A final, different type of medical condition of which autonomy is an important topic is in mobility diseases such as Parkinson’s disease, as one example. Like Alzheimer’s, Parkinson’s is a degenerative disease that gets progressively worse as times go on (Parkinson Society Canada). It differs from Alzheimer’s, however, because its landmark symptoms are physical, not cognitive (Parkinson Society Canada). The most common symptoms of Parkinson’s disease are tremors, slowness/stiffness, balance problems and muscle rigidity (Parkinson Society Canada). It is also not fatal in and of itself (Parkinson Society Canada). Some patients—though not all—also suffer from non-motor symptoms such as depression, delusions and dementia (Parkinson Society Canada). …show more content…
The Danish Council of Ethics views the prioritization of autonomy as extreme and says that it is impossible to diminish the extent at which people are influenced by others (Alzheimer Europe, 2009). Similarly, the Finnish National Advisory Board on Health Care Ethics has stated that medicine is too complex to determine one single aspect of it as the most important (Alzheimer Europe, 2009). They also state that there are other principles that are of equal importance, including self-determination, the principles of the common good, community and equity (Alzheimer Europe, 2009). The value in these principles is quite apparent, and should certainly be considered. It is undeniable that a support system is helpful, if not necessary, to a person recovering from or living with a serious illness. This is consistent with a statement made earlier in this paper, the idea that it can be of great value for family/other loved ones and caretakers to be well-informed and knowledgeable about their loved one’s medical conditions if the patient so choses. It can be helpful to many people to be able to draw on opinions and past experiences of others when making important decisions on treatment methods and other important issues. However, it is hard to justify that this means it is acceptable to interfere in someone’s treatment. The ramifications of this could be …show more content…
Mill was actually an advocate for autonomy—thus being consistent with the argument of this paper—but his views had an important stipulation: the patient must not be causing harm to others in carrying out their wishes (Alzheimer Europe, 2009). He also stated that it was not unethical to interfere in a decision that was made without knowing all of the facts (Alzheimer Europe, 2009). An example of Mill’s Principle in action is forcefully containing a person with a contagious and deadly disease (Pecorino, 2002). This action would prevent others from contracting the illness but would severely restrict the freedom of the patient. This is reminiscent of the recent forced quarantines of those who were in close contact with Ebola patients during the recent outbreak of the disease. The quarantines were in effect because the people in question may have contracted the disease and may be in the incubation period (British Broadcasting Corporation, 2014). Under Mill’s Harm Principle, a forced quarantine on these people would be the right thing to do, as it would restrict the quarantined person’s autonomy but ultimately reduce the risk of them causing harm to others by passing on the disease. However, these forced quarantines were met with a great deal of speculation and backlash, including by the UN Secretary General Ban Ki-moon and an American judge who presided in the case of an
Autonomy includes three primary conditions: (1) liberty (independence from controlling influences), (2) agency (capacity for intentional action), and (3) understanding (through informed consent) (Beauchamp & Childress, 2009, p. 100). According to Beauchamp & Childress (2009) to respect autonomous agents, one must acknowledge their right to hold views, to make choices, and to take actions based on their personal values and beliefs (p. 103). Respect for autonomy implies thaturges caregivers to respect theassist a patient in achieving? Heed? the autonomous choices of their patients. From there, patients can act intentionally and with full understanding when evaluating medical treatment modalities. Autonomy also includes a set of rules, one of which requires that providers honor patient decision-making rights by providing the truth, also known as veracity (Beauchamp & Childress, 2009, p. 103). In this case, several facets of the principle of respecting autonomy, specifically veracity, informed
In the United States all patients are granted certain rights and if denied these rights they can take legal action. Every individual has the right to participate in all aspects of their care (Pozgar, 2012). Patients must be informed by their care team of the risks, benefits, and alternatives to treatment. After that it is up to the patient to determine whether or not they want to forego treatment or not. “Failure to respect this right can result in legal action for assault and battery” (Pozgar,
