I know that there will be some people that don’t want to know about their health. I am on the other side; I want to know when there is something wrong with me, even if it was serious. I’d love to have my DNA decoded and analyzed. Advances in analytics will enable us to decode the DNA of individuals in minutes. It will be so cheap that it becomes a routine check at birth – or even before! A more scary idea is that health insurance companies could use (or even demand) your data to customize their premiums. Yes, on one level I would welcome this because it could reward the ones with a healthier lifestyle. But what if my DNA analysis and all of the self-quantification finds some serious underlying health problems with me, which mean no insurer …show more content…
The fact that Google reads the content of our emails (not a person but a machine) and combines any insights with our search behavior I find scary. The fact that Facebook is collecting data about what websites you are visiting (even if you visit them outside of Facebook) is also scary. The increasing data trail we are leaving combined with the ever-more foggy and complex privacy agreements makes it difficult to control access to our data. It is really okay to assume that because I am using a free app all my data can be accessed and exploited? Even I have to say that I am increasingly unsure what exactly happens to a lot of my data. What really happens when I use RunKeeper on my phone and the data is then shared with Jarbone (the company behind the UpBand), who else will be able to access it? What will they be able to do with it? Who can and will access my social media data? Any post, like or upload on social media sites such as Facebook or Twitter are public by default and even if we have secured everything certain apps we use will still be able to access data. The problem is that big data analytics of our social media data can now be used to safely predict things we might not want to reveal, including our age, our sexuality, our religious and political view as well as our intelligence and emotional stability. Are we really comfortable with the fact that Wal-Mart is able to take data from your past buying patterns, your mobile phone location data, and
One of the biggest concerns in the United States of America today is privacy. For its citizens, this concern is due mostly in part to new developments in technology and big data collection. Yes, this technology and data collection is beneficial for American citizens and is a step in the right direction for humankind, but to what extent? The CQ Researcher article titled, “Big Data and Privacy” by Tom Price answers just that question. More specifically, a monumental factor for technological advancement this article explains is the use of personal information by the producers of new technology and the collection of big data in this day in age. What makes this debate on the violation of privacy through the use personal information by businesses, as well as, the general population, is that big data collection is the staple of technological advancement and serves as a convenience for Americans. Although big data collection and technology serves as an extreme benefit in relation to convenience and societal advancement for those who use and consume it, how far will scientists, researchers, businesses, and the government push before it becomes a violation our privacy as citizens of the United States of America?
Privacy is also another big issue surrounding the plans for a database. Chairman of the New South Wales privacy council says that the prospect of a genetic database is a “cavalier disregard for people’s privacy”
Bodily privacy is a significant issue in Genetic Profiling, as it is a human right which is in constant need of law reform. Technology is continually advancing, and genetic
With the seemingly exponential propagation of inexpensive digital communications technologies over recent years, the general public is becoming more aware of the issues surrounding information privacy and government surveillance in the digital age. Every Tom, Dick, and Harry with a smart-phone has to be wary of how they use their private information for fear of that information being collected and used in a way contrary to their wishes. "Leaky" smartphone apps that transmit private information across the internet can be unethically used by government agencies. The issue of privacy is a balancing act; the public usually wants increased privacy and the government usually wants increased access.
As Justin Brookman says, “‘Without a framework in place to assure everyday consumers of the ability to limit the collection and retention of the minutiae of their lives by unknown third parties, any sense of a realm of personal privacy may completely evaporate’” (Tapscott 119). There should always be some sense of mystery in the world. Third party sources often find a way of getting information that Internet users did not give them express permission to. The flow of information goes further than most people realize, which is where the dangerous invasion of privacy comes in. A sharing is caring mentality is all good and fun until a third party uses it against you. We should beware the extent to which our information can spread without our
Recent developments in technology have changed the delivery of health care and the system used to record and retrieve health information. In addition to using paper medical records, healthcare professionals, hospitals and insurers routinely use computers, phones, faxes, and other methods or recording and transferring information. In many instances, this information - which could include medical diagnoses, prescriptions, or insurance information - is readily available to anyone (including clerical and other staff) who walks by a fax machine or logs on to a computer. This lack of privacy has the potential to undermine patients' relationships with providers and adversely affect the quality of care. Patients may also fear that the exposure of personal health information, including the results of genetic tests that are becoming increasing available, could result in the loss or denial of health insurance, job discrimination or personal embarrassment.
