Should Lacks Family Be Paid For Hela Cells?

“The Immortal Life of Henrietta Lacks” is the story of Hela cells and the women and family behind them. HeLa cells are the cells that have helped scientists all around the world discover cures and vaccines that have saved thousands of lives. But before they did all those things, they were inside a woman, named Henrietta Lacks, and were taken from her without her knowledge. Her family would not know about her cells until years after her death and millions of dollars in revenue gained from the HeLa cells. At the time doctors did what was considered common practice but did they cross a line? Or were the amazing scientific achievements enough to excuse the violation of personal privacy? Despite good intentions doctors should never have taken Henrietta’s cells without her consent, and furthermore her family deserves compensation for the work those cells have helped accomplish, and the sometimes horrible circumstances they have had to deal with because of the cells.

These are issues because the cells of Henrietta lack were used to create “immortal” cells that provided a steady supply of cells for medical research and allowed to find cure for multiple diseases, and guaranteed the medical industry millions of dollar when her family his struggling to pay for healthcare. Moreover, researchers at Johns

In the example with the HeLa cells, a great debate was raised when the book The Immortal Life of Henrietta Lacks was published. The debate centered around the lack of information of where the cells came from, who should have known about the original harvesting, and the lack of compensation for Henrietta’s family once the cells started generating income. Also discussed was the tendency of the medical community to

The Lacks family has been honored at the Smithsonian Institution and the National Foundation for Cancer Research. The HeLa case has raised questions about the legality of using genetic materials without permission. Neither Lacks nor her family granted permission to harvest her cells, which were then cloned and sold. The Lacks family has had limited success in gaining control of the HeLa strain. In August 2013, an agreement between the family and the National Institutes of Health granted the family acknowledgement in scientific papers and some oversight of the Lacks genome.

The public health committee made these vaccines and treatments aware to the public, and there were many articles and stories out about them. These responses were successful in improving the health of the nation, and the advances in medicine we have today would not be possible without it. On the contrary, they were not successful in improving the health of Henrietta or her family. The Lacks family still cannot afford the vaccines or treatments that Henrietta’s cells have made possible today. Their family was taken advantage of because they were poor and illiterate African American family. Their family has had many medical problems that the HeLa cells could have cured; yet they cannot receive any because they cannot afford

Many people would assume that, because of HeLa’s impact on society, the Lacks family is probably very wealthy and well informed about HeLa cells; unfortunately, that is not the case. Not only did the Lacks feel taken advantage of by the medical community, but it wasn’t until an article by Howard Jones in December 1971 that Henrietta’s real name was finally revealed. That same article was used to inform Bobbette Lacks, Henrietta’s daughter-in-law, that the immortal cells she had been reading about in the paper were Henrietta’s. Bobbette was the first member of the Lacks family to learn about the fate of Henrietta’s cells and she immediately ran to the family yelling, “Part of your mother, it’s alive!”(181). The family felt misinformed, confused, betrayed and most of all, angry. In 1976, Mike Rodgers published an article in Rolling Stone that informed the Lacks family that people were buying and selling Henrietta’s cells. The family immediately accused Hopkins of withholding money from them. Lawrence, Henrietta’s eldest son, was quoted saying, “Hopkins say they gave them cells away, but they made millions! It’s not fair! She’s the most important person in the world and her family living in poverty. If our mother so important to

They thought the doctors were still trying to fix her,” (Skloot 65). Henrietta’s family is still being treated poorly today, being lied to and never got a profit from the cells. “’She’s the most important person in the world and her family living in poverty. If our mother so important to science, why can’t we get health insurance?’”(Skloot 168). In fact, Henrietta herself is one of the major reasons the debate on whether it should be legal to cell organs and cells is a debate today. “HeLa cells as the springboard to launch the first industrial-scale for-profit cell distribution center,” (Skloot 101). Although there are several arguments in the debate over selling body parts, three key arguments deal with the topics of money, helping others, and personal choice. Considering all of the topics, the selling of body parts for profit should be

The Immortal Life of Henrietta Lacks is a true story of a poor, Southern African-American tobacco farmer who died in 1951 at the very young age of 31 years old from cervical cancer. Little did she know that cells harvested from her tumor, which were obtained without her consent have lived on and on and became one of the most important tools in medicine today. Despite Henrietta’s story being full of legal and ethical issues, the story was one filled with success and anguish. Success for science as her cells served as advancement in medical research and development; yet was sorrowful for Henrietta and her family. This story occurred during a time of segregation in the United States, when Henrietta Lacks believed she

While performing the treatment Dr. Lawrence Wharton Jr. collected Henrietta’s normal and cancerous cell and sent them to George Gey, who was the researcher collecting any type of cells that the hospital would provide for his research, this was all done without Henrietta’s knowledge. In the 1950’s segregating still existed, and “Many scientist believed that since patients were treated for free in the public wards, it was fair to use them as research subjects as a form of payment.” (Pg. 30) Henrietta had a painful death in 1951, due to all the tumors that had spread throughout her body, leaving her 5 children without a

