My Redemtion from the Muscle Test Essay

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Fibrodysplasia Ossificans Progressiva (FOP), sometimes called the Stone Man Disease, is a progressive disease that impairs movement of the muscles and joints by gradually turning them into bone. This disease can be diagnosed at a young age, but unfortunately has no known cure or treatment at this time. FOP is a fatal disease that doesn’t offer its victims a very good quality of life. By definition, Fibrodysplasia Ossificans Progressiva is: “rare genetic disorder in which the fibrous tissues, muscles, and periosteal regions undergo progressive ossification.” (Mankin, 2009, p. 169)
According to the International Fibrodyplasia Ossificans Progressiva Association, “FOP often begins in the neck and shoulders and progresses along the back,
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It is a hereditary disease more common in males than females, but doesn’t seem to have a geographic, ethnic, or racial predisposition. Many studies have been done to attempt to find the genetic anomaly that causes FOP, but it has not yet been identified. It is also unclear what the big toe malformation has to do with the disease, since there is generally no abnormal bone formation in that area. (Mankin, 2009, p. 169-170) Currently $1.5 million each year is being spent on finding a cure for FOP at the University Of Pennsylvania School Of Medicine. (FOP Fact Sheet, 2009)
To date, there is no therapy or medication that can stop or reverse the natural progression of Fibrodysplasia Ossificans Progressiva. Though there is no definitive treatment for this rare disease, management of its symptoms can help put the patient at ease. FOP is accelerated by trauma, so avoiding and preventing falls is a must. Also, high-dose corticosteroids can be prescribed to reduce the inflammation and tissue swelling that occurs in the early stages of the disease process. (Flynn, 2011, p.182)
Through my research I have found that FOP is a very cruel disease. The life expectancy of the FOP patient is only 45 years, and there are no drugs, therapies, or procedures that can repair or reverse its effects. The patient suffers constant pain as his muscles and tissues slowly turn to bone. Although there is no known cure for the disease, researchers are working

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