Hi Dr. Lori, on newly diagnosed pt's with Cystic fibrosis (CF) one would gear them to NIH (National Institute of Health), Mayo clinic, located in Arizona or Minnesota, were they can be part of treatment groups or pilots for medications. There are so many advances in the treatment of CF that there is an abundance of resources out there. Resources can be reached from the care managers or through joining a family group of individuals with CF. My friend, Ms. C, stated that her two sons who are now 19 and 22 years old. They have no hospitalizations in over 5 years. Statistics are numbers on pages of people we don't know, doing research for a disease. These young men would look forward to their weekly infusions of high doses of vitamins and glutathione when they were young because it made them feel better. …show more content…
There is mention of a "Meyer's cocktail," ("Health integration Center," 2016), it is an alternative medicine that has been used and found beneficial by the physicians that prescribe it. Glutathione, "as an antioxidant, it neutralizes free radicals and helps maintain Vitamin C and E in reduced (active) state." ("Health integration Center," 2016). Glutathione is beneficial with dealing with toxins in the body. Like with any chronic disease process there is the need to address the emotional aspect of how it affects everyone differently, support groups and therapy should also be referred and
Health Care Integrator (HCI) met with Alana at her case address to assess and coordinates B2H services for her immediate needs. Alana has been diagnosis with Post Traumatic Stress Disorder and Attention Deficit Hyperactivity Disorder. Currently, Alana receives Skill Building (SB) and Special Needs Community Advocacy (SNCAS). HCI inquired how is it going with assigned Waiver Service Provider (WSP), Jessica Reyes. HCI inquired about Alana’s current living situation. HCI inquired about how she is doing in school. HCI provided Alana’s with several pullups for her son. HCI inquired about how she is doing at work. HCI informed Alana to make a list of task she wants to accomplish for this week. HCI inquired if Alana had any issues that she wanted
P., Bousona Garcia, C., & Diaz Martin, J. J. (2008). Treatment compliance with children and adults with cystic fibrosis. Journal of Cystic Fibrosis, 7(5), 359–357.
There are many treatments for cystic fibrosis. First treatment the patient can get is air way clearance. Air way clearance help loosen and get rid of the thick mucus that can build up in the lungs. The second treatment they can use is the pancreatic enzyme supplement. These treatment capsules helps improves the absorption of vital nutrients. These supplements are taken with every meal and most
Nearly 1 in every 30 Americans are a carrier of the recessive gene that leads to CF (About Cystic Fibrosis, n.d.). Although CF is a life-threatening condition, through the advancement of treatments and care, there has been a steady increase in life expectancy and improvement in the quality of life. The current mean age of survival is now 40. Although that does not seem very high, sixty years ago, a child diagnosed with CF did not survive childhood (About Cystic Fibrosis, n.d.). CF is a complex disease, where the types and severity of symptoms can differ widely from person to person. Symptoms may include fatigue, salty-tasting skin, persistent cough with phlegm, wheezing and shortness of breath, lung infections, and poor growth and weight loss (Cystic Fibrosis Symptoms, Causes & Risk Factors, 2018). Many different factors, such as the age of diagnosis, can affect an individual's health and the course of the
Cystic fibrosis (CF) is an inherited autosomal recessive disorder that affects the lungs and digestive system most often. In the United States some 30,000 children and adults have CF. There are approximately 1,000 new cases of cystic fibrosis diagnosed each year in the US with 70% of patients diagnosed with CF by the age of two, 40% of patients with CF are 18 or older. In the 1950's most children with CF did not survive to attend elementary school, but in 2006 the median age of survival was 37 years (Cystic Fibrosis Foundation, 2007).