Over the last several decades there have been dramatic developments in Western medical ethics. The form of bioethics now widely adhered to in the United States is 'principlism', an approach originally advocated by the American philosophers Beauchamp and Childress. Principlism argues that in medico-ethical dilemmas, including end of life healthcare situations, ethical principles must be applied (Kessel & Meran, 1998). The following ethical principles are related to advance directives: respect for autonomy (self-determination), non-maleficence (not inflicting harm), beneficence (doing good), and justice (some concept of fairness) (Kessel & Meran, 1998). The leading principle, Autonomy, is the fundamental standard that safeguards a patient the liberty to choose and to govern what happens to their person, in so far as those choices do not harm others. “Autonomy implies that people have an inherent right to make treatment decisions and should be active participants in their own care.” (Kessel
To begin with the person is the centre of the plan, to be consulted with and their views must always come first: It should include all aspects of their care, and every professional should work together to provide it. (Leathard 2000) Autonomy refers to an individuals’ ability to come to his or her own decisions and requires nurses to respect the choices patients make concerning their own lives (Hendrick 2000).However Gillon Argues that the principle respect for autonomy may need some restriction, otherwise we may be morally obliged to respect an autonomous course of action with unthinkable consequences.( Gillon 1986) Every human being has an intrinsic value, they all have a right to well being, to self-fulfilment and to as much control over their own lives as is consistent with others (British Association of Social Workers 2002).Professional Judgement and patient preference cannot be suspended if practice is to be safe and effective rather than routine(DOH 2005) Alex had to attend this session as it was within his Timetable, how could it have been effective?, he was unhappy and
Therefore, it is up to healthcare providers to be supportive of patient’s decisions and help them cope with whatever the outcome may be. According to the ANA Code of Ethics, “nurses establish relationships of trust and provide nursing services according to need setting aside any bias or prejudice” (http://nursingworld.org/DocumentVault/Ethics_1/Code-of-Ethics-for-Nurses.html). This means my role as a nurse is not to influence the individual’s decision, but to allow them to decide for themselves and respect their wishes. This quote from the Code of Ethics also supports the concepts of fidelity, autonomy, and beneficence. Fidelity is being loyal and supportive of our patients, while autonomy allows the patient to make their own decisions without fear of judgement from their nurse (http://www.nursingworld.org/MainMenuCategories/EthicsStandards/Resources/Ethics-Definitions.pdf). Beneficence is what I believe to be of the utmost importance in ethical situations, because if my patients cannot believe that I will be their advocate and treat them with compassion, then they cannot trust me and no relationship can be
In any medical setting, it is essential to respect the patients’ autonomy. Any competent patient has the right to make decisions regarding his or her health. However, the principles of beneficence and non-maleficence also need to be considered. Respecting the patients’ autonomy does not entail a one-size-fits-all approach to truth-telling. Unfettered truthfulness or “truth-dumping” may not be in the patient’s best interest. Moreover, some cultures do not subscribe to the individualistic principle of patient autonomy and family members are significantly involved in the patient’s decision-making.
In medical ethics, there is a strong value placed upon patient autonomy and the role it ought to have within the healthcare profession. Autonomy can be defined as a means of self-governance and self-determination when making decisions about oneself (Varelius, 2006). An autonomous person believes they are in the best position to determine what is good or bad for themselves (Summer, 1996). However, the interpretation of autonomy by the patient is a controversial topic within philosophy and the health care field. Advocates for absolute patient autonomy believe it has value "over and beyond its instrumental value in enhancing patients wellbeing" (Varelius, 2006). This means that a patient believes that their autonomy is the most important
For instance, a young adult patient diagnosed with paraplegia, they have need to a good rehabilitation program then they can live independently as soon as possible. So, doctors and nurses provide proper care to patient by changing their position, pads, giving them proper diet and medication on time. But these are depending on the doctors and nurses. Young adult patient only follow these rules because patient suffered from paraplegia and adult patient cannot do anything without doctors advice. So, doctors and other staff members need to give proper care to the patient, then patient can come back their better condition and do something independently because the patient really want to be independent as soon as he can. In addition, paternalistic health care professionals or other staff members believing that some patients are not able to make own decision because of illness or lack of knowledge, make decisions for patients with the perception that they are guarding the well-being of patients. At the last step we can say that (paternalism)doctors and nurses making their own decision for the care of the paraplegic patient in this case but it is really beneficial for that adult patient.
