medically, ensuring that they are able to deliver the best of care. When a nurse is able to immerse herself in the home environment of her patient, it allows her to develop a deeper and more intimate rapport with the dying patient and their families. This creates a higher satisfaction in the level of care that is being received. In a study published by Karlsson, Edberg, Jakobsson, & Hallberg (2013), it was shown that, “The care satisfaction was rated higher among older people receiving public care
This author’s personal perceptions concerning patients facing a lingering terminal illness, have been shaped by over 20 years of critical care nursing experience. Facing death and illness on a daily basis requires self-examination and a high degree of comfort with one’s own mortality, limits and values. Constant exposure to the fragility of life forces respect for the whole person and the people who love them. A general approach to patients who are actively dying is to allow them to define what they want and need during this time. The nurse’s role
Death is inevitable. It is one of the only certainties in life. Regardless, people are often uncomfortable discussing death. Nyatanga (2016) posits that the idea of no longer existing increases anxiety and emotional distress in relation to one’s mortality. Because of the difficulty in level of care for end-of-life patients, the patient and the family often need professional assistance for physical and emotional care. Many family caregivers are not professionally trained in medicine, and this is where hospice comes into play. Hospice aims to meet the holistic needs of both the patient and the patient’s family through treatment plans, education, and advocacy. There is a duality of care to the treatment provided by hospice staff in that they do not attempt to separate the patient’s care from the family’s care. Leming and Dickinson (2011) support that hospice, unlike other clinical fields, focuses on the patient and the family together instead of seeing the patient independent of the family. Many times in hospitals, the medical team focuses solely on the goal of returning the patient back to health in order for them to return to their normal lives. They do not take into account the psychological and spiritual components of the patient’s journey and the journey that the family must take as well. For treatment of the patient, Leming and Dickinson agree that hospice does not attempt to cure patients, and instead concentrates solely
Key people could be family, doctors, carers, religious leaders etc. Each may own distinctive role to play in order for the choices and preferences of the individual to be respected and carried out. [ Every person’s end-of-life trajectory is different and needs differ in intensity and quality over time. End-of-life care must adapt to the varying and changing needs of the individual over time and that it cannot be limited to certain settings or services. The provision of good
Caring for patients at the end of life is a challenging task that requires not only the consideration of the patient as a whole but also an understanding of the family, social, legal, economic, and institutional circumstances that surround patient care.
The beginning of life is celebrated. Books and resources are shared among friends and family in preparation for becoming a new parent. So, what happens as one approaches the end of life? Unfortunately, the same care and sharing rarely occurs in those circumstances and many face the prospect of dying unprepared. Though most people state they would prefer to die at home, this is often not where death occurs. Many Americans spend their last days attached to medical apparatus that keeps the body alive, but it does not allow for communication with family and often requires heavy sedation. Additionally, this level of treatment comes at a high price. As a society, we must become as comfortable in addressing the end of life process as we
Great strides have been made to improve end-of-life care through palliative care and hospice programs, but sometimes that’s just not enough. In America, the care that is offered to the elderly and the chronically ill is less than ideal. Statistics show that an
Nurses: Assist the patients and families to cope with the end-of-life process such as assessing and
Comparatively, Bailey et al. (2014) studied the effects of implementing interventions to improve end of life care for inpatient veterans. The problem statement was determined to be that end of life care in the inpatient setting was lacking, which drove the aim of the study to improve EOLC and to minimize suffering of the patients (Bailey et al., 2014). The researchers theorized that this could be accomplished if recognition of end of life was increased and if home-based palliative interventions were implemented. Therefore, the team sought to study the effectiveness of implementing staff education of three items: evaluating patients who are actively dying, communicating end of life interventions with patients and families, and implementing home-based best practices for end of life care (Bailey et al., 2014). The purpose here was to improve inpatient end of life care.
Hospice is compassionate care provided to patients facing terminal illness or illness for which there is no cure. These patients are diagnosed with an illness from which they will never recover and usually have a life prognosis of six months or less (Hospice Foundation of America, 2014). The goal of hospice care is improving quality of life and managing the symptoms of disease and the dying process. The care hospice offers is focused on pain management and emotional and spiritual support for both the patient and family (National Hospice and Palliative Care Organization, 2012). Hospice care can be provided in many different settings, often the patient’s own home. Hospice care can also be provided in hospitals, nursing homes, long-term care facilities and free-standing hospice centers and is available to patients of all ages (NHPCO, 2012). A patient receiving care in a hospice program has a team of healthcare individuals that can consist of the patients own physician, nurses, home health aides, clergy, social workers, and speech and physical therapists (NHPCO, 2012). Usually, a care plan is developed by the hospice team and care of the patient is provided by family members with the support of the hospice staff (NHPCO, 2012). Nurses make regular visits to the patient and family and are on call 24/7. Once enrolled in a hospice program hospice covers everything that will be needed to care for you, from medications to manage pain to
This might be one reason why some patients choose conventional treatment instead of choosing a hospice program, there is many other factors that may contribute to this decision such as; financial status. This research will help give nurses a stronger knowledge base of characteristics and advantage of hospice care. In addition, nurses will be able to explain the advantages of Hospice programs to more of their patients, thus, they will be able to educate and encourage more families to choose hospice care. Not only will it help the patient live out a comfortable life it will also help the caregivers with
In nursing, the goal of care is usually to restore the patient back to the highest level of health possible. In some cases, however, the goals of care change when a curative approach is no longer appropriate. The new goals of care could simply be palliation and pain control rather than a restoration back to full health. This type of care is called palliative care. Palliative care is not the same as end-of-life care, but the two go hand-in-hand at times. The goal of end-of-life care is a “good” death, good being defined by the patient. Palliation is part of that “good” death. Both palliative care and end-of-life
For these people, a reliable quality care serves as vital component. But, available studies mention that end of life care has become a poor quality for nursing home residents. There are reports on improper management of shortness of breath, increased prevalence of unrelieved pain, and poor satisfaction among family members about care and communication. Such defects have an association with financing arrangements for long-term and end-of-life care services which are under the control of acceptability, fees, and regulatory mechanisms (Huskamp et al.,
This is recognized to be an issue, and throughout the article the authors provided an understanding of how palliative care and end-of-life care are provided too late for a patient and should be provided at an earlier time in order to bring more comfort to the patients. The authors suggest that when and how end-of-life care is provided should be altered, with nursing ethics in mind, so that patients and nurses may feel better about the care they receive. This source will help my research by providing information on how changing the policies of end-of-life care and palliative care can result in the patient feeling a relief from their suffering and ultimately feeling more comfortable. This will also help my argument in how altering the current policies and focusing on providing better end-of-life care can lead to the diminishment of physician-assisted
The Institute of Medicine (IOM) September 2014 Report brief- Dying in America: Improving Quality and Honoring Individual Preferences near the End of Life addresses several necessities regarding end-of life (EOL) care. These necessities include; the needs and opportunities for improving EOL care, delivery of patient-centered and family-oriented care, clinician-patient communication and advance care planning, professional education and development, public education and engagement, as well as policies and payment systems to support high-quality EOL care. Taking care of the family and the patients near the end of life requires professional commitment and responsibility from all health care professionals including clinicians, clergy, caregivers, and support staff. The health system managers, payers, and policy makers also have obligation to make sure that EOL care is compassionate, affordable, sustainable, and high quality as possible. The IOM report point out that there has been a broad improvements towards the
Quality of Life and Functioning for End of Life Care. HAT2 Community Health Nursing. Western Governors University.