In C.D. Wright’s complex investigation called One Big Self, the author twists around different views and social norms of convicts by exposing the side of prisoners that not many think about. This piece proves to be a culture shock, because of the twisted message of prisoners having a soft side, along with the unique style and conventions that the writing is delivered through with the odd layout of stanzas, fragmented quotes, and different fonts. The bizarre environment of the prison from which C.D. Wright finds her information proves to be rare and original because she uses her book as a metaphor to relate to the prisoners, which no other author has completed before. When reading One Big Self, readers feel that the book is hard to approach and not easy to understand because the tone is not accessible. By using this type of style, the author relates her writing to how people identify and relate with criminals, like those in
Privacy! It’s an elementary principle we all value and fight to protect. However, with technological trends, such as Facebook, Instagram, Twitter and Snapchat, our lives have now become accessible to all. These social media platforms have become part of our daily lives, from sharing personal information or activities to communal networking. The fascination to be trendy and acquire followers, is compromising our privacy principles and places us at significant risk. It’s remarkably easy to pretend that we control what personal information we share, however, realistically we leave technological trails every day we login to these apps, or browse the internet. For the most part, it seems that
Crawford and Schultz (2014) summarized Big Data as “a generalized, imprecise term that refers to the use of large data sets in data science and predictive analytics (p. 96). The various sources of retrieving and generating information has expanded and exposed its vulnerability, especially to health data. A single breach holds risks of sharing critical information from a multitude of patients’ records. Predictive privacy harms, which are collected information that centers on individual data behaviors, have the potential to sidestep existing antidiscrimination regulations, but also lead to privacy breaches in healthcare (Crawford & Schultz, 2014). In the U.S. Supreme Court decision in United States v. Jones there were concerns expressed about invasions of privacy that could result in direct collection of large amounts of personal information through Global Position System (GPS) monitoring. This type of governmental power is vulnerable to abuse, endangerment of privacy rights of citizens, and weaken trust in the government (Crawford & Schultz, 2014). Crawford and Schultz (2014) state that John Locke and William Blackstone defined liberty, as it pertains to an individual, as an “unabridged natural right follow his or her own will”. (p.111) In a sense, if an individual believes privacy fits the bill, then it should be respected and left alone. Big Data faces many obstacles when it comes to the topic of privacy. The question of how to correctly respond to each challenge may vary, but success can come if both just and achievable protections are present for those at risk for this type of
There are several positive uses of big data including the development of more accurate weather prediction systems, research and production of self-driving vehicles, making cities smarter, and collecting more data during exercise in order to train in the most efficient way. The essential item in keeping this straight is striving to develop policies that reflect our ideals and then implementing it. This falls on the shoulders of the government. Minimizing the gap between the implementation and policy can be achieved through various venues. Transparency is of paramount importance when dealing with surveillance and entrusting other entities with personal information. If any person is being spied on or having information collected, they should know about it and of course it should be legal. Google as a service is a good example. Although using Google’s services are “free” to use, it sells our personal information to other companies for surveillance capitalism and marketing. Google should have an agreement or make it clearly known that this is what is happening and then provide an option to pay for its services directly and not disclose user’s information. Additionally, companies that participate in such behaviors should be legally bound with well-defined terms and be regularly
Due to the lack of adequate interpretation, I do not foresee buying my genome sequencing in the near future. A few of my close relatives have certain medical conditions that concern me, such as diabetes, cardiovascular disease, and rheumatoid arthritis. Even so, I prefer to live a life without the fear of what my DNA profile might uncover. If the test determined that I have an increased risk of developing Alzheimer’s disease, my stress level may increase every time I lose my keys. For example, I have a friend that was terrified of having a child that may have schizophrenia because the child’s grandmother suffered from the condition. During her daughter’s infant years, my friend suffered from stress as she watched for any sign of mental illness in her daughter. My friend suffered from constant worry and guilt that her child would become ill. Her daughter is almost thirty now and she shows no sign of the disease. Even though the test may reveal an increased risk for certain conditions, it is not advanced enough to predict with certainty what my health picture will be in thirty years. I believe in knowing what family risk factors affect me and
Government surveillance in the past was not a big threat due to the limitations on technology; however, in the current day, it has become an immense power for the government. Taylor, author of a book on Electronic Surveillance supports, "A generation ago, when records were tucked away on paper in manila folders, there was some assurance that such information wouldn 't be spread everywhere. Now, however, our life stories are available at the push of a button" (Taylor 111). With more and more Americans logging into social media cites and using text-messaging devices, the more providers of metadata the government has. In her journal “The Virtuous Spy: Privacy as an Ethical Limit”, Anita L. Allen, an expert on privacy law, writes, “Contemporary technologies of data collection make secret, privacy invading surveillance easy and nearly irresistible. For every technology of confidential personal communication…there are one or more counter-technologies of eavesdropping” (Allen 1). Being in the middle of the Digital Age, we have to be much more careful of the kinds of information we put in our digital devices.
Have you ever taken into account the fact that all your genetic information could be stored on one database; that at any time you could be identified for every action in a matter of seconds with the click of a button? This notion has caused a large amount of controversy among the global population causing a heated debate regarding the ethicality of having DNA databases. With a large amount of technological advancement and the growing fears of citizens, these DNA databases have started to rise in hopes of benefiting the global population. Critics opposed to this development have pointed out many flaws regarding the idea and continue to promote the restriction of the growth of these types of databases. Through extensive research, the
The genetic technology revolution has proved to be both a blessing and a blight. The Human Genome Project is aimed at mapping and sequencing the entire human genome. DNA chips are loaded with information about human genes. The chip reveals specific information about the individuals’ health and genetic makeup (Richmond & Germov 2009).The technology has been described as a milestone by many in that it facilitates research, screening, and treatment of genetic conditions. However, there have been fears that the technology permits a reduction in privacy when the information is disclosed. Many argue that genetic information can also be used unfairly to discriminate against or stigmatize individuals (Willis 2009).
Genetic information can be identified at any point throughout a person’s lifespan from pre-conception until after death. In addition to heritable, biological information, family history, genetic test results, and medical records are also sources of genetic information” (Jenkins & Lea, 2005). We are put in a position to gather and retain information that could be utilized for a better future, but is confidentiality involved for the sake of profiting? Ask yourself, who should have access to genetic information? Who owns and controls it? How can families resolve conflicts when some members want to be tested for a genetic disorder and others do not?