An Analysis of 'The Immortal Life of Henrietta Lacks'

“The Immortal Life of Henrietta Lacks” is the story of Hela cells and the women and family behind them. HeLa cells are the cells that have helped scientists all around the world discover cures and vaccines that have saved thousands of lives. But before they did all those things, they were inside a woman, named Henrietta Lacks, and were taken from her without her knowledge. Her family would not know about her cells until years after her death and millions of dollars in revenue gained from the HeLa cells. At the time doctors did what was considered common practice but did they cross a line? Or were the amazing scientific achievements enough to excuse the violation of personal privacy? Despite good intentions doctors should never have taken Henrietta’s cells without her consent, and furthermore her family deserves compensation for the work those cells have helped accomplish, and the sometimes horrible circumstances they have had to deal with because of the cells.

The main ethical issues in this case is that researches at Johns Hopkins Hospital used Henrietta’s cell in multiple researches and send her cells to other researchers around the world without her family’s consent. Moreover, the Lackes themselves were used in medical research without informed consent, and Henrietta’s medical records were release to journalists without her family knowing.

Henrietta Lacks is not a common household name, yet in the scientific and medical world it has become one of the most important and talked names of the century. Up until the time that this book was written, very few people knew of Henrietta Lacks and how her cells contributed to modern science, but Rebecca Skloot aimed to change this. Eventually Skloot was able to reach Henrietta’s remaining family and through them she was able to tell the story of not only the importance of the HeLa cells but also Henrietta’s life.

The social contract of nursing is important because it reflects the nursing's code of ethics, which is to provide care to all who are in need, regardless of their cultural, social, or economic standing. The social contract exists because we rely on a guideline to continue to provide ethical care that is within our scope of practice. Unfortunately, in Rebecca Skloot’s (2010) book, “The Immortal Life of Henrietta Lacks” there were many ethical violations throughout the whole process about the Henrietta Lacks’ cells (HeLa). The author reveals the story about the life of Henrietta Lacks, an African American woman who was diagnosed with a fast-growing cervical cancer at a young age. The cells retrieved from her cervical tumor became the first immortal cell that could survive in the lab and replicate continuously without dying. Without the consent of Henrietta Lacks and her family, these cells later became key components to the development of many groundbreaking inventions such as the polio vaccine and in vitro fertilization. Therefore, the purpose of this paper is to examine the social covenant of nursing in relation to the ethical issues behind the use of the HeLa cells without the patient’s and her family’s consent.

Henrietta Lacks died in 1951 of cervical cancer, leaving behind a husband, five children and some cells taken from her without her permission. These cells continue to revolutionize the scientific field today and have played an integral role in some of the most important advances in medicine: cloning, chemotherapy, gene mapping, the polio vaccine and in vitro fertilization. The Immortal Life of Henrietta Lacks answers a lot of questions regarding the Lacks family, but also poses a number of questions regarding ethics, consent and how far society is willing to go to make medical advances.

Imagine having no rights in life. Imagine one day you get sick, and you go to the hospital to get better, but you get taken advantage of. How would all that make you feel? Henrietta Lacks was an African-American woman. During her time, women didn’t have equal rights like men did, and African-Americans didn’t have equal rights like white people did. Since Henrietta was an African-American woman she had it rough, there were times that everyday tasks were a struggle. In 1951 she was diagnosed with terminal cervical cancer. She was treated at John Hopkins University, where doctors didn’t do all they could even if they said that was the case, and were Doctor George Gey took her cells from her cervix without consent. I watched the Law and Order episode titled “Immortal”, I found it to be extremely similar to a book I read titled The Immortal Life of Henrietta Lacks by Rebecca Skloot even though the show said in the beginning that this was not based on a true story.

Much medical advancement would not have been possible without cancer cells from Henrietta Lacks. While these HeLa cells are infamous in the medical community, the story behind them was barely known by any until Rebecca Skloot uncovered it.1 Information about Henrietta Lacks uncovers a history of consent not being asked for, and certainly not being given, but because of the cells, medical discoveries were made without her family’s knowledge.1 It brings to light the idea that while cells are a part of a person’s body, once they are out of the human body there is no more ownership. Without informed consent though, is it still owned by the person whose cells they are?

