Ethics, in our society, are the moral principles that govern our behavior, dictating what is right from wrong. The specifics of ethics changes as values in our society change and evolve. This occurs in Rebecca Skloots book, The Immortal Life of Henrietta Lacks. One major reoccurring theme in the book is the lack of informed consent and autonomy. Fortunately, now there are safeguards which protect human rights in regard to health care and research. The Commission for the Protection of Human Subjects of Biomedical and Behavioral Research, now part of the Department of Health and Human Services, created The Belmont Report, which is one such safeguard establishing principles for all human research (USDHHS, 1979). This paper will discuss the ethical issue of informed consent within The Immortal Life of Henrietta Lacks, the disregard to parts of the Belmont Report, as well as compare the role of the nurse in charge of Henrietta’s care versus the standards of care set for modern nurses.
Ethical Issue The Immortal Life of Henrietta Lacks focuses on many issues that Henrietta and her family have faced over the years resulting from the discovery of HeLa cells. One such issue that was recurrently present was the ethical issue of informed consent, or the lack of it, in the Lacks’ case. In the beginning when Henrietta was first being treated with radium to kill her cancerous tumor, her primary doctor, Dr. TeLinde, took a sample of the tissue and sent it to Dr. Gey, head of tissue
“The Immortal Life of Henrietta Lacks” is the story of Hela cells and the women and family behind them. HeLa cells are the cells that have helped scientists all around the world discover cures and vaccines that have saved thousands of lives. But before they did all those things, they were inside a woman, named Henrietta Lacks, and were taken from her without her knowledge. Her family would not know about her cells until years after her death and millions of dollars in revenue gained from the HeLa cells. At the time doctors did what was considered common practice but did they cross a line? Or were the amazing scientific achievements enough to excuse the violation of personal privacy? Despite good intentions doctors should never have taken Henrietta’s cells without her consent, and furthermore her family deserves compensation for the work those cells have helped accomplish, and the sometimes horrible circumstances they have had to deal with because of the cells.
Clearly, these researchers had their own agenda to acquire a medical breakthrough that would change the history of science and contribute to the greater good of society. However, their authority was used in an unwarranted manner to accomplish their goals, regardless of their respectable intentions in wanting to make medical progress. In reviewing these researchers and medical practitioners’ actions during the 1950’s which entails series of unethical behaviors and violation of human right, it develops an essential need to establish guidelines in the attempt to protect patient’s rights and privacy. Furthermore, due to the alternatives that arise throughout this case, there are many possible outcomes to be considered that could have a significant impact on stakeholders if these courses of action are fallowed. These solutions consequences may involve the tentative research, an advance way of life for the Lack’s family, political turmoil, economic health impact and a society whose cells may have similar experience.
Henrietta Lacks is not a common household name, yet in the scientific and medical world it has become one of the most important and talked names of the century. Up until the time that this book was written, very few people knew of Henrietta Lacks and how her cells contributed to modern science, but Rebecca Skloot aimed to change this. Eventually Skloot was able to reach Henrietta’s remaining family and through them she was able to tell the story of not only the importance of the HeLa cells but also Henrietta’s life.
In the example with the HeLa cells, a great debate was raised when the book The Immortal Life of Henrietta Lacks was published. The debate centered around the lack of information of where the cells came from, who should have known about the original harvesting, and the lack of compensation for Henrietta’s family once the cells started generating income. Also discussed was the tendency of the medical community to
The social contract of nursing is important because it reflects the nursing's code of ethics, which is to provide care to all who are in need, regardless of their cultural, social, or economic standing. The social contract exists because we rely on a guideline to continue to provide ethical care that is within our scope of practice. Unfortunately, in Rebecca Skloot’s (2010) book, “The Immortal Life of Henrietta Lacks” there were many ethical violations throughout the whole process about the Henrietta Lacks’ cells (HeLa). The author reveals the story about the life of Henrietta Lacks, an African American woman who was diagnosed with a fast-growing cervical cancer at a young age. The cells retrieved from her cervical tumor became the first immortal cell that could survive in the lab and replicate continuously without dying. Without the consent of Henrietta Lacks and her family, these cells later became key components to the development of many groundbreaking inventions such as the polio vaccine and in vitro fertilization. Therefore, the purpose of this paper is to examine the social covenant of nursing in relation to the ethical issues behind the use of the HeLa cells without the patient’s and her family’s consent.
Henrietta Lacks was born on August 1, 1920, in Roanoke, Virginia. Lacks died of cervical cancer on October 4, 1951, at age 31. Cells taken from her body without her knowledge were used to form the HeLa cell line. Lacks's case has sparked legal and ethical debates over the rights of an individual to his or her genetic material and tissue.
