The Immortal Life of Henrietta Lacks Exposes Racial Division in America

Elie Wiesel has stated “We must not see any person as an abstraction. Instead, we must see in every person a universe with its own secrets, with its own treasures, with its own sources of anguish, and with some measure of triumph” (as cited in Skloot, 2010, p. 1). This paper will examine the many ways in which Henrietta Lacks, a relatively poor African woman whose cells were extracted from her without any consent, was viewed primarily as an abstraction rather than a person by the scientific community and the media; and the consequences that ensued as a result.

When the cells finally began growing in Gey’s lab it was seen as a huge advance in the world of science, seeing as no one had succeeded beforehand, this was a great accomplishment on his part. However, Henrietta was never told of this or how important her cells had become, she simply continued living without knowing that the cancerous cells inside her were continuing to grow despite receiving “treatment” from the doctors. Her only treatment was a small patch of radiation sewn directly into her cervix on the area where the tumor had appeared, after some tests showed that the tumor had disappeared she continued with her normal life of farming, raising her children, and enjoying life. Henrietta never complained about any side effects of the radiation, however, it eventually would make her infertile and cause her skin on her torso to turn black.

The social contract of nursing is important because it reflects the nursing's code of ethics, which is to provide care to all who are in need, regardless of their cultural, social, or economic standing. The social contract exists because we rely on a guideline to continue to provide ethical care that is within our scope of practice. Unfortunately, in Rebecca Skloot’s (2010) book, “The Immortal Life of Henrietta Lacks” there were many ethical violations throughout the whole process about the Henrietta Lacks’ cells (HeLa). The author reveals the story about the life of Henrietta Lacks, an African American woman who was diagnosed with a fast-growing cervical cancer at a young age. The cells retrieved from her cervical tumor became the first immortal cell that could survive in the lab and replicate continuously without dying. Without the consent of Henrietta Lacks and her family, these cells later became key components to the development of many groundbreaking inventions such as the polio vaccine and in vitro fertilization. Therefore, the purpose of this paper is to examine the social covenant of nursing in relation to the ethical issues behind the use of the HeLa cells without the patient’s and her family’s consent.

The non-fiction book The Immortal Life of Henrietta Lacks, written by Rebecca Skloot, details the happenings and life of Henrietta Lacks, an African American woman and tobacco farmer who became a medical miracle in the 1950’s. The book is written in an attempt to chronicle both the experiences and tribulations of Henrietta Lacks and her family, as well as the events that led to, and resulted from, research done on Henrietta Lacks’ cells. Henrietta was a very average African American woman in this period; she had only a seventh-grade level education, and followed traditional racial and gender roles by spending her time has a mother and caretaker, as well as working on farms throughout her life until the involvement of the US in World War II brought her and her husband, “Day” Lacks, comparatively better work opportunities in industrial steel mills. However, after her death in 1951 Henrietta became much more than average to doctors at John Hopkins when the discovered that cells extracted from her cancerous tissue continued to live and grow much longer than any other tissue samples. Further investigation and isolation of these thriving cells led to the creation of the first ever immortal human cell line in medical history. The incredible progress in medicine made possible by Henrietta Lack’s tissue cells were not without downfalls, though. The treatments and experiences received by Henrietta and the effects it had on her and her family demonstrate both racial and gender

Neither Lacks nor her family gave her physician permission to harvest the cells. At that same time, however, permission was neither required nor usually sought. (Washington, 1994) In the early 1970’s, the family of Henrietta Lacks began getting

Henrietta Lacks was hospitalized at a time when doctors often lied or withheld information when they felt it best (63). Often information

Although Henrietta lacks and John Moore have contributed a lot to the science community their stories has raised many ethical issues concerning the privacy and consent of a patient. Similar cases might not occur so often nowadays because we have established laws that protect a patient's privacy and acknowledges them before making any

