Ethics and Research
In 1932 the American Government conducted a study named the Tuskegee Syphilis study, this project was administered by the US Health in Macon County, Alabama. The Government promises 600 plus African American citizens access to free medication and access to proper health care. This study subjects was all tested positive for Syphilis when they enrolled for the study. However, these subjects were denied medicine and were experimented on to help the Government to better understand the Syphilis virus. The men in this study weren’t aware of the research design and possible danger to them and their families. (Carol Heintzelman 2003 p.1) This study went on for the next forty years.
Even though the study help create a medicine
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(Earl Babbie 2008 p 69). These risks include any medical or psychology harm to the subjects. The Tuskegee Syphilis Study didn’t tell their subjects any particulars of the research and withheld information from them. This study also brought up the concerns of ‘the possibility that a person might feel pressured to agree or might not understand what they agreeing to. (Heintzelman 2003 p.1). The subjects agreed to free medication, which proposes the question that they might not of understood what that entails.
Another issue with this is that the Government Doctors also failed to obtain informed consent from the subjects; they disregarded the human rights of the subjects and committed medical misconduct. These Doctors failed to provide medication, Penicillin, which was deemed safe by this study, to the subjects. According to Ogungbure, although the black participants in the Tuskegee Study had no formal school education, the medical experts were not morally justified to deprive them of their right to know about the dangerous procedures they would be subjected to, including the painful spinal tap, unimaginable psychological stress, and constant body piercing. (Ogungbure 2011 p 84)
Withholding Treatment for research purposes
The Second ethical principle ignored by the research was withholding treatment for research purposes. The Medical Doctors withhold
This essay examines the Tuskegee Syphilis Study, wherein for 40 years (1932-1972) hundreds of black men suffering from advanced syphilis were studied but not treated. The 40-year study was controversial for reasons related to ethical standards; primarily because researchers knowingly failed to treat patients appropriately after the 1940s validation of penicillin as an effective cure for the disease they were studying. To explore the role of the racism in the controversial study, this essay analyzes the article written by Allan M. Brandt.
The Tuskegee Syphilis Study was an unethical prospective study based on the differences between white and black males that began in the 1930’s. This study involved the mistreatment of black males and their families in an experimental study of the effects of untreated syphilis. With very little knowledge of the study or the disease by participants, the Tuskegee Syphilis Study can be seen as one of the worst forms of injustices in the United States history. Even though one could argue that the study was originally intended to be for good use, the Tuskegee Syphilis Study was immoral and racist because only poor, uneducated black males were used in experiment, the participants were not properly informed of their participation in the
In todays society, the common consensus about human experimentation is that it is unethical, however, people in the past believed it was necessary to advance scientific discoveries. The Tuskegee syphilis study is a prime example of how scientists in the past disregarded the ethics of human experimentation to enhance scientific research. The study was an experiment where four- hundred to six-hundred uneducated African American men were tricked into being tested. Most of the patients were injected with the disease and left without treatment to discover its effects, while the others were safe being used as controls. This experiment lasted for Forty years and was probably the biggest example of unethical human experimentation in America. Fortunatley, the contrivertial actions taken in the experiment lead future generations to create the law of informed consent where the patient understands what will happen during their treatment. The inspiration for researching this topic was how in “The Immortal Life of Henrietta Lacks”, by Rebecca Skloot, Henrietta was used for a scientific study without her consent. In relation to Henrietta, the men in the syphilis study were not aware of what was happening to them and were experimented on without their consent. Overall, the human experimentation in the Tuskegee syphilis study was unethical in many ways.
In the article Racism and Research: the Case of the Tuskegee Syphilis Study, by Allen M. Brandt, he discusses a few mains point. The main points of the article is Racism and Medical Opinions, the origins of the experiment, how they selected the subjects, and the HEW final report. In the first point, Racism and Medical Opinions, many of the scientist believed that even with all the “education or philanthropy” the black Americans can’t be cured whether it has to do with diseases or crime. The black Americans also had a lot of deficits and were considered imperfection. Doctors say that the black Americans had a “sexual desire” which puts a lot of the whites in danger. They also say
There are a multitude of constituents that could be modified to make these unprincipled studies ethical for subjects. The Tuskegee syphilis study was an unscrupulous experiment that illustrated the significance of morality in human experimentations. A noteworthy alteration that would be made is guaranteeing that every participant in experiments are given a full assessment of the dangers that can arise from the experiment. Consent was an element that was fundamentally nonexistent in the Tuskegee syphilis experiment, resulting in the study being expressively immoral. In addition, a momentous ethical and legal issue involved in the Tuskegee study were the counterfeited information given to the subjects and the community. David Smolin, the author of the “Tuskegee Syphilis Experiment, Social Change, and the Future
The Tuskegee Syphilis Experiment was a 40-year-old study from 1932 to 1972 in Macon county, Alabama on Africa America men. The purpose of the study was to learn the different side effects of untreated syphilis in Africa Americans; at that time there was no proven treatment for the disease. The experiment was conducted on a total of 600 African American men. Of this group 399, who had syphilis were a part of the experimental group and 201 were control subjects. Most of the men were poor and illiterate and Researchers from the Tuskegee Institute offered these men the deal of their life, which was free medical care, survivors insurance, rides to and from the institute, meals on examination days, and free treatment for minor ailments