Cystic Fibrosis (CF) also knows as (mucoviscidosis) is a single-gene disorders. This disorder is best described as an autosomal recessive of the exocrine glands. The disorder itself can be categorized as either pus- forming or hindering airflow. The responsible gene for this pulmonary disorder has been discovered to the be on the long part of the arm of chromosome 7 (Copstead & Banasik, 2013). Major signs and symptoms of CF will be associated with the gastrointestinal and respiratory system. We are able to diagnose CF though laboratory testing such as arterial blood measurements. Treatments for CF tend to be comprehensive including specialty physicians, nutritionists, physical and respiratory therapists and genetic counselors. Medicare
In 1955, the Cystic Fibrosis Foundation was formed by mothers who were determined to find a cure for their children who were diagnosed with the disease but were given a small life expectancy. As the years went on life expectancy for people diagnosed with CF increased. In 1965, a four-year-old boy was listening to
Vertically integrated health care system that I have chosen is the Veterans Administration (VA) it's accountable for a large patient population for military veterans. As stated, The Veterans Health Administration is America’s largest integrated health care system with over 1,700 sites of care, serving 8.76 million Veterans each year (VA.GOV). The services that's provided to veterans is health care, rehabilitation, employment, education, home loan guaranties, and life insurance coverage. VA control costs by buying in bulk and control costs by engaging in a deep, single-source relationship with each patient. The Assistant Secretary for Management oversees all resource requirements, development and implementation of agency performance measures,
This genetic disease is found to affect over 30,000 people with additions of nearly 1,000 people diagnosed every year. The prevalence of individuals with cystic fibrosis in the U.S. has decreased and major medical developments have helped to increase the life expectancy of those with the disease now as compared to 10 years ago (MacKenzie 237). The average age of diagnosis is around 6-8 months, whereas roughly two thirds of patients are diagnosed within their first year of birth. Unlike some genetic conditions, cystic fibrosis is not sex linked and as a result, occurs equally as often in men as in women. The severity and variation of symptoms differs from one individual to the next. However, research has found that females with cystic fibrosis have a “shortened life expectancy relative to men” because they “become colonized with certain common CF pathogens earlier than men and show a decreased life expectancy” due to the early onset of respiratory infections (Harness-Brumley 1013). In addition, research suggests that there is a high rate of bone related diseases in co-occurrence with cystic fibrosis. It is found that “individuals with cystic fibrosis fail to demonstrate normal bone calcium accretion” due to insufficient intake and absorption of nutrients (Boyle 455). The multiple factors contributing to bone disease include malnutrition, vitamin and mineral malabsorption, recurrent infections, and lack of exercise” can lead to osteoporosis if left untreated (Boyle
Today, there is no cure for Cystic Fibrosis, but if the disease is found in an individual early enough, the patient can be recovered. About 85 to 90% of patients will have problems absorbing nutrients from their intestines. And because enzymes are lost when diagnosed, enzyme supplements are required to prevent bad nutrition and malnutrition. There are two main body parts that can be cared for the treatment of Cystic Fibrosis: The lungs and the chest. Lung problems can also be treated, but not cured. Antibiotics and other drugs may loosen the thick mucus in the lungs, but if it fails, a transplant lung may help to extend life. But about four hundred people die each year while waiting for a lung transplant. Also Chest physical therapy is a technique done by vigorous claps on the back and chest to loosen the thick mucus from the lungs. The average lifespan of an individual with CF is about thirty years.
Here are some other changes affecting CF patients: Crackles, non-productive or productive cough, physical changes to the chest cavity, cyanosis, and clubbing of the fingernails. Genetic testing should be done since cystic fibrosis is an inherited disorder. Those affected with cystic fibrosis have parents “who do not have cystic fibrosis but are heterozygotes or carriers of the disease. A heterozygote has 1 dominant allele and 1 recessive allele.” (Grossman & Grossman, 2005, p. 46) My co-worker and her spouse are heterozygotes, and they have a 50/50 chance of having a cystic fibrosis child, they were not lucky with the odds and both their sons are affected with cystic fibrosis. These
Cystic Fibrosis is a disease that affects the body in many ways throughout the patient's life. Newborns with Cystic Fibrosis may experience delayed growth, inability to gain weight, and salty-tasting skin ("Cystic," umm.edu 1). Older patients may be infertile, have recurring pancreatitis, and respiratory problems ("Cystic," umm.edu 2). Considering that these are just symptoms involving age, the full spectrum of ailments that afflict a patient with Cystic Fibrosis is far more taxing on a patient.
Imagine living a life in which before the age of one you start to feel sick, as if you have a deep chest cold that just cannot be kicked. However, a trip to the doctor informs you that this “deep chest cold” is no simple cold, but something so much more that will never fully subside. Furthermore, because of it, you are informed you are only expected to live until the age of thirty seven (National Institutes of Health, 2016, November). This is the life of a person with cystic fibrosis. Today I will discuss what cystic fibrosis (CF) is, its causes, signs and symptoms, and disease management. Next, I will discuss medical nutrition therapy of CF, including nutrition diagnoses and nutrition interventions, and lastly supply a one day meal plan for
Cystic fibrosis is an inherited disease that ultimately leads to death. It affects every racial group worldwide, but its prevalence varies from country to country. In those with cystic fibrosis, the lungs and digestive system are primarily affected by the disease. With the new developments in treatment and management, the 50 percent survival rate from the 1970’s has greatly improved, allowing patients to continue to live their lives longer than ever expected in the past. The new developments in prevention of exacerbations, therapy drugs and methods to preserve lung function have done great things to help patients extend their lives. Education is another important aspect of treating cystic fibrosis. For example, more the
Posttraumatic stress disorder is becoming an ever-growing topic off concern within the childhood and young adolescent community, this topic is brought up in multiple settings including school, child protective services, and the foster care system. PTSD in our youth can happen through numerous ways and does not always occur from physical or sexual abuse, it can occur through natural disasters or even community dysfunction however the effects from the trauma suffered can last a lifetime. “The most basic definition of Post-traumatic stress disorder (PTSD) is a psychiatric sequel to a stressful event or situation of an exceptionally threatening or catastrophic in nature.” (Kassam-Adams, & Winston, 2004, p.409). In the event that a client suffers