Kristen Isgro highlights the challenges that the mothers and caregivers go through on a daily basis. Three groups of women, ages ranging from 33 to 66 and all having a child with Down syndrome, discussing the issues such as how they advocate for their children. They also discuss what they have learned from experience dealing with health care providers and educators, and deal with how their children are viewed in different settings. Caring for a child with Down syndrome is difficult and it is up to the parents to be the ambassadors, medical experts, health coordinators and whatever else the child may need (Isgro, 2013.). How they get treated may due to how they are portrayed in media. However, these women learned that they can make online
Did you know that close to 6,000 babies are born with Down syndrome every year in the United States? The most common type of chromosomal condition is Down syndrome and there are a few different types of this condition, along with, several different traits that are displayed with this condition. I have always been interested in the topic of Down syndrome and thought it was a great idea to study more about it for my speech. First, I will tell you about what Down syndrome is and who discovered it. Second, I will talk to you about some symptoms and characteristics of this chromosome disorder. Third, I will discuss the 3 different types of this condition, and lastly, how they diagnose Down syndrome prenatally.
As a child, Down syndrome was a part of my everyday life. I was watched after every day for the first ten years of my life by a women who was also looking after her sister who had Down syndrome. To me it was nothing unusual. It wasn’t until about eighth grade that I realized that to other people it wasn’t normal, it had a negative connotation. Growing up around a person who has Down syndrome made me see things differently than others. Once I realized not everyone else’s perspectives were the same as mine I became really aware of how others treated and reacted to people with Down syndrome. Its years later and I came across a story told by a women named Bethany Van Delft about Down syndrome.
There are many people with permanent disability’s that contribute to our society in very useful ways. In most cases, these people are viewed as being courageous. This kind of a reaction is typical but not always honest. There are a lot of people are uncomfortable around those that are considered “less than normal”. In her article The Abortion Debate No One Wants to Have, Patricia Bauer writes about Down’s syndrome and abortion. Bauer is a former reporter and bureau chief for the Washington Post.
Do you have a family member with Down syndrome? Neither did Esther Gomez-Nieto, until 15 years ago when her grandson Alexander was born. In fact, she knew very little about Down syndrome at all. Years ago when Esther emigrated from Cuba, she had no idea the eventual path her life would take. She got married, had kids, then returned to school later in life, and became an educator and a grandmother. However, her most significant contribution to the world began when she founded Alexander’s Angels, Inc. in 2007, an organization for Down syndrome advocacy, service, and research.
Down Syndrome is “a genetic disorder caused when abnormal cell division results in extra genetic material from chromosome 21. This genetic disorder, which varies in severity, causes lifelong intellectual disability and developmental delays, and in some people it causes health problems.” My cousin, Brian, has Down Syndrome and has been one of the biggest blessings in my life. On Sunday October 9, 2016, in Peoria, Illinois, I volunteered at the Heart of Illinois Down Syndrome spaghetti dinner. The food is donated from LaGondola Spaghetti House. There is a live raffle, as well as a silent auction. Throughout the afternoon and evening, there is a 50/50 raffle along with live entertainment. This is a non-profitable fundraiser. The money that is raised goes to the Heart of Illinois Down Syndrome Association to support: Support and Advocacy, Resource Library, Conference Stipends, Learning Program, Recreational Scholarships, Monthly Newsletters, New Parent and Grandparent Packets, Family Networking Opportunities, Quarterly Social Events, Speaker on Disability Issues, New Parent Open House, Workshops, and Collaboration with Service Agencies.
What are the some of the challenges encountered in a Down Syndrome baby, and why are these
Luke Zimmerman, who plays on “The Secret Life of an American Teenager” and “Glee”, is a famous celebrity that is diagnosed with Down syndrome and he is 35 years old and has been involved in early intervention programs from the time he was two weeks old. In this report, you will learn about certain things having to do with Down syndrome. Such as the basic description, the background and history, and the complications for the kids who have Down syndrome and the parents of kids who have Down syndrome. Down syndrome is a chromosomal condition of chromosome 21 that causes intellectual and developmental problems.