Henrietta Lacks died in 1951 of cervical cancer, leaving behind a husband, five children and some cells taken from her without her permission. These cells continue to revolutionize the scientific field today and have played an integral role in some of the most important advances in medicine: cloning, chemotherapy, gene mapping, the polio vaccine and in vitro fertilization. The Immortal Life of Henrietta Lacks answers a lot of questions regarding the Lacks family, but also poses a number of questions regarding ethics, consent and how far society is willing to go to make medical advances.
Although Henrietta lacks and John Moore have contributed a lot to the science community their stories has raised many ethical issues concerning the privacy and consent of a patient. Similar cases might not occur so often nowadays because we have established laws that protect a patient's privacy and acknowledges them before making any
For this week’s assignment I am to discuss ethical principles, specifically the ethical principles that were violated during the research in regards to Henrietta Lacks. Henrietta Lacks was a wife and a mother of five. She was a black tobacco farmer and was a native of rural southern Virginia but a resident of Turner Station in Dundalk, MD. Henrietta had mentioned to family that she had felt a “knot” inside her while pregnant with her fifth child but her family just assumed that it was due to the pregnancy. After giving birth, Henrietta started bleeding abnormally and profusely. Her local doctor tested her for syphilis, which
“He told them he was testing their immune systems; he said nothing about injecting them with someone else’s malignant cells” (Skloot 128). This is one of the many incidences in Skloot’s book, The Immortal Life of Henrietta Lacks, where Skloot argued that medical research and advancements were held at a higher importance than fair treatment and rights of the patients and their families. Henrietta and the Lacks family are just one example. Skloot developed her argument by including information about uninformed consent and the Lacks family, providing examples of instances where doctors took advantage of their patients for their own benefit, and gave information about the Lacks family and their current medical situations. In order to adequately
This is a book that tells a story of an African-American woman and the Scientific journey of her cells, it also goes in depth about how her daughter came to find out about her immortal cells. The Immortal Life of Henrietta Lacks is divided into three layers and each part discusses different event that happened during the course of Henrietta’s life, death, and immortality. If the story was written in a chronological order would it had made it easier or harder to understand the more important things?
In this semester’s book club, I have enjoyed the book called The Immortal Life of Henrietta Lacks. This book describes a true and famous cell line in the medical research field, that is the first immortal cell line in the world, HeLa cells. Not until I finished reading this fantastic book, I know that the HeLa cells were taken from a cervical cancer patient, Henrietta Lacks, without letting her know the truth about using her cells in research, even though she died. What more surprising to me was that her family lived a hard life without health insurance while the researchers make many profits from developing HeLa cells, they were never informed about their family member’s devotion to the scientific research.
The treatment of African Americans in The Immortal Life of Henrietta Lacks demonstrates the lack of ethics in the United States health care system during the 1950s and 1960s. Under the impression that medical doctors at Johns Hopkins Hospital were solely injecting radium treatment for cervical cancer, Henrietta Lacks laid on the surgical bed. During this procedure Dr. Lawrence Wharton Jr. shaved two pieces of tissue from her vagina, one from a healthy cervical tissue and one from the cancerous tumor, without Henrietta’s prior knowledge. After recovering from her surgery Henrietta exited the door marked, “Blacks Only,” the door that signified the separation between White and African-American patients. Had Henrietta been White, would the
Racism is immortal just like Henrietta’s cells it will always be around. People would do anything to be the first to discover something. At the end of the day it’s all about the money. The Mississippi appendectomies and the Tuskegee experiments were similar in the way that the government forced treatment upon minorities without consent. Henrietta’s case was different than Mississippi and Tuskegee because the doctor in Johns Hopkins didn’t experiment on her actual body but on her cells without consent. Henrietta’s case the Tuskegee experiments and the Mississippi Appendectomies are all different cases in different locations but serve the same purpose which is to take advantage of poor and uneducated minorities to
In a HIPAA-conscious society today, some of the most obvious and concerning examples of the objectification of Henrietta and her family are the inconceivable breaches of privacy. Deborah Lacks, Henrietta’s youngest daughter, originally chose to not request access to her mother’s medical records because “she was afraid of what she might find and how it might affect her” (Skloot 209). In 1985, however, Science 85 reporter Michael Gold published a book about Henrietta’s “Immortal Legacy” including extensive verbatim quotes from Henrietta’s medical records, including details about her previous medical history, diagnosis, pain, decline and death, and even autopsy (210). Skloot recounts Gold’s offenses, “No one in Henrietta’s family had ever seen those