I. Introduction
A. The main concern is whether individuals have legal ownership of the cells that are extracted from their bodies and used for research. Should people who donated their cells be compensated for the findings based off them? To what extent do people have control and benefits from donating their cells to science? Who has the right to have access to other people’s cells and for what purposes will they be justified and legal?
B. Henrietta Lacks was the unwitting donor of the cells that found significant new information and treatment of cervical cancer. She did not have any knowledge that her cells were being preserved and used for research. And consequently, she was never compensated since she did not legally own her cells once
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Without cells from donors, there cannot be a data set to be experimented or analyzed. This stalls future medicine, and thus the possibility of helping society and lives.
2. Patients who donate their cells: they are giving their genetic information to others. Should they have the ability to stop the use of their cells when they see fit? Do they deserve compensation for any potential benefits?
B. Others directly involved
1. Insurance companies: Will the rights of patients and their genetic identities be covered? Will doctors have the protection of insurance companies instead as the right to collect information from useless flesh that came about from surgery?
2. Research institutions: They fund the operations and the profit from the research based off the cells collected for the investigations.
C. Indirectly involved
1. The families from people who donated their cells. Do they benefit from the actions of their relatives / ancestors? To what extent does this benefit end?
2. Future generations: What of issues of using other’s cells for fertilization purposes, genetic enhancements, and predetermining the characteristics of the next generation?
III. Consequences of various actions
A. Researchers and institutions have complete control over cells once extracted
1. Positive Aspects: Research and understanding of medicine, pharmacodynamics, pharmacokinetics, metabolism, and genetic markers can significantly advance.
2. Adverse / unexpected consequences:
In 1951, Henrietta Lacks went to John Hopkins Hospital because of pain and bleeding in her abdomen and was diagnosed with cervical cancer. During one of her radiation treatments, doctors took samples from Henrietta’s cervix without her knowledge to see if her cells would grow in culture and it did. Her cells were the first immortal cells to grow in culture. From there everything changed. Henrietta’s cells were used to create the polio vaccine, they went in space to what would happen to human cells in zero gravity, and many more. But as HeLa cells were bought, sold, and used for these scientific researches her family did not receive any money from it. Many people think that they should receive financial compensation but they should not.
Henrietta Lacks died never knowing the impact her life would have on the world of medicine. A poor, black woman living in Baltimore, Maryland in the 1950s, Henrietta was diagnosed with cervical cancer and died only nine short months after her diagnosis at the age of thirty-one. The mother of five children, Henrietta most likely died thinking her family would be her legacy. Little did she know her doctor at John Hopkins hospital, George Gey, had taken some of her cells before she died. With Henrietta’s cells, Dr. Gey was finally able to achieve a goal he had been working toward for decades – creating the first line of immortal cells (Freeman). These cells have been used for countless scientific research and have solidified Henrietta Lacks’ place
Henrietta Lacks was a poor, black woman who died of cervical cancer in the fifties. Her cells were taken from her during surgery, without her knowledge. However, back then there were no laws about informed consent and the mindset was entirely different. Researchers knew little about cells and how they function. Her immortal cells allowed researchers to have an ample amount of resources to be able to study cells and later on develop vaccines and treatments for many diseases. Even though her cells were cancerous, they still shared many basic characteristics of a normal cell, which allowed researchers to learn a lot about a cell’s basic function. Her story explains how medical research has developed and how health care has progressed over the past sixty years.
Cell larceny, theft by non-disclosure. Doctors, often without patient knowledge, use patient’s cells to advance scientific studies and make profit. Doctors accumulate enormous profit stealing cells. Cases such as Henrietta Lacks and John Moore highlight the injustices caused by intentional misuse of cells. In contrast, Ted Slavin’s case exemplifies the beneficial outcome that is achieved when a patient and doctor work together to achieve a common goal. Doctors should be required to notify and obtain permission to use patient samples for research other than its original purpose, and the patient or their family should have control over who uses the samples to ensure proper usage and benefits of all involved parties.