The Tuskegee syphilis experiment was an infamous clinical study conducted between 1932-1972 in Macon Country, Alabama by the U.S Public Health Service. The purpose was to study the natural progression of untreated syphilis in rural African American men who thought they were receiving free health care from the U.S government; about four hundred African American men were denied. The doctors that were involved in this study had a shifted mindset; they were called “racist monsters”; “for the most part, doctors and civil servants simply did their jobs. Some merely followed orders, others worked for the glory of science” (Heller) The men that were used for the study got advantage of, especially those
The Tuskegee Syphilis Study did not only affect the participants, it also created a path for families to be unknowingly infected with syphilis. As Yoon revealed, “Since 1975, the Government… providing lifetime medical benefits to the 22 wives, 17 children, and 2 grandchildren with syphilis they may have contracted as a direct result of the lack of treatment accorded the men in the study.” Because participants were uninformed that they were infected with syphilis, they innately went on with their daily life, which included sexual intercourse. This is how the horrific disease of syphilis was spread to their significant others and children; however, the participants’ and families’ physical health was not the only aspect of their health affected. Through research, Yoon
The Tuskegee Syphilis Study of 1932 studied approximately six hundred twenty-five “disadvantaged rural black men” (Pozgar, 2016) that both had syphilis and did not have syphilis. This study, named "Tuskegee Study of Untreated Syphilis in the Negro Male" (Centers for Disease Control and Prevention, 2013), was conducted by the Public Health Service from 1932 to 1972, however was only projected to last 6 months (Centers for Disease Control and Prevention, 2013). The purpose of the study was to show the effects of untreated syphilis. The men involved were led to believe that were receiving treatment for their various conditions but were actually not receiving treatment. The men participating in the study were not informed of the purpose of the study or what treatments they were receiving. The study concluded in 1972 and began many more years of investigation and hearings on behalf of the participants that suffered during the trials.
Tuskegee – The doctors violated this principle by not informing the study subjects of the details of the study itself. The subjects were informed they were going to be treated for “bad blood” (CDC, 2015). At the time “bad blood” could have meant syphilis or it could have meant anemia or fatigue. None of the patients received treatment to cure their illness. Additionally, none were ever informed that they were in fact part of a study to document how syphilis progresses when left untreated. These were autonomous men who had vital information withheld from them while being subjects in a research study.
The Tuskegee syphilis study highlighted the effects of untreated syphilis in African American males by withholding syphilis treatment that was available to these men. In addition, Tuskegee syphilis study demonstrated how the participants’ rights were taken for granted or even minimized in order to obtain information on how the human body was affected by untreated syphilis. This study allows one to view how the ethical rights were violated and allows for guidelines to be established preventing future occurrence.
The book BAD BLOOD: THE TUSKEGEE SYPHILIS EXPERIMENT by James H. Jones was a very powerful compilation of years of astounding research, numerous interviews, and some very interesting positions on the ethical and moral issues associated with the study of human beings under the Public Health Service (PHS). "The Tuskegee study had nothing to do with treatment it was a nontherapeutic experiment, aimed at compiling data on the effects of the spontaneous evolution of syphilis in black males" (Jones pg. 2). Jones is very opinionated throughout the book; however, he carefully documents the foundation of those opinions with quotes from letters and medical journals.
The three Belmont Principles (respect for persons, beneficence, and justice) were violated during the Tuskegee Syphilis Study. For example, the researchers violated the respect for person’s principle, because roughly 600 African-American men were recruited without voluntary informed consent. The researchers also did not ensure that participants understood that enrolling in the research is voluntary and that they are free to withdrawn from the study at any time without penalty or loss of benefits. The men were pressured to participate due to implied threats (coercion) and excessive compensation (undue influence). The beneficence principle was likewise violated by the Tuskegee Study in that the researchers did not obliged to give forethought
The book, Bad Blood: The Tuskegee Syphilis Experiment, by James H. Jones, was one of the most influential books in today’s society. The Tuskegee Syphilis Experiment study began in 1932 and was terminated in 1972. This book reflects the history of African Americans in the mistrust of the health care system. According to Colin A. Palmer, “James H. Jones disturbing, but enlightening Bad Blood details an appalling instance of scientific deception. This dispassionate book discusses the Tuskegee experiment, when a group of physicians used poor black men as the subjects in a study of the effects of untreated syphilis on the human body”(1982, p. 229). In addition, the author mentioned several indications of discrimination, prejudice, and stereotype toward this population. Also, this book provides multiple incidents of the maltreatment of human beings. The reader is able to identify the incompetence of the helping professions and violation of human rights, ethical issues, and dehumanize African Americans.
Another ethical issue was confidentiality and privacy, there was personal information disclosed to third parties without consent from the patients in the study, and according to the movie (1997) one treatment was given in groups and the patients performed the treatments on each other. The third ethical issue was the principle of beneficence (goodness), which according to Guraya, London, & Guraya (2014) this principle relates to individuals not being intentionally harmed and the outcomes should be the best possible result. In the Tuskegee study the opposite happened, the physicians and nurse knew they would not treat the men with the best medical care possible, and when treatment options were available they would not provide that treatment to the participants. The study would only come to an end, when all participants had passed away. The next ethical issue was the lack of respect, where each participant should have remained as independent individual. The Tuskegee study was not looking at the participants in the study as individuals, but as a group of poor African American males.