Available treatment options for diseases are limited by our knowledge. At the local hospice center, where I volunteered 2 years, these limitations were evident. The majority of my clients were disadvantaged due to a lack of treatment options. The limitations I saw firsthand instigated my pursual of research to explore an in depth relationship between disease and host.
My interest in host-pathogen interactions started when I found a strong relationship between my Microbiology and Human Physiology courses the fall of 2013. For example, while I was learning about the bacteria Clostridium botulinum in Microbiology, I was also learning about the nervous system in Human Physiology. In Microbiology we learned that Clostridium botulinum releases neurotoxins that interfere with neuron signaling, leading to muscle paralysis. The course did not go into depth about how the neurotoxins cause paralysis, but I was able to piece together how it would affect the nervous system through what I learned about neuronal signaling in Human Physiology. These classes prompted me to enroll in the Microbiology Laboratory course where I worked with my peers to plan and execute an experiment of our combined interests—the effects of varying glucose levels on oral microbes. These classes and Microbiology Lab allowed me the opportunity to explore my interest in the microbe-host relationship and galvanized my curiosity to host defense mechanisms.
In the winter of 2014, I decided to advance my knowledge of
One of my areas of interest is microbiology, particularly the mechanisms by which pathogens evade host defense systems and cause disease. Since I currently work in a microbiology lab I have read a few papers dealing with these issues and as such I would like to investigate the clinical aspects of bacterial infections.
Living is a gift. Many people in the world are simply alive, but living is rare. There are people that are too sick to enjoy life, the disease that has manifested in the body slowly takes over the mind and rids the mind of joy and radiance. The glow of life slowly diminishes before our eyes and it is truly heart breaking. This person is not just a disease that happens to be hosted in a human. This is a human that happens to have a disease. This person is someone’s parent, someone’s child, someone’s sibling, and someone’s grandparent. This person has memories, hobbies, and loved ones. This person is your patient. Making a difference in just one person’s life is an incredible feat. Being a physician assistant would be making a difference in many
Essentially, Hospice and palliative care focus on managing symptoms when a patient is deemed to have 6 months or less to live and allows patients to live out their lives away from a hospital or nursing home setting. Partially the reason why most people, including me, haven’t heard that much about Hospice is most likely because it is intended for people at the very end of their lives. However, another major reason is addressed in Gawande’s book, and it revolves around the idea that doctors don’t inform their patients every time that Hospice is really an option. Gawande admits himself throughout his book that like most doctors, he is always over-optimistic and focus on the treatment of the disease, forgetting to focus on the idea of just managing the symptoms in cases where treatment would only prolong the inevitable or giving too many choices for families to make. Gawande explains “All-out treatment, we tell the incurably ill, is a train you can get off at any time- just say when”, however other options are often never talked about (2014, p. 187). One example from Being Mortal is the story of Sara Monopoli, who faced an incurable form of cancer at a rather young age. Sara, along with her family and husband, never focused on just symptom management, but rather what new and outrageous treatment can be done
I never knew what a struggle it would be to understand an emerging, deadly, unknown illness. It shocked me to watch the constant roadblocks arise, mainly concerning minimal cooperation.
According to Allen et al. (2012), “millions of people with chronic illnesses endure unrelieved pain, uncontrolled physical symptoms and unresolved psychosocial or spiritual problems.” This issue occurs because palliative care is often considered a form of end-of-life care. Palliative care is a treatment that can be used for patients who suffer from chronic illnesses and diseases while receiving curative treatment. (Horowitz, Grambling & Quill, 2014) purposely states the misconceptions of palliative care and advocated for seriously ill patients that education must bring under control the misconceptions. Some patients do not receive appropriate symptom management because the palliative care treatment needed is often confused with end-of-life care. However, end-of-life care attempts to relieve pain and suffering when a disease is no longer responsive to curative treatment. Pain and suffering could ultimately be controlled or even eliminated through the proper utilization of palliative care. Patients who are not referred to palliative care in a timely manner is more likely to have poor quality of life, uncontrolled symptom management and increased amounts of visits to the emergency room during the disease process. Patients with life limiting illnesses bear the burden of increased discomfort and increased suffering. Nurses experience clinical practice issues and difficulties in the clinical setting during the delivery of comfort and symptom management. These issues
The purpose of this assignment is to demonstrate understanding of long term conditions and palliative care. Nursing care in general entails holistic care and collaborative care of individuals of all ages, families, groups and communities, whether sick or well (Royal College of Nursing, (RCN) 2007). Better management of lifelong conditions has been the priority of the National Health Service since the 1990s. When long term conditions are managed well in the community, patients’ can live a quality life without visiting hospital frequently (RCN, 2011). In Britain, six in ten people are reported to be suffering from long term conditions that currently cannot be cured; and these people are often suffering from more than one condition that makes their care challenging. It is estimated that by 2030 the UK will have double the number of people aged 85 years or over, who are living with one or more long term condition (Department of Health, 2014).
