The Immortal Life Of Henrietta Lacks By Rebecca Skloot

“The Immortal Life of Henrietta Lacks” is the story of Hela cells and the women and family behind them. HeLa cells are the cells that have helped scientists all around the world discover cures and vaccines that have saved thousands of lives. But before they did all those things, they were inside a woman, named Henrietta Lacks, and were taken from her without her knowledge. Her family would not know about her cells until years after her death and millions of dollars in revenue gained from the HeLa cells. At the time doctors did what was considered common practice but did they cross a line? Or were the amazing scientific achievements enough to excuse the violation of personal privacy? Despite good intentions doctors should never have taken Henrietta’s cells without her consent, and furthermore her family deserves compensation for the work those cells have helped accomplish, and the sometimes horrible circumstances they have had to deal with because of the cells.

The main ethical issues in this case is that researches at Johns Hopkins Hospital used Henrietta’s cell in multiple researches and send her cells to other researchers around the world without her family’s consent. Moreover, the Lackes themselves were used in medical research without informed consent, and Henrietta’s medical records were release to journalists without her family knowing.

The story “The Immortal Life of Henrietta Lacks” that’s written by Rebecca Skloot. The author talks about a story happened in the 1950’s, and it’s effects still happening. The aspect that controls the story is power of privilege. In all places, in all times, power of privilege is specified for people who called elite. They get this power to control situations, but it does not mean they all deserve handling this power. This power created to control everything and improve or develop it. It is just considered under the actions that seem like what Skloot mentions in the story, but this power is related to all things in our life. Now, let’s go back to the story, and see the effects of that power under the wrong usage. At that period of time, the power of privilege was controlled by whites. The separation that was between blacks and whites, and the arrogance that some white people had encouraged them to insult black people. Dr. George Gey is the one of the doctors who used their power to do something no one at that time knew it’s consequences, which is taking the cells. On the other hand, Henrietta whose cells were stolen with out her permission. Finally, the results mostly affected Deborah which is Henrietta’s daughter.

In the example with the HeLa cells, a great debate was raised when the book The Immortal Life of Henrietta Lacks was published. The debate centered around the lack of information of where the cells came from, who should have known about the original harvesting, and the lack of compensation for Henrietta’s family once the cells started generating income. Also discussed was the tendency of the medical community to

The definition of power is a person or thing that possesses or exercises authority or influence. Power is gained by people over time, but it comes much easier to those born into a privilege, which is a right, immunity, or benefit enjoyed only by a person beyond the advantages of most. It is apparent that power and privilege go hand in hand. In the book The Immortal Life of Henrietta Lacks, Rebecca Skloot focuses on two stories: the development of the HeLa cells and the lives of Henrietta’s family members. While in the scientific world of HeLa cells, the power is held by the doctors such as George Gey and others because of their rank in society above common people. Being born into privilege was not a luxury the Lacks family enjoyed; the path to power for the Lacks was much more difficult.

Henrietta Lacks died in 1951 of cervical cancer, leaving behind a husband, five children and some cells taken from her without her permission. These cells continue to revolutionize the scientific field today and have played an integral role in some of the most important advances in medicine: cloning, chemotherapy, gene mapping, the polio vaccine and in vitro fertilization. The Immortal Life of Henrietta Lacks answers a lot of questions regarding the Lacks family, but also poses a number of questions regarding ethics, consent and how far society is willing to go to make medical advances.

Anything outside of our permission or control is considered an assault. Despite our beliefs and what should be, this was quite contrary with Henrietta Lacks. An article in The Scientist noted “The global rise in biobanks – currently a $1 billion industry that is expected to grow to $2.25 billion by 2015 – also introduces other ethical concerns, including patenting of biological materials, whether donors control what happens to their tissue, whether donors should be compensated, and the privacy issues dramatically highlighted by the online publication of the HeLa genome.” Enhancing public awareness is paramount around this topic along with engaging in the ethical complexities effectively, which in the end could build awareness, boost trust, and improve an understanding around the purpose of biobanks and how they operate. Henrietta Lacks case presented a beneficial context for analyzing the legal and ethical issues that may be raised when human tissues are being used in medical research.

