Living and Coping with Cystic Fibrosis in the South Asian Community

1692 WordsJul 7, 20187 Pages
A widely accepted Caucasian disease has since changed; as cases of its existence are appearing in the South Asian Population (Orenstein, Rosenstein and Stern, 2000). First discovered in 1989, Cystic Fibrosis (CF) is a genetically predetermined condition, its presences is lifelong and highly complex, which is why many CF sufferers and families develop various mechanisms in order to adapt to the condition (Tippingemail, Scholes, Cox, 2010). Cystic Fibrosis causes the body to develop thick, sticky mucus which clogs the lungs and affects other organs in the body, mainly the pancreas. The layer of mucus if untreated develops in to a chronic infection which can be detrimental. The pancreas of a CF patient is most vulnerable, once the mucus has…show more content…
Discussions of such issues suggest that other external factors may be influencing the decisions and maintenance of many CF patients. For instance CF patients need to prioritise the way in which they self-manage their treatment, this can be difficult when trying to balance family, work, education and other responsibilities and their levels of adherence may fluctuate (Sawicki, Sellers, & Robinson, 2009). These fluctuations can be detrimental to their condition and may result in hospitalisation, causing additional disruptions in their daily life. However, engaging in so called normal activities might therefore also reinforce a sense of being healthy and having a nondifferent identity. Conquering a healthy balance is one which CF patients may need to adopt. One of the significant points from McCormick et al, (2005) research underlined the substantial clinical differences for females in comparison to males. The authors found that females had worst disease severity than males. Why might this difference be occurring? In 2009 Besier, Schmitz and Goldbeck, investigated the effects of relationship status on life satisfaction, as numerous findings suggest that despite the relationship status, many females CF patients still reported worse quality of life scores than males (Walters, Britton, & Hodson, 1993). Besier et al, (2009) administrated the Life satisfaction questionnaire on a sample of 243 CF (129

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