By 2030, the number of people who are 65 and older with dementia is expected to be 65.7 million and about 60% of people with dementia will be diagnosed with Alzheimer’s disease (AD) (Edwards, 2015; Pankong, Pothiban, Sucamvang, & Khampolsiri, 2018). AD is an uncurable, progressive brain disease that can affect someone’s memory and ability to make decisions. (Edwards, 2015). Due to the progression of the disease, clients with AD or dementia rely on caregivers to help with everyday tasks, with about 85% of clients receiving care from caregivers that are family members (DiZazzo-Miller, Winston, Winkler, & Donovan, 2017). Occupational therapists (OTs) can help clients, no matter the diagnosis, because, within the guidelines set by the American …show more content…
However, questions have been raised whether healthcare services, like occupational therapy, are effective enough to improve the quality of life (QoL) of a client who has AD or dementia. While QoL can be subjective, as one’s QoL can be perceived differently between a client with AD or dementia and his or her caregiver, it comes down to what the person values in life (Gitlin, Hodgson, Piersol, Hess, & Hauck, 2014). Acknowledging a person’s values and maintaining one’s QoL is a common treatment goal for people with dementia, which is where occupational therapists (OTs) can help preserve what the person values as his or her QoL. Occupational therapy interventions addressing social and emotional well-being improves the QoL of the clients with AD and their …show more content…
Caregivers are a vital part of the care team for clients with AD because as disease causes a continuous decline in the clients physical and cognitive ability, the clients with AD require more care and assistance (Edwards, 2015). Caregiver burden is the emotionally and physically taxing experience of caring for a person with a disease, like AD, on the caregiver, by looking at aspects of the care process such as how long it takes for the caregiver to assist the client with completing activities of daily living. Several studies addressed caregiver burden by looking at how interventions, intended to lessen caregiver burden, helped reduce caregiver burden for caregivers of clients with AD. For example, in one RCT study by DiZazzo-Miller et al. (2017) the intervention called the Family Caregiver Training Program (FCTP) was used to educate caregivers on activities of daily living in hopes of lessening caregiver burden. In another RCT study by Gitlin et al. (2018), the intervention called Tailored Activity Program (TAP-VA) was used with veterans with dementia and their caregivers by tailoring the home-based activities to what the client and caregiver enjoyed to hopefully lessen the emotional burden for both the client and caregiver. In both RCT studies, the researchers found that the
Nearly 135 million people worldwide will be impacted by dementia by 2050 (Robinson, Tang, Taylor,. 2015). Dementia is not a disease, it is an overall term that describes a wide range of symptoms associated with the decline in memory and thinking skills. Dementia is a progressive illness that results in the loss of one’s sense of self (Burns, Byrne, Ballard, Holmes, 2002). The two most common forms of dementia are Alzheimer’s disease and Vascular dementia. Dementia is progressive and people with dementia experience complications with short-term memory, keeping track of personal items, paying bills, taking care of themselves and daily tasks (Haigh, Mytton, 2016). Due to the rising number of individuals developing dementia, it is causing major challenges in the healthcare systems and society (Angermeter, Luck, Then, Riedel-Heller, 2016). Utilizing psychotropic medications are often ineffective or harmful to the individual, therefore, many patients decide to utilize sensory therapy as a form of treatment instead (Livingston, Kelly olmes, et al., 2014). Caregivers of individuals with dementia can also experience health consequences related to caregiving at the end of life. Spousal caregivers are 40.5% higher odds of experiencing frailty as a result of caregiving (Carr, Dassel, 2017). Dementia does not only affect the individual, it affects those around them, society, and the healthcare system.
According to Kim, Chang, Rose, & Kim (2011), care-giver burden has been defined as a multidimensional response to the negative appraisal and perceived stress resulting from the taking care of an ill individual (p. 846). More easily stated a care-giver is a person who assists another individual with one or more of their daily activities of living. A person who finds it necessary to care for a loved one suffering from dementia often finds the task daunting if not polarizing. The role of caregiver often times has a negative effect on the caregiver. These can include feelings of depression, isolation, fear and anger as well as the feelings of constant responsibility and social isolation (Kim et al., 2011).
Caregivers play a crucial role in the care of dementia patients. Providing care for dementia patients results in stress related health impacts to the caregiver. The caregivers go through a journey with the dementia patient and need a strong support system. The best approach to dementia care is for health care providers to provide information to and monitor the caregiver, in addition to the dementia patient, encourage the caregiver to take care of themselves, to seek support, and to work as a team to provide the best care for the dementia patient.
