The Policy Issue Of Family Caregivers

The challenge America now faces is the number of people reaching retirement will double in number by 2030, and the U.S. population will increase almost 20 percent ("Our Aging Nation," 2015). The goal is for the elderly to maintain and live with independence and dignity, as well as, provide a wide range of professional health and social service expertise, home care, and residential support and services that will be needed ("Our Aging Nation," 2015). Since the number of caregivers needed for this population will not be able to meet the demands other resolutions are considered necessary.

In the U.S, one in four will be aged 60 years and older by 2050 (U.S. Census Bureau). This represents an overwhelming number of people who will either be in the caretaker role or be the ROC. Like today, most of the care will be provided by informal unpaid caregivers. The number of informal unpaid caregivers is expected to rise from 20 million in 2000 to 37 million in 2050 (Office of the Assistant Secretary for Planning and Evaluation [ASPE], 2003). Because of the burden of care giving, many caregivers will experience depression, poor health and quality of life (Etters, Goodall, & Harrison, 2008). Their well-being is an important public health concern.

Taking care of the individuals that are getting older takes many different needs. Most of these needs cannot be given from the help of a family. This causes the need of having to put your love one into a home and causing for the worry of how they will be treated. It is important for the family and also the soon to be client to feel at home in their new environment. This has been an issue with the care being provided for each individual, which has lead to the need of making sure individuals have their own health care plan.

Adult children caring for their aging parent or grandparent provide the majority of informal support. This is due in part because grandmothers “raise their grandchildren to believe in lifetime reciprocity”, grandchildren often feel an obligation to care for their aging family members (Novak, 2012, p.191). Furthermore, a heavy reliance on family support may be due to a lack of trust exists towards formal health care programs, a lack of access, or a general lack of

With home care becoming the next wave of long-term care services that will help keep Baby Boomers out of institutional programs and skilled nursing facilities, it will require a supplemental add-on support for family members or the at home caregiver as respite care and compensation for this care will have to be financially addressed. Adult day services provide the aging adult with physical exercise, social activities, and cognitive engagement. The Baby Boomers independence and acknowledgment of traditional long-term care institutions will bring change to the style and type of adult day care activities offered, as they are more engaged with technology, and at keeping themselves as active as

Last year Congress passed the Recognize, Assist, Include, Support and Engage (RAISE) Family Caregivers Act. This act supports and advises families with caregivers. "This bill directs the Department of Health and Human Services (HHS) to develop, maintain, and periodically update a National Family Caregiving Strategy." (www.congress.gov) Former President Barak Obama also supported contributed to the AARP organization by creating the Obama Care Bill. This bill helped families of any age receive health care. The Federal government is also tackling the illegal discharge of patients in nurse

The alternative in providing care for a dependent family member is keeping them in their own home, or the home of a family member. In recent years there has been a move in market place to an idea that is much more cost effective to provide most of the same services that traditionally found in a long-term care facility in the home. It is estimated that providing these services in the home are approximately $21,800.00 a year. It is also important that these figures only cover the cost of providing skilled health care. These figures do not cover additional expenses occurred in the home such as the cost of room and board. In many instances, the idea of keeping family members in the home where their care, may be more closely supervised is becoming increasingly appealing. Many health care providers are recognizing this and providing more and more services available in the home. In today’s market place anyone can find nursing, physical therapy, occupational therapy, and respiratory therapy companies

Thank you for contacting me about H.R. 3099, the RAISE Family Caregiver Act. I appreciate the opportunity to respond.

In the fiscal year 2010, (O’Shaughnessy, 2012) only about 5.1%, or 3 million people, out of the 57.8 million people age sixty and over, received services funded by the Act. These services included home delivered meals, home care, personal care, or case management services on a regular or intensive basis. About 14%, 8 million people, received other services, such as transportation, congregate meals, or information and assistance on a not so regular basis. A report was made by the Government Accountability Office stating that their findings were that many older people are in need of meals and other supportive services to help remain independent in their own communities, but a large portion of them are not getting the help they are in need of. Some barriers causing this lack of help are lack of funding and lack of knowledge among the older Americans that they may be eligible for benefits and services can be available for them.