“He told them he was testing their immune systems; he said nothing about injecting them with someone else’s malignant cells” (Skloot 128). This is one of the many incidences in Skloot’s book, The Immortal Life of Henrietta Lacks, where Skloot argued that medical research and advancements were held at a higher importance than fair treatment and rights of the patients and their families. Henrietta and the Lacks family are just one example. Skloot developed her argument by including information about uninformed consent and the Lacks family, providing examples of instances where doctors took advantage of their patients for their own benefit, and gave information about the Lacks family and their current medical situations. In order to adequately

This is a book that tells a story of an African-American woman and the Scientific journey of her cells, it also goes in depth about how her daughter came to find out about her immortal cells. The Immortal Life of Henrietta Lacks is divided into three layers and each part discusses different event that happened during the course of Henrietta’s life, death, and immortality. If the story was written in a chronological order would it had made it easier or harder to understand the more important things?

Henrietta Lacks case was different than Mississippi and Tuskegee in some ways. In Henrietta’s case the doctors took her cells from her cervix but like in the Mississippi and Tuskegee cases they took them without Henrietta’s permission and launched a multimillion-dollar medical industry after she died. The purpose of taking Henrietta’s cells was to just run a couple tests until they died but they ended up living and growing. Instead of telling Henrietta and her family what they have been doing the doctors kept the discovery to themselves. When the discovery of the immortal cells because known every doctor got their hands on them and started running experiments on them, sending the cells to space, running test on the cells to find a cure to aids and cervical cancer etc…

Rebecca Skloot’s bestseller, The Immortal Life of Henrietta Lacks, begins with a quote from World War II concentration camp survivor Elie Wiesel, “We must not see any person as an abstraction. Instead, we must see in every person a universe with its own secrets, with its own treasures, with its own source of anguish” (Wiesel qtd. in Skloot n. pag.). This quote serves as a preview of the book and its underlying moral purposes, as Henrietta Lacks and her family are continually treated as objects without rights to their privacy and without regards to their worth or feelings. The dehumanization of the Lacks family by the media and scientific community not only resulted in consequences for the family, but influenced society, as well.

Ethics, in our society, are the moral principles that govern our behavior, dictating what is right from wrong. The specifics of ethics changes as values in our society change and evolve. This occurs in Rebecca Skloots book, The Immortal Life of Henrietta Lacks. One major reoccurring theme in the book is the lack of informed consent and autonomy. Fortunately, now there are safeguards which protect human rights in regard to health care and research. The Commission for the Protection of Human Subjects of Biomedical and Behavioral Research, now part of the Department of Health and Human Services, created The Belmont Report, which is one such safeguard establishing principles for all human research (USDHHS, 1979). This paper will discuss the ethical issue of informed consent within The Immortal Life of Henrietta Lacks, the disregard to parts of the Belmont Report, as well as compare the role of the nurse in charge of Henrietta’s care versus the standards of care set for modern nurses.

Rebecca talks about whether or not people should have the rights to their own tissues. She points out two issues, consent and money. In the past there was no informed consent, so the doctors and researchers felt free to use tissues in whatever way they wished, with little concern for patients' rights. Nowadays there is a different system, and it's required by the law to ask for a patient's informed consent.mThe money issue is a question of whether doctors should be required to tell patients if their cells or tissues are going to be used for commercial research, and what rights those donors should have. Later on, “scientists sequenced Henrietta Lacks's genome and made it public, without asking the family's permission” which was just another way in which the family was violated and looked over (Silver). Apparently Henrietta didn't get her rights, and neither did her children. Any way we look at it, if the family had received any benefits from the cells, it

This research paper is based on the findings from the book “The Immortal Life of Henrietta Lacks”. What you will read and come to know is nonfiction. I wish I could put the pictures of what I have seen and read together here for you to perhaps get a better understanding. A story based on not Henrietta’s life being that of immortality, but rather cancer cells removed from her body without her knowledge. These were the first cancer cells to reproduce outside of her body. You will come to know about Henrietta, her cancer, her cells, and her immortal life. Perhaps we can all learn to appreciate life in greater means of appreciation after reading and knowing the life and immortal afterlife of Henrietta Lacks. You will learn about a woman, who like us, had a family, and ended up not being able to truly live life to its fullest. Making us all realize just how cancer is and the amazing research that came from being able to reproduce her cells. Not just for cancer but for various other illnesses that plague so many of us. My hope is that you take away from this a better understanding of a time we do not know, for the ups and downs of science and the possibility of immortal life.

The theme I have selected for my book is “...Despite one’s best effort, humanity will not always return the favor. Life is not a balanced scale; life is a dance of give and take that can leave one person on top of the world and another buried six feet under.” This theme can be linked to my poster’s slogan: “It is possible to be chained by the stories we have yet to tell,” because the chains that bound the Lacks family were the cause of the unjustness they were subjected to. The image I selected represents my slogan and the characters in The Immortal Life of Henrietta Lacks because they felt locked up, left to rot as they wondered what had happened to their mother. The chains are the lies, the secrets, and the manipulations that the Lacks family