Personal Narrative: How Leukemia Changed My Life

Sometimes I ask myself how I overcame my disease. Many people with lupus experience fatigue, memory loss, loss of appetite. Usually younger African, white, and Asian men and woman develop that disease in their teens. It all started that night when I was laying in my mom bed. At that time I felt like it was my time to leave this earth. When I turn 15 years old I saw so many changes. . I experience so many symptoms while I was in my second semester. All the symptoms that I experience were hallucinations, fever, nausea, and nose bleeds. At that time I seen myself getting really sick. I caught strep throat and it was hard to focus in school because I missed so many days.

Leukemia is “a malignant progressive disease in which the bone marrow and other blood-forming organs produce increased numbers of immature or abnormal leukocytes. These suppress the production of normal blood cells, leading to anemia and other symptoms.”An estimated combined total of 162,020 people in the U.S. are expected to be diagnosed with leukemia, 60,192 people die, 14% live in remission and my father is just another statistic. When I was nine years old, my father was diagnosed with Leukemia, an illness that at the time I did not understand. This left my mother raising two kids and working two jobs to make ends meet. Throughout this time of never ending hospital visits, I experienced the kindness and care provided to us by my father’s doctors - something that until this day I will never forget.

This past summer, I, along with my mother and father, travelled to St. Jude Children’s Research Hospital in Memphis, Tennessee. My mom had been invited to participate in the St. Jude For Life Study because when she was around six to eight years old, she had a form of leukemia called Acute Lymphoblastic Leukemia. This particular study is to help all present and future St. Jude patients and help to research for a cure. While there, I saw first-hand how cancer can affect a family. You can just see all of the stress, the worry, the exhaustion, the tiredness, the fear, and the tears on the families’ and the patients’ faces.

“We can’t go out tonight. I already told you that.” Cali told her best friend Caleb now very annoyed.

No one thinks that it will happen to them. No one thinks that one day it might be them walking into the doctor’s office, only to hear those three horrifying words – “You have cancer.” To say that cancer changed my life is an enormous understatement. Cancer took me on an insane roller coaster for two years.. turning, twisting, jerking. I never thought it would happen to me. I heard those three lethal words, but they were not spoken to me. My father was diagnosed with pancreatic cancer in December of 2014.

16 years old. That’s how old I was when my whole life changed. Not only did I lose a man that raised me and taught me to be the best version of myself, but I was also diagnosed with Wegener’s Granulomatosis with Polyangiitis. The beginning of my junior year was, to put it lightly, hectic. The first day I missed went by, my head pounding as I sat in a hospital room. My grandfather laid in the hospital bed and I caught word of the diagnosis. Stage Four Pancreatic Cancer. That word, “cancer”, spoke volumes within my buzzing mind. I laid my head on my Papa’s bed next to him and began to cry, keeping my face hidden because I didn’t want him to see me cry. He ran his fingers through my hair and sang a song I’d heard my whole life, “You Are My Sunshine”;

Erica wasn't eating for days and running a fever; so my mom took her to Austin Brackenridge Hospital. The doctor had told my mother that she had just made it in time; if she wouldn't have taken her in, she could have died. That morning, the doctor started to take her blood work, X-rays, and other tests. That's when they found out she had leukemia type A. She was only 5 years old. My mother and sister had to stay in the hospital for months because she was so ill that she couldn't go home.

When I was twelve years old, a close family friend of mine named Evan (who was my age) was diagnosed with brain cancer. At that age, I hadn’t been introduced to death and nor did I really know or understand what cancer was or that it was possible for people so young to die. Before his death at age thirteen, my sister and I would spend a lot of time with him playing videogames, watching movies and swimming in his backyard pool. We watched the process of Evan losing his hair, having cancer treatments, doing physiotherapy and becoming very weak and fragile and rejecting treatments.

It was October 22, 2017….first period of freshman year my best friend Casey got a call to the office. She came back in the room and looked distraught there were tears rolling down her face. Casey never had this look on her face and she never

Have you ever feel like luck is not by your side.? That’s how I felt for many years. The environment in which I was raised shaped me into a resilient person and I’m thankful for that because I survived both cancer and my parents’ divorce.

In September of my junior year of high school, my mom told me for the third time that she had cancer. She had spent the entire summer coughing. It was a bad summer cold or maybe a stubborn case of bronchitis. No one could seem to figure out what was causing the cough. A late summer bronchoscopy finally solved the case. It was cancer. Calmly, she reassured me on that September day, “It’s an early stage cancer. They say it’s very treatable. We’ve been down this road before.” The next nine months was a road that no one in my family had traveled. Frequent doctor visits, chemotherapy treatments, and hospitalizations became our new normal. We painstakingly watched as each round of chemo treatments devastated and weakened her. Through everything, my mom was resilient, tough, and determined to live.

After a while of sitting in my grandparents living room mindlessly playing with my toys I decided to get up. I walked towards the commotion going on in the small hallway connecting the living room to the kitchen. The gathering of people consisted of my mom, dad, grandpa, and grandma. Curious about what was going on I walked over to the group. I reached my mom and looked up to see that her eyes were bloodshot, as if she had been crying. I looked over to my dad and his face, like everyone else's, was grim. During this time I kept hearing one repeating word, cancer. I started to listen more closely to the conversation going on around me because even at the age of seven I knew that cancer was bad news. I listened intently and heard my mom explain how she had colon cancer.

When I turned 11-years-old my whole childhood began to change my life went from being perfect to everything but perfect. One day I came home to hear the news my father, my best friend; my hero was diagnosed with stage 3 colon cancer. Not knowing the struggle my family was about to take on I just began to cry. I had a million things running through my head what’s going to happen? Will everything be okay? Why him? What is going to happen? With all these things rushing through my head all I could do was cry not knowing this was least worse to come.

I cannot describe what I felt when my mom told me she had cancer. I was sad, I was scared; I did not even know if I felt anything. My mom, however, stayed positive and hopeful while I stayed quiet and seemingly apathetic. There was an obvious ironic contrast between the emotional state of me and the woman who actually had cancer.

Jack woke up one morning not feeling well. He felt very weak and could not get out of bed. His mother decided to take him to the doctors. The doctors took many tests to figure out what was making him feel that way. After about an hour or two the doctors got the results back from a blood test. Results that would change Jack’s childhood for the worse. Jack has been diagnosed with Leukemia, a blood cancer. Of course, Jack was not sure what that meant but, his parents became worried beyond belief with the long road ahead of them. Scientists and researchers were all involved in the discovery of Leukemia cancer, which increased knowledge of this cancer, decreased deaths and discovered treatments, and started charity groups to fund research.