I am working with children from birth to three years. The big challenge for me this week is to get all the required paperwork done, but I have trouble completing these papers. As a result, I have to change the place and my supervising professional, and that is hard to me especially when I completed the paper getting started and the interview with my old supervising professional. Now, I have to find my new supervising professional and to do all the required papers for getting started. I finally met with the principle of the new place today and she told me that they just have one child who diagnosed as having Down syndrome. In fact, as I understood that I have to work with more than a child and that is not available in the new sitting.
There is no single, standard treatment for Down syndrome. Treatments are based on each person's personal needs, limitations, and strengths. A child with Down syndrome would likely receive care from a team of health professionals, which includes physicians, special educators, speech therapists, occupational therapists, physical therapists, and social workers. “Early intervention” refers to a range of specialized programs and resources that professionals provide to children with Down syndrome as well as their families. A variety of therapies can be used in early intervention programs to promote the greatest possible development, independence, and productivity. Some of these therapies include physical therapy, speech-language therapy, occupational
There’s over 13,000 people in Australia that have down syndrome in our modern day. The quality of life for people that have down syndrome can be drastically improved by meeting special health care needs. People with Down Syndrome can achieve their optimal quality of life through parental care and government support, medical guidance and community support systems like inclusive education at all levels. Genetic testing is a medical test that identifies changes in chromosomes and genes. In this article I will be telling you why genetic screening is very important if you are wanting to know if your child has down syndrome. Over this article I will also mention genetic counselling, genetic counselling is a communication process which helps families,
‘’Down syndrome is a type of mental retardation caused by extra genetic material in chromosome 21’’ (8), Down syndrome can cause a number of medical complications (6). Some of these complications are more serious than others, but most of them can be treated (6). Although Down Syndrome patients do not live for a long time, but their short life span is challenged with many critical problems. The life expectancy of people with Down syndrome increased dramatically between 1960 and 2007 and in 1960, on average, persons with Down syndrome lived to be about 10 years old; however, in 2007, on average, persons with Down syndrome lived to be about 47 years old (7). Furthermore, Down syndrome affects the patients life mentally, socially, and physically.
Pregnant women of advanced maternal age, during routine prenatal care, are offered genetic screening and testing for chromosomal anomalies. Misconceptions exist with genetic testing. Many women are misinformed about the risks of testing. The fear of testing, implications, results and miscarriage exists in many women. The Global Down Syndrome Foundation and the National Down Syndrome Congress in an effort to provide comprehensive information to women, created the Down Syndrome Prenatal Testing Pamphlet., a commonly used resource. Risks are generally associated with advanced maternal age, already having a child with the condition and being carriers of the genetic translocation for down syndrome. The global Down syndrome foundation addresses common misconceptions surrounding people with down syndrome relating to their physical and mental capabilities, and early demise. Common misconceptions affecting the family unit listed and addressed by the foundation include the potential of a ruined marriage and potential for down syndrome children to negatively impact siblings. Patient education and informed consent are required before genetic testing can
The population increase for adults with down syndrome is reflective for medical advancements over the past thirty years (Matthews). Medical researchers are trying to uncover more details about Down Syndrome since the population is increasing. Many people might think that there might be something wrong with the parents since the population of having Downs is more increased from over the
This study aims to relay the experiences of a parent who has a child with Down syndrome to people who are not aware of what they go through. The researchers seek to improve the general knowledge of the public about having a kid with Down
The recovery process is life long and although there are some full functioning Down syndrome patients there are others who require daily care and observation. Individuals with Down syndrome can be identified by their features. Down syndrome has typical physical and mental characteristics, but only seldom all of them or even most of them are found in one single person. If we study the character of children with the syndrome, we will find they have a pleasant and convenient temperament and a special character. They are friendly, sensitive and have a sharp and developed emotional intelligence. These traits assist them in fitting in as a pat of society and the community rather successfully. The discernible differences concerning the medical condition and the developmental level between Down syndrome children are caused, among other things, by the different medical treatments and the support of each child's environment. Support medical, educational, environmental can bring many improvements in the children's function, allowing them to extract their maximum potential and increases their chances to live a rich, independent community