Briefly describe the patient and his/her situation, diagnosis and prognosis, brief history of the disease, and how/why the patient entered palliative-focused care.
Hospice is compassionate care provided to patients facing terminal illness or illness for which there is no cure. These patients are diagnosed with an illness from which they will never recover and usually have a life prognosis of six months or less (Hospice Foundation of America, 2014). The goal of hospice care is improving quality of life and managing the symptoms of disease and the dying process. The care hospice offers is focused on pain management and emotional and spiritual support for both the patient and family (National Hospice and Palliative Care Organization, 2012). Hospice care can be provided in many different settings, often the patient’s own home. Hospice care can also be provided in hospitals, nursing homes, long-term care facilities and free-standing hospice centers and is available to patients of all ages (NHPCO, 2012). A patient receiving care in a hospice program has a team of healthcare individuals that can consist of the patients own physician, nurses, home health aides, clergy, social workers, and speech and physical therapists (NHPCO, 2012). Usually, a care plan is developed by the hospice team and care of the patient is provided by family members with the support of the hospice staff (NHPCO, 2012). Nurses make regular visits to the patient and family and are on call 24/7. Once enrolled in a hospice program hospice covers everything that will be needed to care for you, from medications to manage pain to
Palliative care is a relatively new concept, stemming from the hospice movement of the 1960s. This type of care focuses on the quality of life of its patients at any time in their treatment process. Palliative care is a concept that is often used synonymously with hospice care. Although it can be congregated with hospice care, they are not the same thing. Thus, it can easily be misunderstood. Sherner (2015) explains that both clinicians and people alternate palliative care and hospice. Unfortunately, she says, these people believe that palliative care implies the patient is refusing curative care. The purpose of this analysis is to explore the concept, clarify the meaning, and differentiate the concept of palliative care.
Doctors, nurses and other healthcare professionals: fill the treatment gap to increase treatment options for more people and
Since the turn of the 20th century, modern medicine has made significant advancements in treating the progression of disease. Diseases such as tuberculosis, pneumonia, and several cancers are easily managed in today’s medical community. Yet, just a century ago, those diseases would ensure a swift and unfortunate demise. Since the mid 1960s, the emergence of technological advancements and treatment modalities has increased the U.S. population’s life expectancy. Presently, life can be extended for years due to the development and use of ventilators, gastro-intestinal tubes, and hemodialysis in terminally ill patients. With of the spark medical innovation, an unanticipated dilemma has developed within the holds of modern medicine and the U.S.
Before beginning, I would like to preface my remarks with one disclaimer. I am currently an Assistant Professor of Medicine, on the faculty at the University of Virginia School of Medicine. Additionally, I serve as Medical Director of our in-patient hospice and palliative care unit. Moreover, I serve on the board of our local hospice organization, Hospice of the Piedmont, where I also serve as Associate Medical Director. Though my work with these organizations has greatly enhanced nd deepened my commitment to the care of the terminally ill, I in no way claim to speak for or on behalf of any of the institutions for which I serve. The opinions expressed below and in my written testimony are entirely my own.
Rapid and dramatic developments in medicine and technology have given us the power to save more lives than ever possible in the past. Medicine has put at our disposal the means to cure or to reduce the suffering of people afflicted with diseases that were once fatal or painful. At the same time, however, medical technology has given us the power to sustain the lives (or some would say, prolong the deaths) of patients whose physical and mental capabilities cannot be restored, whose degenerating conditions cannot be
In understanding the benefits that hospice provides and the exceptional care given, take this next story about a man who was healthy, but his health took a turn for the worst. “John F. worked as a hard rock miner during his early adulthood, and then as a postal carrier until retirement. Even in old age, he remained a strong 6'4", 225-pound man who enjoyed deep-sea fishing. Two days after his seventy-ninth birthday, John was diagnosed with glioblastoma and offered a poor prognosis. He was recommended for hospice care, and upon admission, complained to a nurse, "After I die, everyone's going to drink my best liquor." Shortly thereafter, John gave a party for 200 relatives and friends, helping them finish off all the liquor he had saved over
Hospice is a component of palliative care. A person does not necessarily have to be dying in order to see a palliative care specialist. This is where the service is often underutilized in the hospital. In the 18 months I have been a nurse, I have cared for many patients with chronic illnesses who have dealt with symptoms that have severely impacted their quality of life. Most of the time, it seems as though the patient’s care providers are interested in treating the patient’s acute problems. My experience has been that the symptoms are often overlooked or are being treated in a manner that is to the dissatisfaction and discomfort of the patient.