The scientific community’s careless mistreatment of the Lacks family began with dehumanizing Henrietta’s cells in the very first lab. Generalizing people can especially be easy when one is working with their cells in a lab. The many scientists working on Henrietta’s cells must have found it easy to separate the cells from the person and reduce them to tools to aid them in the task at hand. This view may be harmless when it comes to the individual scientist, and the individual cell, but this view extended to the entire Lacks family and caused them much harm. “Meanwhile, Victor McKusick and Susan Hsu had just published the results of their research in

Henrietta Lacks died in 1951 of cervical cancer, leaving behind a husband, five children and some cells taken from her without her permission. These cells continue to revolutionize the scientific field today and have played an integral role in some of the most important advances in medicine: cloning, chemotherapy, gene mapping, the polio vaccine and in vitro fertilization. The Immortal Life of Henrietta Lacks answers a lot of questions regarding the Lacks family, but also poses a number of questions regarding ethics, consent and how far society is willing to go to make medical advances.

In a HIPAA-conscious society today, some of the most obvious and concerning examples of the objectification of Henrietta and her family are the inconceivable breaches of privacy. Deborah Lacks, Henrietta’s youngest daughter, originally chose to not request access to her mother’s medical records because “she was afraid of what she might find and how it might affect her” (Skloot 209). In 1985, however, Science 85 reporter Michael Gold published a book about Henrietta’s “Immortal Legacy” including extensive verbatim quotes from Henrietta’s medical records, including details about her previous medical history, diagnosis, pain, decline and death, and even autopsy (210). Skloot recounts Gold’s offenses, “No one in Henrietta’s family had ever seen those

In 1951 there was a young black lady who was named Henrietta Lacks. Henrietta Lacks was a tobacco farmer in Clover, Virginia. Her mother died giving birth and her father moved the family to Clover, where the children were distributed among some of the close relatives. In January of 1951 she went to John Hopkins hospital, which was the only place close to her that treated black patients at the time. Lacks described a “knot” in her stomach that ended up being cervical cancer. During her treatments two samples from her

Like previously stated, there has been a vast history of racial issues particularly in the medical field. These issues have led to minorities, especially African Americans, to not trust medical professionals and procedures. A study found in the Archives of Internal Medicine gives shocking results by stating that “African Americans were far less trusting than whites of the medical establishment and medical researchers in particular. African Americans were 79.2 percent more likely to believe that someone like them would be used as a guinea pig without his or her consent” (Clark 118). There are many cases in the past which would make a minority feel neglected and like a “guinea pig”. For instance, Henrietta Lacks, the main character of Rebecca Skloot’s book, was diagnosed with cervical cancer in 1951. Her doctors were shocked at the terrifying rate her tumor was growing (Skloot 117). Her cells were taken from her cervix and they were distributed world wide without her or her family’s consent. The distribution went on for years even after her death

The Immortal Life of Henrietta Lacks focuses on many issues that Henrietta and her family have faced over the years resulting from the discovery of HeLa cells. One such issue that was recurrently present was the ethical issue of informed consent, or the lack of it, in the Lacks’ case. In the beginning when Henrietta was first being treated with radium to kill her cancerous tumor, her primary doctor, Dr. TeLinde, took a sample of the tissue and sent it to Dr. Gey, head of tissue

Henrietta Lacks was a “mother of five who died of cervical cancer at only thirty-one years of age” (Gabbay). When she passed away the doctors at John Hopkins asked her husband,

While today’s “patients [have] one thing going for them that Henrietta didn't: They [are] alive. And the dead have no right to privacy-even if part of them is still alive,” (Skloot 211) history’s ethical debate regarding medical racism remains a social issue. When patients experience racism, they may be unable to defend themselves if they are incapacitated by medical professionals. Due to patient negligence and bias, the health care provider’s poor treatment breaks the trust of minorities. As shown in the Tuskegee Syphilis Study and treatment of Henrietta Lacks, doctors and researchers have failed to inform the participants correctly. Both occurrences highlight medical racism because of the historical maltreatment of minority groups. Now, many