Bobette met a research scientist who said he had been working with cells from a woman named Henrietta Lacks, Bobette’s reaction can be seen here, “But Bobette kept shaking her head saying, ‘how come nobody told her family part of her was still alive?’ ‘I wish I knew’ he said. Like most researchers, he’d never thought about whether the woman behind the HeLa cells had given them voluntarily’” (Skloot 180). The research scientist she talked to, along with countless other scientists, had never thought about the woman behind the cells and this is part of the reason nobody ever told the family about the cells. Bobette finally found out about the HeLa cells after twenty-five years of no information and a revolution in medicine caused by her late mother-in-law. But it did not get better for the Lacks family after discovering Henrietta’s cell line. Every time one of the Lackses asked questions about Henrietta’s cells, the professionals would never take time to answer their questions, to help them understand what had happened at Johns Hopkins with the cells, or to explain to the Lackses what Henrietta’s cells accomplished. The doctors did not care about the patients and their families, but more about what was in it for them. The doctors did not look at the situation ethically by not telling the family about the cells. They also violated privacy values, which are now rights. They

In this semester’s book club, I have enjoyed the book called The Immortal Life of Henrietta Lacks. This book describes a true and famous cell line in the medical research field, that is the first immortal cell line in the world, HeLa cells. Not until I finished reading this fantastic book, I know that the HeLa cells were taken from a cervical cancer patient, Henrietta Lacks, without letting her know the truth about using her cells in research, even though she died. What more surprising to me was that her family lived a hard life without health insurance while the researchers make many profits from developing HeLa cells, they were never informed about their family member’s devotion to the scientific research.

In 1951, Henrietta Lacks was diagnosed with cervical cancer at John Hopkins Hospital. Without any consent, Henrietta’s doctors took tissue samples from her cervix and attempted to grow them and keep them alive. These cells, known as HeLa cells, began to grow at an unbelievable rate; The HeLa cell became vital for the development of vaccines and other scientific research. However because of Henrietta’s race and economic standpoint, Henrietta Lacks and the rest of the Lacks family was exploited by doctors. The exploitation of the family allowed the doctors and researchers to benefit scientifically and monetarily.

When the family expressed concerns about privacy, the scientists removed the sequence from the Internet. Hudson and other NIH leaders then met with the Lacks family. Together, the family and the NIH came to an agreement. Researchers can use the HeLa genome by applying to the NIH for access. A group of scientists and Lacks family members review the applications. From now on, when a scientist publish a research conducted using HeLa cells, it must include a thank you note to the Henrietta Lacks and her family for their everlasting gifts to science (Barone 2). Science has used HeLa cells in many ways. For example, HeLa cells are used to study HIV, the virus that causes AIDS, HeLa cells prove that HPV can cause cervical cancer, there is a vaccine that protects against some strains of the virus now, and HeLa cells are also tested to see how quickly they can absorb nanoparticles, which can suggest new methods for delivering drugs to cancer cells. It’s crazy that Henrietta is technically alive after being dead for 60+ years. Her cancerous cells continue to thrive and multiple till this day, around the world. Her cells have help further the medical field, such as find vaccines and doing further studies for HPV and HIV (Barone 3-4). I’m so happy that Henrietta’s family and Henrietta get the acknowledgement they deserve, but still very disappointed that

As an American, we are asked whether if in a car accident or inevitable death, our organs can be harvested and donated to people in need. This takes away the question of whether someone in your family should be compensated for their donation. The Lacks family, once they discovered the amount of money circulating due to the HeLa drug, believed they had a legal right to it because it was made up of their own DNA. But, if you look at is as if Henrietta had put a donor sticker on her driver’s license, no family member, that I know of, has ever asked for compensation on an organ that was donated after a serious accident. The Lacks family if they had decided to refuse the ability to study and sell the HeLa drugs could have set back scientific discoveries years with many casualties that were saved because of the medicine’s developed. Yes, the family was poor and oppressed but that was not necessarily going to change with the money given to them by the hospital. The money, of course, would have contributed them to providing them a better life, but the system is main offender, not the hospital. Many people of color faced the same challenges the Lacks family did because of the injustices present in our government and

The medical community did not explain to or inform the Lacks family of the HeLa cells; along the way the scientists altogether forgot that Henrietta and her family were not abstractions but actual people. The family felt that this was unethical; they felt their mother was robbed and taken advantage of. Despite the spread of HeLa cells and the whirlwind of new research that followed, there were no recent news or stories about “the birth of the amazing HeLa cell line” (Skloot 58). In the beginning, when Gey had kept the origin of the cells- or Henrietta - a secret, no one knew where the cells had came from and no one cared to ask.