In these services they would usually be offered help with activities of daily life, such as eating or bathing. Some home services also give them other benefits such as residential services, personal care or case management. To give more open details on experiences of Medicaid beneficiaries who need home and communities based services Musumeci and Reaves discuss nine seniors who are disabled and who live in different states. Those include people with different kind of disabilities which can be either developmental, physical or intellectual and issues such as autism, cerebral palsy, multiple sclerosis and their functional limitations that are there because they aged (Musumeci & Reaves, 2014). Based on interview that were given from these people to the Kaiser Commission in 2013 based on Medicaid and uninsured, these peoples’ profiles clearly show us how beneficiaries funds, well-being, status of their employment are affected by the coverage of Medicaid and the role these services play in their daily lives (Musumeci & Reaves, 2014). In the last years states are trying to work on rebalancing long-term care system by dedicating more spending to home and community care rather than institutional care. The reason is this being the efforts that are driven by beneficiaries who are

We can’t purport to have a national goal to “eliminate health disparities” and continue to accept the social inequities that come from such a major gap in wealth. If we hope to solve the pressing issues of eldercare, these inequities must be addressed head on now and in the future. Otherwise, those who are caregivers now may not have access to the care they will need in the future.

The long-term healthcare system has an infrastructure that is unfriendly and difficulty to navigate. With a growing number of frail older people living in the United States, the pressure to find a more affordable way to care for them will mount. Nearly 12 million people need some form of long-term care (LTC) and half are over age 65 (Wilber, 2014, Class Session 2). As mentioned in the article “Waiting in the Dark with Dad,” a large percentage of American healthcare costs fund medical procedures and medications to keep terminally ill people 65 and older alive (Lopez, 2014, p. 1). Steve Lopez experienced this with his 85-year-old father, Tony, who lived in a nursing home that was a place meant to keep his heart beating, but not actually improve his health and well-being. This is the harsh reality of the long-term care industry that many have faced, including experts in the field such as Dr. Robert Kane, author of It Shouldn’t Be This Way: The Failure of Long-Term Care. Long-term services and supports (LTSS) are supposed to maximize the quality of care and the quality of life for the individual (Kane and West, 2005, p. 169). When that focus is lost, it is the responsibility of healthcare professionals, like myself, to bring that issue back to the forefront of policy making.

Research show that in 2013, over 9.5% of seniors over the age of sixty-five lived in poverty with the percentage increasing as an individual’s age increases (McNeal, 2016). These statistics does not account for the other issues which affects families and caretakers when addressing the well-being of their loved ones and the inadequate access to long term care.

“Caregivers fulfill an important role not only for those that they assist, but for society as a whole. While this care is unpaid, its value has been estimated at 257 billion dollars annually. (Arno, P.S. Economic Value of Informal Caregiving. Annual Meeting of the American

The older adult population in the United States has steadily increased thanks to technology and medical advances. While this definitely is an undeniable achievement, it also creates some challenges that society was not as prevalent to face before. Now that people are living longer it’s also means that often times family members are becoming caregivers to their loved ones during their so called golden years. Not only may it be difficult to care for a loved one, but it also becomes even more burdensome when their loved has a disability. In fact “dementia is one of the major causes of disability and dependency among older people worldwide.” (2016). Fortunately there are adult day centers that serve people with dementia and provide services that can benefit them. However many times caregivers are forgotten about and aren’t provided services that can also benefit them as well. While it does take a bit of pressure off of the caregivers while their loved ones are at the day center, it does not eliminate all the other effects. Many people may not be aware that there are detrimental effects that a caregiver may experience as a result of caring for someone with dementia.