Palliative Care Research Paper

Death is inevitable. It is one of the only certainties in life. Regardless, people are often uncomfortable discussing death. Nyatanga (2016) posits that the idea of no longer existing increases anxiety and emotional distress in relation to one’s mortality. Because of the difficulty in level of care for end-of-life patients, the patient and the family often need professional assistance for physical and emotional care. Many family caregivers are not professionally trained in medicine, and this is where hospice comes into play. Hospice aims to meet the holistic needs of both the patient and the patient’s family through treatment plans, education, and advocacy. There is a duality of care to the treatment provided by hospice staff in that they do not attempt to separate the patient’s care from the family’s care. Leming and Dickinson (2011) support that hospice, unlike other clinical fields, focuses on the patient and the family together instead of seeing the patient independent of the family. Many times in hospitals, the medical team focuses solely on the goal of returning the patient back to health in order for them to return to their normal lives. They do not take into account the psychological and spiritual components of the patient’s journey and the journey that the family must take as well. For treatment of the patient, Leming and Dickinson agree that hospice does not attempt to cure patients, and instead concentrates solely

The loss of an adult child is devastating, just as is the death of a younger child. However, there are differences as to how both the parents react to such losses. In this case the paper focuses on the loss of an adult child and how the parent copes with the situation. The paper will give insight into the situation that precedes the demise of the child such as the trajectory of illnesses. A review on how the parents deal with the loss after it occurs will be discussed as well as the various issues the parent faces. The impact on the parent after the child’s loss will also feature. There will be a summary of the findings, then a section that will give the implications of the research and its importance to the field of psychology, and finally an as well as focusing on the bigger picture of loss with older parents who have lost their children.

Caring for patients at the end of life is a challenging task that requires not only the consideration of the individual as a whole but also an understanding of the

According to Allen et al. (2012), “millions of people with chronic illnesses endure unrelieved pain, uncontrolled physical symptoms and unresolved psychosocial or spiritual problems.” This issue occurs because palliative care is often considered a form of end-of-life care. Palliative care is a treatment that can be used for patients who suffer from chronic illnesses and diseases while receiving curative treatment. (Horowitz, Grambling & Quill, 2014) purposely states the misconceptions of palliative care and advocated for seriously ill patients that education must bring under control the misconceptions. Some patients do not receive appropriate symptom management because the palliative care treatment needed is often confused with end-of-life care. However, end-of-life care attempts to relieve pain and suffering when a disease is no longer responsive to curative treatment. Pain and suffering could ultimately be controlled or even eliminated through the proper utilization of palliative care. Patients who are not referred to palliative care in a timely manner is more likely to have poor quality of life, uncontrolled symptom management and increased amounts of visits to the emergency room during the disease process. Patients with life limiting illnesses bear the burden of increased discomfort and increased suffering. Nurses experience clinical practice issues and difficulties in the clinical setting during the delivery of comfort and symptom management. These issues

To begin, there are many aspects of helping patients that are dealing with grief, loss, death, or dying. Whether the patient has lost someone that was close to them or they themselves are dying, the situation is quite fragile. Some important aspects that may help when handling these patients are knowledge about the different cultures and their beliefs and traditions, different factors that have an impact on grief, and how to communicate with people living on the edge of life. These are all extremely important matters when it comes to such a sensitive situation.

For many people, the process of dying is a prolonged, painful, and emotionally devastating experience. Dying often leaves an individual filled with fear, confusion, and feelings of loneliness and isolation. Fortunately, there are palliative care options that seek to mitigate not only the physical pains and symptoms of death, but also actively work to address the emotional turmoil countless people experience as they begin to descend towards death. On the other hand, far too many Americans still die in intensive-care-units and emergency rooms, where doctors aggressively work to save the lives of all patients, without regarding the actual status or well-being of the person’s life before them. Dying in a hospital room is not peaceful; it is often