Parkinson’s Disease is known as one of the most common progressive and chronic neurodegenerative disorders. It belongs to a group of conditions known as movement disorders. Parkinson disease is a component of hypokinetic disorder because it causes a decreased in bodily movement. It affects people who are usually over the age of 50. It can impair an individual motor as well as non-motor function. Some of the primary symptoms of Parkinson’s disease are characterized by tremors or trembling in hands, legs and arms. In early symptoms the tremor can be unilateral, appearing in one side of body but progression in the disease can cause it to spread to both sides; rigidity or a resistant to movement affects most people with Parkinson’s disease,
Autonomy refers to an individual’s right to self- rule or governs one’s self (Beauchamp Childress, 2009). Autonomy is refer to the individual right to make his or her own decision regarding their health care needs. This is respected in the health care setting.
Nursing is an all encompassing profession in which practitioners are not only proficient in technical medical functionality, they also have the obligation to remain compassionate and respectful of patients and as such are expected to adhere to pre established codes of ethics. Of these ethics, autonomy is of extreme importance as it offers patients a sense of personal authority during a time where they may feel as if their lives, or at the very least their health, is no longer under their control. Autonomy in the context of nursing allocates the patient and often their family with the final word on the course of treatment. The concept of patient autonomy is a highly variable subject in all fields of health care. It is a universal concept that varies widely in its meaning and interpretation. Autonomy in its simplest form can be defined as a state of independence or self governing (Atkins, 2006). Patient autonomy can also be defined as the ability to make once own decisions, based on one’s sound judgment. It is defined by the American Nurses Association (ANA, 2011) as the "agreement to respect another 's right to self determine a course of action; support of independent decision making." This seemingly straight forward ethical concept is rife with difficulties when one considers potential disagreements that may arise even when informed consent is provided, particularly among children or vulnerable people. Relevant research and
Parkinson’s disease is generally an idiopathic degenerative disease that’s prevalence and incidence increase with age. People with Parkinson’s disease are thought to have receptive and expressive language changes as well as voice and articulation difficulties. People with Parkinson’s disease also have swallowing dysfunctions that can cause drooling. Along with speech deficits, people with Parkinson’s disease generally have motor difficulties such as: limb movements and facial expressions. “Approximately 70-80% of people with Parkinson’s experience changes in their voice and approximately 55% experience noticeable changes in their articulation (Miller, 2012).” According to Miller (2012), a decrease in voice loudness becomes prevalent in Parkinson’s
In 5000 B.C., an Indian medical practice documented what they referred to as Kampatava, a type of disease that effected the movement and mannerisms of the human body. Little did they know, Kampatava would be the first known documentation of what in modern times is referred to as Parkinson’s Disease. Kampatava was logged in the Indian Arurveda, a medical journal, with a very generic list of signs and symptoms. This journal just barely touched base on what Parkinson’s Disease really is (http://www.everydayhealth.com/parkinsons-disease/history-of-parkinsons-disease.aspx).
This ethical scenario presents an 86 year old female with numerous health issues and chronic illnesses. Mrs. Boswell’s advancing Alzheimer’s disease makes it extremely difficult to initiate dialysis, leading her physician to conclude a poor quality of life. The ethical dilemma portrayed in this case is between nonmaleficence and autonomy. Health care workers should focus on promoting the patient’s overall wellbeing and weigh the benefits and risks of the course of action, while also considering what the family declares they want done. Since the patient is deemed unable to make decisions, the goal is to collaborate with family, assess patient quality of life, address prognosis, and establish realistic care goals.
Autonomy applies to the profession of nursing because the patient should always be allowed to make decisions regarding their care while being treated with respect and dignity; however, autonomy can serve as a limiting agent when the patient decides to refuse care that would be of benefit to them. Autonomy is a sensitive issue because it allows the patient to choose to die and all health care can do from that point is allow the patient to do so comfortably. With healthcare always being one step ahead, it allows a surrogate to serve as a voice piece for that patient when they are unable to make decisions. However, that surrogate can end up making decisions they think is best for the patient ignoring the patients’ will. The responsibility of the nurse and interdisciplinary team is to inform and educate the patient and patient’s surrogate on all aspects of care to include medical diagnosis, treatment, and care plan so that the patient and