The goals the National Social Advocacy Association for Alzheimer’s Patients is to collaborate with long term healthcare facilities in establishing an innovative, comprehensive social advocacy, intervention, and advance treatment programs in healthcare facilities serving or providing Alzheimer’s patients. One that will help stimulate the “Central Nervous System and Peripheral Nervous Systems sensory” nerves which will increase the cognitive and mobility functions in Alzheimer’s Patients Marieb, (2006). In addtiont to reducing caregiver’s burnouts, eliminate Alzheimer’s patients injuries due to neglect, increase caregiver’s social awareness of Alzheimer’s disease and its risks facts,
Alzheimer is a disease that has and continues to affect the elderly cognitively and as a result decline in their daily functioning. This slow moving death causes the elderly to go through a transition that sometimes can lead to unintentional self injuries. Not only has this disease affected the the individual, but has extended to their family members who has to learn new methods of assisting their loved ones as well as how to cope as a caretaker. On a personal level, I have friends whom grandparents suffer from AD and I’ve noticed that it changes the dynamic of the family and the individual learning new ways to function. It was interesting to learn that in the 80’s, AD was the fourth leading cause of death in the United States, but this gave
According to the Healthy People 2020 objectives, dementia can negatively impact a person's ability to perform their daily tasks without the help and supervision of a qualified caregiver. Based on these objectives, the health program proposal includes:
Enabling caregivers to continue to provide care for their loved one while maintaining their own health is so very important. Caregivers that focus just on their loved one can lead them down an unhealthy road themselves. A caregiver taking advantage of the many tools that are available to offer support can decrease their chance of secondary trauma. The programs offered are endless; Meals on Wheels, National Alzheimer’s Call Center, Caregiver Support Groups, and Respite Care to name a few. Such services can make an incredible difference, but one needs to know how to access
On February 7, 2011 I attended the Alzheimer’s support group held at St. Roberts Adult Daycare Center in St. Charles, Missouri. Tina Joyner facilitated this group of nine caregivers and three students. There were two groups conducted simultaneously; one for the caregivers, the other for the individual who had been diagnosed with Alzheimer’s. The
Alzheimer’s disease is the most common form of progressive dementia currently affecting 5.3 million Americans. Of the 5.3 million, 5.1 million people are the elderly population with two-thirds of those affected being women. There is no treatment available to cure dementia but measures can be taken to sustain the quality of life. Dementia not only affects the patients directly, but also family members and caregivers as well. Family members deal with patient’s memory loss, changes in personality and also have to take care of the ill patients financially. According to WHO, the cost of dementia in 2010 worldwide was estimated to be $604 billion dollars. Apart from the economic pressure, family members also deal with the physical and emotional pressures that come with dementia.
Ultimately the goal of this research is to evaluate what interventions work to help caregivers of dementia patients cope with the daily issues of caring for a loved one. Both of these articles yielded enough evidence about several alternative interventions. It is of utmost importance to choose the appropriate design for research study. If an inappropriate model is used all questions related to the research may not be answered.
It is hypothesized that COPE would have the potential to improve outcomes for patients with dementia and their caregivers, related to health concerns, while maintaining cost effectiveness. The program would involve ten in-home visits with an Occupational Therapist (OT) and one in-home, plus one telephone contact (conversation) between the primary caregiver and an advanced practice nurse. The program would last approximately four months followed by questionnaire style interviews and rating forms as well as functional assessments of the patients. Because both functional disability and physical and emotional strain from caregivers predict higher nursing home admissions, the researchers suggest that the COPE program would defer or at least delay nursing home placement of dementia patients given added support and training for caregivers in the home environment. Per the 2016 article, this specific experiment has not been completed with the intended population as of yet, though the pilot study was hopeful. Researchers encourage the continued proposal to be followed through with hopes that functional interventions for managing patients with dementia and their caregivers stress will become an evidence based practice to be applied to the growing population of the cognitively impaired.
I highly value the biopsychosocial model as a guideline for treatment within occupation-based practice, and I have found that patient-centered care embodies the all-inclusive philosophy of this model. Consequently, I was able to ignite a passion for patient-centered care within my work as a resident aide for elders with Alzheimer’s Disease at Covenant Village of the Great lakes. This was an exceptional experience in which I had the opportunity to examine how this disease impacts both psychological and behavioral functioning; nonetheless, I was able to facilitate skill development and independence for residents through the use of purposeful activity. For instance, I assisted residents with memory games in order to preserve their cognitive skills,
The older adult population in the United States has steadily increased thanks to technology and medical advances. While this definitely is an undeniable achievement, it also creates some challenges that society was not as prevalent to face before. Now that people are living longer it’s also means that often times family members are becoming caregivers to their loved ones during their so called golden years. Not only may it be difficult to care for a loved one, but it also becomes even more burdensome when their loved has a disability. In fact “dementia is one of the major causes of disability and dependency among older people worldwide.” (2016). Fortunately there are adult day centers that serve people with dementia and provide services that can benefit them. However many times caregivers are forgotten about and aren’t provided services that can also benefit them as well. While it does take a bit of pressure off of the caregivers while their loved ones are at the day center, it does not eliminate all the other effects. Many people may not be aware that there are detrimental effects that a caregiver may experience as a result of caring for someone with dementia.
Out of the rapidly inclining population in the world, there are people who develop dementia every 66 seconds(“2016 Alzheimer’s Disease”). Being such a common disease in the elderly, there are 47.5 million people in the world with this disease(“2016 Alzheimer’s Disease”). Once families start to realize that their parents and grandparents have developed this, they start to wonder if they are able to live on their own. Within a few months, a decision is made whether if it is best for them to be put into a nursing home. Most often, those with dementia do happen to end up in nursing homes. Many wonder if being put into a nursing home will actually cause their dementia and their ability to live on their own to worsen. With the effects of activities, this could change. Activities help slow the deterioration of the brain(Smith). The activities and exercises performed by nursing homes to help improve the overall cognitive development in dementia patients. Nursing homes should induct purposeful daily activities to improve cognitive, social, and psychological development in dementia care
Alzheimer’s disease affects 1 out of every 8 people in the United States. It is a long and debilitating disease that affects every aspect of a person’s life from the way they preform daily tasks, to the physical and mental abilities that are diminishing. Along with the lifestyle changes that Alzheimer’s disease presents, it also affects one’s psychological perspective as well their view on what they can offer their family and society. There are some ways to maintain a level of independence with a disease of this magnitude but there are also factors in lifestyle choices that can make it worse. Alzheimer cannot be cured, it cannot be slowed, but there are ways to keep the effected person at a certain level of comfort, independence and safety