Please help find a CURE Spencer is 2 years old and was just diagnosed with a rare, progressive, terminal, genetic disease, Sanfilippo – MPS III. Children with Sanfilippo do not show signs of the disorder at birth. With the progression of the disease the children, degenerate, loosing the ability to speak, walk, eat and eventually loose their lives. Families of Sanfilippo children have come together raising money for research and to start clinical trials. Without the parents doing fundraisers there wouldn't be any clinical trials because the disease is so rare the drug companies haven't wanted to invest any money yet. There is a gene therapy clinical trial going on now that is showing promising hope. Three children were treated
What if a philanthropist made a contribution to the nation by donating money for the construction of a renowned hospital, but his or her child cannot go to that hospital? What if the parent’s cells changed science, which led to cures and other developments, but his or her child cannot even afford to have health insurance? The question of whether or not the Lacks should be compensated raises the fundamental question of ethics: as seen in Skloot’s sympathetic portrayal of the family, does the argument of pathos constitute what is right or wrong? Both of the aforementioned situations may seem as if reparation is needed at first glance; however, a deeper insight into the situation provides a more realistic answer.
During the 1950s, a cell line called HeLa was cultivated from a poor, African mother of five who died of cervical cancer named Henrietta Lacks. It was then mass produced for research and generated billions of dollars. Many medicinal treatments and breakthroughs, such as polio, were developed from this cell line helping billions of people to this day. Unfortunately, the woman who ultimately gave her life never received a single penny, nor her family. The Lacks family lived without insurance and still to this day has received no compensation. Given that companies and organizations, such as Microbiological Associates and the National Institutes of Health, have benefited tremendously from the cell line, they should compensate the Lacks family for it is the
Therefore, should people be given compensation if there are any medical discoveries and should people even be informed that their tissue was used in the research for the medical discovery (NWABR 2011)? The problem with giving compensation to Lack’s family is that it brings up the issues that if they are compensated than millions of other people will also need to be compensated for their usage of their cells in
But we've got to make him understand that a lot of things can get wrong with the experiment.” I don't think it's fair, even if they get permission from a family member, to involve those with special needs into something so serious and would be difficult for someone with his mindset to fully comprehend. Another thing I would like
There was a seventeen-year-old boy named Joe Beene that severely injured himself during a football practice in November. Because of Joe’s injury, Joe’s family had a very difficult moral dilemma that involved the right to conduct stem-cell research to help with medical conditions. The injury that Joe sustained was a broken neck that left Joe paralyzed from the Chest down hindering Joe from any activities including taking care of himself. I couldn’t even start to understand the pain and suffering that Joe was going through because of the injury Joe sustained. Joe was only seventeen and would no longer be able to participate in any of the activities that children conduct as well as participate in football that Joe loved. Joe was a star
St. Jude is a leading children's hospital pioneering research and treatments for kids with cancer and other life-threatening diseases. Research efforts are directed at understanding the molecular, genetic and chemical bases of catastrophic diseases in children; identifying cures for such diseases; and promoting their prevention. Research is focused specifically on cancers, some acquired and inherited immunodeficiencies, sickle cell disease, infectious diseases and genetic disorders. More than a half-century ago, entertainer Danny Thomas envisioned a hospital that would treat children regardless of race, color, creed or their family's ability to pay. A facility where research would shine light into the darkness. Thomas’ vision became a reality when St. Jude Children's
San Luis Obispo, also known as SLO and the “Happiest City in America”, is a small quiet California town tucked away on the west coast. It’s positive ambience and happy attitude is what brings many people to this self-assured city. Located in the middle of wine country, a halfway distance between Los Angeles and San Francisco, this town is one of the main places to visit in San Luis Obispo County.
An official for the American Civil Liberties Union of Southern California mocked elderly white people at a city council meeting last week, telling them they had “five years left.”
Are you looking to move to San Jacinto, California? This is everything you need to know to settle in smoothly and make it a good place for you.
When news of the of the rebuilding of the wall reached Sanballat he began to mock the Jews for what they were doing. Making fun of their strength, their work, and their goals, Sanballat was relentlessly indignant towards the them. Tobiah the Ammonite even exclaimed that a fox would be able to tear down the walls they wear building.
Attention Getter- In an article over St. Jude Children’s Hospital (“About St.” 2015), Pediatric Cancer Genome Project wrote about how St. Jude helps more than 5,400 children every year. St. Jude is also one of the only pediatric hospitals where the families who go there for treatment never pay for the health care costs. The hospital is financially supported by donors, organizations and corporations. (“About St.” 2015)
If I was hired or was recommend to handle Juan’s case I would first begin by establishing trust between me and Juan. It is crucial for me to establish a healthy relationship with Juan’s parents two. By establishing a healthy relationship between me and Juan and his parents lays down the foundation I would need to successfully assign treatment. I can never underestimate a child’s ability to comprehend what I am saying. Children and kids are intelligent young beings especially due to how fast technology continues to grow. To restate myself, I would first make sure Juan and his parents were comfortable with my being. I believe by treating people like humans and not like representations of money helps create the sense of trust I am looking for. According to Marjorie Adams, “Organizations with great customer or client relationships are able to grow their businesses without gimmicks, fee cuts or special treatment. You have to be good at what you do, of course, but having a truly successful business is based on one simple concept: trust.” (Adams, 2014).
Gene Therapy has been tested a Jacob sheep model, a rare sheep breed. It found the biochemical mechanism in the sheep was identical to humans and a mutation that resulted in an exon deletion via slipicing. Gene Therapy is still being researched by The Tay-Sachs Gene Therapy (TSGT) Consortium, so it is not officially being used. Since, 1980, 20 people have received Caravan gene therapy. This is a possible option for my child since, of most of the parents said their child benefited from the therapy but is a little risky since not many tests have been
Two towns. Both located on the coast of California. Both are small, bounded by the ocean. Both hold around 40,000 citizens. One town, Martinez, is my hometown. The other, San Luis Obispo, is four hours south of it and home to my favorite college. On the outside, they seem pretty similar, but after experiencing the culture and lifestyle of each, one could not disagree with me when I say they are extremely different. The most notable differences are the coasts of each one, their downtown areas, and the activities provided by each city.
One of the huge concerns people have it that the genes that are being placed into the body, may not interact well with the existing genes and cause problems. The gene that was placed into the body to do, may also do another one due to the fact that it is in a new environment. The cause of a gene doing something that it isn’t supposed to do could be very deadly to the patient. Another negative to this project is that it costs a lot. The cost for this is around $20,000. So for some people that may be affordable by for others not at