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The Importance Of A Better Knowledge Base About Diversity Issues And End Of Life Decision Making

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The findings reviewed herein have made important contributions toward the development of a better knowledge base about diversity issues and end-of-life decision making. Although the small number of studies conducted and the methodological concerns evident in the research preclude making many definitive conclusions about how different racial or ethnic groups approach end-of-life decisions, the results to date suggest that the end of life is a distinct context that merits special study in research on diversity and aging, and in which both quantitative and qualitative methods have made promising initial advances. The fact that so few studies to date in this area have utilized representative samples, standardized and psychometrically sound measures, and included fine-grained distinctions about ethnic background is not surprising, given that the broader field of end-of-life research is in its relative infancy and requires greater research sophistication (George, 2002). An interesting comparison is with the literature on family caregiving, in which attention to the effects of race, ethnicity, and culture initially received relatively little attention but became increasingly common and sophisticated (Dilworth-Anderson et al., 2002). In our review, we found that 15 of the 33 studies identified had been published during the past 4 years, suggesting a surge of interest in this area. Another reason the findings to date are encouraging is that they suggest powerful effects

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