Before she died, a cancerous tumor was removed from her cervix (Freeman, 2016). While studying the samples collected from her biopsy, the first ever immortal cell line was discovered, which they also found to be the first cells to live outside of a human body (Biography, 2016). Her cells were labelled ‘HeLa’ cells, which derive from the first two letters of her first and last names, and were used to keep Henrietta anonymous (MedicineNet, 2016). These unique HeLa cells proved to be of immense value as it provided the field of medicine with a tool that led to the creation vaccines, cancer treatments and in vitro fertilisation among many other things (Dailey, 2017). Other than to diagnose her disease, Henrietta had never given consent for her cells to be used for further medical research. Her family was also never informed about the use of her cells until the early 1970s, neither were they compensated. Apparently “John Hopkins did not sell or profit from the discovery or distribution of HeLa cells” (McDaniels, 2014). Although this may be true, HeLa cells and their products have been sold all over the world, earning millions of dollars (NPR, 2010). This raised a number of ethical issues, as the Lacks family was extremely poor and couldn’t afford health insurance or substantial education. Henrietta’s son stated that “My mother would be so proud that her cells saves lives…but she’d be so horrified that Johns Hopkins profited while her family to this day has no rights” (McDaniels, 2017). This situation sparked debates on whether Henrietta and her family should have been informed and compensated or not, and generally what the rights an individual has on his or her genetic material (Kroll,
Henrietta Lacks died, not knowing that her cells would live forever; leading to a medical revolution and multimillion-dollar industry. Lacks was a black tobacco farmer from southern Virginia, who was diagnosed with cervical cancer at 30 years of age. However unbeknownst to the Lacks family, her medical struggles would lead to the breakthrough of several diseases. These cells formed what’s known today as the HeLa line and remains active today. A doctor at Johns Hopkins Hospital took a piece of her tumor and sold these cells to several scientists across the world without her consent. Although she passed away in 1951, Lacks cells continued to help, by developing the polio vaccine and were fundamental in cloning testable content. Lacks family
The Henrietta Lacks Foundation is a non-profit organization founded by Rebecca Skloot, author of The Immortal Life of Henrietta Lacks, who is donating a portion of her book’s proceeds to the Foundation. Henrietta was a poor black farmer whose cancer cells had damaging consequences for her family who today can’t afford access to the health care advances their mother’s cells helped make possible. The Foundation strives to provide financial assistance to needy individuals who have made important contributions to scientific research without personally benefiting from those contributions, particularly those used in research without their knowledge or consent. The Foundation gives those who
In the end, for Henrietta Lacks and her family, it was decided for them that they did not own the cells, regardless of the fact that Henrietta had no idea what was happening with her cells once they left her body. Authenticity is a huge issue in Henrietta’s case because she had no idea what was happening with her cells and that should have been presented to her. Fairness is an important consideration to be addressed, as is it fair that one person can profit off of another person’s cell, but the person’s whose cells they are would never be capable of doing anything with them. Lastly, harms versus benefits
The cells were kept alive long enough to allow the researchers to go in depth with studies and examinations. The ethical issue was, like stated before, that the Lacks family did not give physicians permission to take samples of her cells. But during that time permission was not required and that is why they were able to take the samples. In the court case of California v. Regents of UC in 1990 it was ruled that a person’s discarded tissue was not their property and could be used. The ethical concerns are still around today because recently researchers published their results and this affected the family. Things like lack of respect for the Lacks, just and even race and social class come into the conversation because of the use of her tissue without her consent.
First, Dr. Gey decided to take Henrietta Lacks’ (who had cervical cancer) cells without informing her and then sent them to be researched. Henrietta’s cells then became one of the biggest discoveries and
This begs the question of what is value. Today in America, the definition of "value" can be thought of as something that is of worth and importance, meaning that whoever possesses this value, will indirectly gain from it. So, if these "valuable" cells are used for tissue and organ regeneration, then the recipient is the possessor who will indirectly gain from it. In support of this concept, Gaymon Bennett, co-author of Stem Cell Research and the Claim of the Other in the Human Subject, mentioned:
Contrarily, supporters of embryonic stem cell research argue that such research should be pursued because the resultant treatments could have significant medical potential. In addition, leftover embryos could be given with permission and
The opponents of embryonic stem cells stick to the belief that destroying one human’s life to save and cure others is not worth it because it makes you wonder, where will the line be drawn? Can the killing and experimentation of homeless people, for example, be justified by the possibility of saving a few Alzheimer’s patients’ lives? Will the world allow the destruction of the elderly just to save the younger generation? The opponents of embryonic stem cells realize that if the world begins using embryonic stem cells to make everyone healthier, than there is no telling what the world is willing to sacrifice in order for them to survive and if the world does go down that path, who gets to decide who deserves to live or die? (“Using Embryos is Immoral”). The destructive view that the world has towards embryonic stem cells is made evident not only by the ongoing debate about whether or not embryonic stem cells should be used but also by the restriction placed on embryonic
“The Immortal Life of Henrietta Lacks” is the story of Hela cells and the women and family behind them. HeLa cells are the cells that have helped scientists all around the world discover cures and vaccines that have saved thousands of lives. But before they did all those things, they were inside a woman, named Henrietta Lacks, and were taken from her without her knowledge. Her family would not know about her cells until years after her death and millions of dollars in revenue gained from the HeLa cells. At the time doctors did what was considered common practice but did they cross a line? Or were the amazing scientific achievements enough to excuse the violation of personal privacy? Despite good intentions doctors should never have taken Henrietta’s cells without her consent, and furthermore her family deserves compensation for the work those cells have helped accomplish, and the sometimes horrible circumstances they have had to deal with because of the cells.
In the example with the HeLa cells, a great debate was raised when the book The Immortal Life of Henrietta Lacks was published. The debate centered around the lack of information of where the cells came from, who should have known about the original harvesting, and the lack of compensation for Henrietta’s family once the cells started generating income. Also discussed was the tendency of the medical community to