Symptoms Of Huntington 's Disease

856 Words Mar 7th, 2016 4 Pages
Huntington’s disease is a genetic disease that slowly deteriorates the brain cells. This has a negative impact on both the everyday physical, and cognitive activities of the individual. They begin to lose their fine motor skills, as well as their speaking, processing skills, and emotional control.
Once diagnosed, Huntington’s is a never-ending downward spiral as it is incurable. With Huntington’s you have some good days, and you have some bad days, but each one that passes is another step closer to the inevitable. This is why I learned to treasure every moment I had with my grandma because I knew that each time she walked out my door, could be the last time I saw her.
My grandma lived about four hours away from me my entire life, so we were close enough to visit every so often. Since we lived so close, I was able to observe her everyday living habits, as well as her caretaker’s habits so that I could subsequently fulfill a caretaking role when she came to visit. Huntington’s does limit the functional capabilities of the person, so supervisional care is required nearly 24 hours of the day. The majority of the time this caretaking role fell upon by grandpa, and my aunt. My Aunt Pam was my grandmother’s best friend before she developed the disease, and remained a major part of her life after her diagnosis. While my grandfather was at work all day, she would care for my grandma, and then she and my grandpa shared responsibilities at night.
As a kid I loved being a “little…
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