Support Caregivers Of Hospice Patients By Promoting And Improving Problem With Coping

This author’s personal perceptions concerning patients facing a lingering terminal illness, have been shaped by over 20 years of critical care nursing experience. Facing death and illness on a daily basis requires self-examination and a high degree of comfort with one’s own mortality, limits and values. Constant exposure to the fragility of life forces respect for the whole person and the people who love them. A general approach to patients who are actively dying is to allow them to define what they want and need during this time. The nurse’s role

Communication is the foundation of interdisciplinary patient care for those working with hospice and palliative care populations (Wittenberg-Lyles, Oliver, Demiris, Petty, & Day, 2008). Shared communication between the nurse, patient, and caregiver is fundamental in decreasing caregiver stress and improving both the bereavement process experienced by the family as well as the symptom management issues experienced by the patient (Ellington, Reblin, Clayton, Berry, & Mooney, 2012). Two types of shared communication methods often found in hospice include face-to-face verbal and non-verbal communication.

Death is inevitable. It is one of the only certainties in life. Regardless, people are often uncomfortable discussing death. Nyatanga (2016) posits that the idea of no longer existing increases anxiety and emotional distress in relation to one’s mortality. Because of the difficulty in level of care for end-of-life patients, the patient and the family often need professional assistance for physical and emotional care. Many family caregivers are not professionally trained in medicine, and this is where hospice comes into play. Hospice aims to meet the holistic needs of both the patient and the patient’s family through treatment plans, education, and advocacy. There is a duality of care to the treatment provided by hospice staff in that they do not attempt to separate the patient’s care from the family’s care. Leming and Dickinson (2011) support that hospice, unlike other clinical fields, focuses on the patient and the family together instead of seeing the patient independent of the family. Many times in hospitals, the medical team focuses solely on the goal of returning the patient back to health in order for them to return to their normal lives. They do not take into account the psychological and spiritual components of the patient’s journey and the journey that the family must take as well. For treatment of the patient, Leming and Dickinson agree that hospice does not attempt to cure patients, and instead concentrates solely

Hospice patients often receive palliative care to help them cope with the stress, pain, and anxiety that comes with hospice care. Galfin, Watkins, and Harlow (2011) explored the need to train palliative care nurses how to provide not just physical care, but also psychological care. The authors reference previous studies that addressed similar training programs, but point out that many lack an explanation of what the palliative care entails, or statistical evidence to show if guided self-help improved patient’s psychological distress.

According to Allen et al. (2012), “millions of people with chronic illnesses endure unrelieved pain, uncontrolled physical symptoms and unresolved psychosocial or spiritual problems.” This issue occurs because palliative care is often considered a form of end-of-life care. Palliative care is a treatment that can be used for patients who suffer from chronic illnesses and diseases while receiving curative treatment. (Horowitz, Grambling & Quill, 2014) purposely states the misconceptions of palliative care and advocated for seriously ill patients that education must bring under control the misconceptions. Some patients do not receive appropriate symptom management because the palliative care treatment needed is often confused with end-of-life care. However, end-of-life care attempts to relieve pain and suffering when a disease is no longer responsive to curative treatment. Pain and suffering could ultimately be controlled or even eliminated through the proper utilization of palliative care. Patients who are not referred to palliative care in a timely manner is more likely to have poor quality of life, uncontrolled symptom management and increased amounts of visits to the emergency room during the disease process. Patients with life limiting illnesses bear the burden of increased discomfort and increased suffering. Nurses experience clinical practice issues and difficulties in the clinical setting during the delivery of comfort and symptom management. These issues

In recent years, Hospice care have risen to popularity and is being widely used among many terminally – ill patients and their families. This is evident in a report from the National Hospice and Palliative Care Organization, “In 2014, an estimated 1.6million – 1.7 million patients received services from Hospice” (NHPCO, 2015). It is seen that many people uses Hospice care which means that many deaths are also under the care of a Hospice program, therefore, patients and families satisfaction is a crucial factor in assessing the quality of Hospice care and how to make improvement for future services. Thus, I decided to conduct a research on patient and/or caregivers satisfaction that received care from hospice programs.