Neither Lacks nor her family gave her physician permission to harvest the cells. At that same time, however, permission was neither required nor usually sought. (Washington, 1994) In the early 1970’s, the family of Henrietta Lacks began getting

Bobette met a research scientist who said he had been working with cells from a woman named Henrietta Lacks, Bobette’s reaction can be seen here, “But Bobette kept shaking her head saying, ‘how come nobody told her family part of her was still alive?’ ‘I wish I knew’ he said. Like most researchers, he’d never thought about whether the woman behind the HeLa cells had given them voluntarily’” (Skloot 180). The research scientist she talked to, along with countless other scientists, had never thought about the woman behind the cells and this is part of the reason nobody ever told the family about the cells. Bobette finally found out about the HeLa cells after twenty-five years of no information and a revolution in medicine caused by her late mother-in-law. But it did not get better for the Lacks family after discovering Henrietta’s cell line. Every time one of the Lackses asked questions about Henrietta’s cells, the professionals would never take time to answer their questions, to help them understand what had happened at Johns Hopkins with the cells, or to explain to the Lackses what Henrietta’s cells accomplished. The doctors did not care about the patients and their families, but more about what was in it for them. The doctors did not look at the situation ethically by not telling the family about the cells. They also violated privacy values, which are now rights. They

In this semester’s book club, I have enjoyed the book called The Immortal Life of Henrietta Lacks. This book describes a true and famous cell line in the medical research field, that is the first immortal cell line in the world, HeLa cells. Not until I finished reading this fantastic book, I know that the HeLa cells were taken from a cervical cancer patient, Henrietta Lacks, without letting her know the truth about using her cells in research, even though she died. What more surprising to me was that her family lived a hard life without health insurance while the researchers make many profits from developing HeLa cells, they were never informed about their family member’s devotion to the scientific research.

Racism wasn’t far from this case the doctor in Henrietta’s case figured that telling her what they were doing would only confuse her and her family even more so they just figure to not tell her or her family at all. This case started in 1951 and the research on the cells still goes on till the present.

The cells were kept alive long enough to allow the researchers to go in depth with studies and examinations. The ethical issue was, like stated before, that the Lacks family did not give physicians permission to take samples of her cells. But during that time permission was not required and that is why they were able to take the samples. In the court case of California v. Regents of UC in 1990 it was ruled that a person’s discarded tissue was not their property and could be used. The ethical concerns are still around today because recently researchers published their results and this affected the family. Things like lack of respect for the Lacks, just and even race and social class come into the conversation because of the use of her tissue without her consent.

The Immortal Life of Henrietta Lacks focuses on many issues that Henrietta and her family have faced over the years resulting from the discovery of HeLa cells. One such issue that was recurrently present was the ethical issue of informed consent, or the lack of it, in the Lacks’ case. In the beginning when Henrietta was first being treated with radium to kill her cancerous tumor, her primary doctor, Dr. TeLinde, took a sample of the tissue and sent it to Dr. Gey, head of tissue

“I think people are morally obligated to allow their bits and pieces to be used to advance knowledge to help others” (Korn). Different people have opposing opinions on the topic of whether or not patients or doctors own the body tissues after it’s been removed from the patient. Ownership is the act, state, or right of possessing something. Tissue ownership is different from ownership because once it leaves your body, you no longer own it. Contributing your tissues to the science world is superior because you can speed up medical advances, avoid litigation, and become a better individual by contributing to science and society.

Rebecca talks about whether or not people should have the rights to their own tissues. She points out two issues, consent and money. In the past there was no informed consent, so the doctors and researchers felt free to use tissues in whatever way they wished, with little concern for patients' rights. Nowadays there is a different system, and it's required by the law to ask for a patient's informed consent.mThe money issue is a question of whether doctors should be required to tell patients if their cells or tissues are going to be used for commercial research, and what rights those donors should have. Later on, “scientists sequenced Henrietta Lacks's genome and made it public, without asking the family's permission” which was just another way in which the family was violated and looked over (Silver). Apparently Henrietta didn't get her rights, and neither did her children. Any way we look at it, if the family had received any benefits from the cells, it