“What has changed is our way of coping and dealing with death and dying and our dying patients.”(Kubler-Ross 109) In “On the Fear of Death” by Elisabeth Kubler-Ross, she discusses the changes that have happened over the past few decades. The author believes that these changes are responsible for the increased fear of death, the rising number of emotional problems, and the greater need for understanding of and coping with the problems of death and dying. The author says, “The fact that the children are allowed to stay at home where a fatality has stricken and are in included in the talk, discussion, and fears give them the feeling that hey are not alone in the grief and give them the comfort of shared responsibility and shared mourning.” (Kubler-Ross 110) She believes that allowing the children to stay and be involved in the grieving stage prepares them gradually and

It is important to remember that care of the patient does not end when the patient dies. After the death there is still work to be done in the form of comforting the bereaved family members. It has been reported that some

This paper explores the emotional differences that people in the health care profession experience when it comes to the death of a patient. It defines the bereavement role, the four tasks of mourning, disenfranchised grief, compassion fatigue and how ambiguity and a lack of social acceptance can lead to decreased quality of patient care. In conclusion, the author offers an opinion of how to better manage the grieving and mourning process of care providers from an industry-wide standpoint.

Dr. Ira Byock’s latest book, The Best Care Possible: A Physician’s Quest to transform Care Through the End of Life, is a remarkable book written from a personal perspective as one of the foremost palliative-care physicians in the country. Dr. Byock shares stories of his experience with patients in his clinical experience to illustrate how end-of-life care affects each person. He explains what palliative care really is and how to make humane choices in a world obsessed with conquering death. Byock presents an agenda for end-of-life care that stresses compassion, dignity, and each patient being viewed as a unique case with the opportunity to partake in shared decisions amongst a team of professionals and family members. Dr. Byock is an advocate of dying well in a society marked by a fear of death; his highly personal account provides thought-provoking vignettes of how people struggle to make the right decisions in the winter of their lives. Byock urges society to embrace the reality of death and transform the medical community into an environment that will allow patients to live the last of their days in comfort with dignity and peace. This book is a vitally important piece of literature for everyone to devour with fervor. Everyone needs to understand the inevitability of death and the environment end-of-life care can present in what will be the final moments of life.

Palliative care is a relatively new concept. Palliative care programs have become more numerous and better utilized since 2000 and continue to grow. It is now accepted that the palliative care model is appropriate for patients with life-limiting illnesses. Chan et al. (2013) stated that the ultimate goal of palliative care is to relieve suffering and to maximize the quality of life for dying patients and their families, regardless of the stage of illness or the need for other medical treatments (p. 133). As life-expectancy increases, there is a growing need for these services. People are living longer with chronic diseases and palliative care services can provide an extra layer of support to patients and their families. Evidence has shown that 13% - 36% of hospital inpatients qualify for palliative care services (Robinson, Gott, & Ingleton, 2014).

Healthcare professionals tend to shy away from having families present because they believe that the process may be considered offensive, there would be added pressure and stress on employees, there would be distractions and interferences with care, and that family members would not be mentally prepared causing coping issues post-resuscitation (Duran, Oman, Abel, Moziel, & Szymanski, 2007). It is important for healthcare professionals to know their beliefs and learn the benefits of family presence during the resuscitation process to be able to practice client/family centred care. According to Holzhauser, Finucane, and De Vries (2006) presences during resuscitation made coping easier after an unsuccessful event, provided a sense of control as families are included in the decision making process, and fostered the development of meaning full relationships. Holzhauser et

The loss of a loved one is a very crucial time where an individual can experience depression, somatic symptoms, grief, and sadness. What will be discussed throughout this paper is what the bereavement role is and its duration, as well as the definition of disenfranchised grief and who experiences this type of grief. I will also touch upon the four tasks of mourning and how each bereaved individual must accomplish all four tasks before mourning can be finalized. Lastly, with each of these topics, nursing implications will be outlined on how to care for bereaved individuals and their families.

I have always believed that health cannot be optimized through the treatment of disease only. Rather, health should be addressed on a biological, physical, psychological, social, and spiritual continuum. Palliative care addresses an often-overlooked aspect of the patient experience, which is symptom management of their chronic illnesses. Health care professionals tend to treat acute episodes of

3. Palliative Care Council of South Australia. (1996). Good palliative care project: final report. Retrieved September 4, 2002, from Palliative Care Council of So