Nurses are prone to deal with death, whether they would prefer it or not. Although, there is an increase of medical advances to slow the progression of death, it is inevitable that patients will die. When a patient dies, nurses must deal with the grief and emotions that encompasses death. Due to the nature of how often nurses deal with death, it leads to an increase awareness of how they will someday face their own death. The increase in emotions and grief leads to an overwhelming increase in stress for nurses. Continuous increase in stress can lead to burn out in nurses. Therefore, nurses must learn effective coping methods of death to reduce any devastating emotions and maintain professionalism.

The caregiver works along side the health care team and has an important role in improving the elder cancer patient's health and QOL (Haley, 2003). Caregivers and cancer patients need support from healthcare professionals who understand the social outlook of living with cancer (Haley, 2003). Social workers are an integral part of care provided for cancer patients and their caregivers. Social workers perform many tasks like psychosocial interventions which include, coping with the diseases and issues with the family relationships, social interventions, such as legal support and housing issues, economic interventions, such as, pension benefits issues and social security, outpatient follow-up care, home care, assisted living,

Dying due to an incurable illness can be devastating With responsibility of caretaking falling chiefly on the patient’s family. While dealing with the normal every day activities that families encounter, becoming a primary caregiver to the terminally ill is an emotional as well as financial burden. The ill person usually lives in the house of a family member, which forces the family to witness the person dying every day. Having to watch a person suffer in your own home is depressing to even the strongest of people and knowing there is nothing that can be done to stop their pain makes things that much worse. Studies have shown that people who receive a terminal illness diagnosis become depressed and develop anxiety. Because of the mood disorders that can

You have made excellent points. I do not believe that health care professionals neglect to treat patients in palliative care in the correct settings. The care one receives is based on what type of locations they are in. Hospitals and hospice centers often have employees with higher education levels and an increased passion for their job. I believe that health care providers want to ensure that one is comfortable at the end of life. I have visited Alive Hospice here in Nashville and was able to see the the great amount of care they provided to their patients. I have attached a link to their website below. I am curious to know your opinion on why you think one would not receive adequate care at the end-of-life phase.

Hospice’s main focus is on the patients and their needs. As shown on www.nhpco.org, the website for the National Hospice and Palliative Care Organization, their vision for patients and families is one where individuals and families facing serious illness, death, and grief will experience the best that humankind can offer (National Hospice and Palliative Care Organization, 1). With this in mind, those who are involved with Hospice work to provide patients with relief from their symptoms and try to lift the weight off of their shoulders, also known as the Palliative Care part of Hospice. Hospice care involves a team-oriented approach, where members of the organization will work together to ensure the the patient, and their family as well, receive compassionate care (National Hospice and Palliative Care Organization, 1). This includes physical care, such as pain management, emotional care, such as relieving stress, and spiritual care. Emotional and spiritual

Fegg et al. and Demiris et al. were both able to prove their method of intervention with informal caregivers of hospice patients was effective. However, both studies proved to have limitations and need follow up studies in the future to solidify their findings. It is difficult to compare the two studies statistically due to the small sample size of Demiris et al.’s study. While on average the participants who were given the PSI seemed to improve in both QOL and anxiety, the sample size was too small to make the findings statistically significant. Whereas the EBT study had 160 participants, making their findings more statistically significant than the PSI study. Furthermore, the EBT study showed not only immediate improvements of QOL and

Quality of Life and Functioning for End of Life Care. HAT2 Community Health Nursing. Western Governors University.

In relation to the purpose of this study, the driving force behind the research are three questions. What are nurses experience following patient’s death? What are their actions and coping strategies following patient death? Would better learning opportunities and supportive practice environments be provided once there is an understanding of nurses’ grief and coping process, if yes, was it beneficial. The researchers proceeded with a broad question which allowed the focus to be sharpened and delineated later in the

Coping skills used by the palliative care clinicians are engaging in healthy behavior and hobbies, and seeking emotional support from friends and family to help create an emotional balance between patient needs, managing family dynamics, and personal