Genetic Testing Helps Iceland to Become Down Syndrome Free
Some might say in response to the above announcement, “This is positive medical news—both for Iceland and the world. Nothing here should concern the American public. Genetic testing for abnormalities saves children from a life of significant disability and spares their parents painful stress. The subsequent abortions avoid a wretched existence for the children and improves the quality of life for their surviving families. That is not genocide; it is compassion and mercy. Moreover, it relieves both the parents and society from having to shoulder severe medical expenses for care. That reduces insurance rates and liberates medical resources for those who really need them. So
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They should not receive criticism but love.
What deserves the rebuke? It is the system—with all of its subtle pressures—that promotes eugenic genocide. That is what is being done, and that is the real enemy. For hidden within this system lurks a sinister, half-conscious, genetic-selection system. If awakened fully, it will snap eagerly to attention to do its job. What is that? The passion to play god, expressed in the arbitrary elimination of entire people groups deemed aesthetically undesirable and, therefore, less than human. It is the opening shot in a war—a war over who is worthy of birth (humanity) and who is not (non-human garbage).
How could that be?
What expert can assure that Iceland’s focus will not broaden to include other genetic traits that have nothing to do with disability but are just unfavored socially? The precedent has been set. If history is any guide, that is precisely what will happen. Gender is not a disease, but sexual selection is already an international problem. Moreover, advocates for the disabled currently sound the alarm for the future, such as Lloyd Lewis (president of the Colorado Cross Disability Coalition). In an article for the Denver Post, he asks where genetic testing might lead:
Such testing to remove “abnormalities” will clearly not stop at DS (Downs Syndrome) or other conditions such as spina bifida. Ultimately, the aim will be to detect all
The Human Genome Project is the largest scientific endeavor undertaken since the Manhattan Project, and, as with the Manhattan Project, the completion of the Human Genome Project has brought to surface many moral and ethical issues concerning the use of the knowledge gained from the project. Although genetic tests for certain diseases have been available for 15 years (Ridley, 1999), the completion of the Human Genome Project will certainly lead to an exponential increase in the number of genetic tests available. Therefore, before genetic testing becomes a routine part of a visit to a doctor's office, the two main questions at the heart of the controversy surrounding genetic testing must be
False positive prenatal testing results lead to hundreds of thousands of abortions each year; even when the baby is healthy. Lastly the society often presumes that people with genetic disorders could not get a job and fulfill their lives, however from Waterloo’s 10 year research; it is clear that they could get a job and graduate from high school and fulfill their lives just like everybody else. It is time for the society to stop performing prenatal testing. Further, change and accept people with genetic disorders, because all humans are born
What are the most serious genetic diseases and what are the pros and cons of genetic testing?
Genetic testing has brought about many changes in the way many couples look at conceiving and raising families. Through genetic testing you are able to screen for the increased chance that a fetus may have one of many congenital disorders, or even identify gene changes that are responsible for a disease that has already been diagnosed (Genetic Testing, March 2015). Unfortunately genetic testing is not always exact, in some cases giving parents false negatives or false positive results. Even if the results are accurate, there is the burden of knowledge once you know the results indicate a genetic abnormality such as Down’s syndrome. While caring for a 2 year old male patient with developmental delays and anotia, I learned that genetic testing had been started but never completed on the child. Genetic testing could help to identify genetic disorders that led to the child’s developmental delays and possible future disorders that may develop. The ethical dilemma I will be discussing to the ANA Ethical dilemma of the impact of informed consent of genetic testing on children for adult onset diseases and disorders.
In Improvements in Prenatal Genetic Testing Raise Ethnic Issues, R. J. Crayton produced an article about prenatal testing and whether or not parents should be allowed to have these tests done. First the situation of a high risk baby who will have a disability or defect after birth, so the parents decide to abort the child is being viewed as an inequality to the disabled community. Secondly, certain adoptions are put on hold since the biological parents chose to not carry the unborn child through the entire pregnancy, however, the surrogate mother wants to carry the child through the entire term. Lastly, research shows that the results can be a false positive, so unintentionally the parents decide not to keep the unknown, but healthy baby.
Genetic testing has become a highly controversial issue among both the general population and the scientific community. It is a process that exposes a person’s entire genome sequence, allowing it to be read and evaluated to identify potential risks for genetic diseases or diseases that could be passed onto offspring (Holt Productions, 2012). With thousands of genetic tests already being used, and more being established, it seems logical to put this growing technology to use. Some agree that it is a person’s right to know and understand his or her genetic makeup. However, others argue that, despite the benefits of genetic testing, caution should be used to carefully inspect the risks associated with this new technology.
The last 150 years have seen the origin of—and rapid expansion in—human knowledge involving the nature and mechanisms of trait and disease inheritance in human beings. Advances in genetic research hold great promise for the future development of effective prevention and treatment strategies for a great many, often devastating, heritable conditions. However, these advances also raise a series of policy, legal and fundamentally ethical questions concerning what we should and should not do with the knowledge and technology we acquire. These questions are numerous and both imminently practical and speculative, ranging from the exhausted, yet still largely unresolved, question of the moral status of the human embryo to fears about slippery slopes into a Brave New World or Gattaca-style dystopic future characterized by designer children and a genetic underclass.
Probably, applied genetics' most impacts on society are as a result of genetic tests. In general, genetic tests seek to detect some feature of a person's genetic constitution. This feature can be a disease causing mutation or a marker DNA sequence used to detect presence of another gene. Obviously these procedures used for testing the status of DNA, RNA or chromosomes are included in genetic tests. What is more it is possible to include some protein based tests and classical medical examinations when they aim to detect inheritance of a trait. Genetic tests have been divided into four categories in this text, and they will be examined in greater detail later. These categories are:
I think in an advancing society it is necessary but, with limitations. A person has a right to know about their future children and is entitled to avoid anything they may consider to be too troubling to handle; however, patients should be made aware that the results may be negative or defamatory. But, access to this kind of information requires a serious amount of sensitivity and the person handling it should be aware of this and understand that the only ethics that have entitlement in this situation are the subjects’ . I think it’s all very delicate and subjective. There should be many considerations when having a child or dealing with one’s genetics but, the most important one is quality of life. As long as the ethics support that they are not only beneficial but,
The kindle edition of The Social Life of DNA: Race, Reparations, and Reconciliation, written by Alondra Nelson, is an engaging book that takes us through the timeline of genetic testing, and how it is being used and applied in society. Nelson rights about the importance of DNA and how genetic testing has helped us understand the simple social and political conflicts that can affect the future. The book depicts DNA as a powerful tool and I think The information it the book is crucial to understanding the different aspects of genetic testing. Although Nelson's view on genetic testing is not the science behind the topic, it is a fascinating angle on it through a world view.
The Human Genome Project introduces significant scientific findings to the world, but raises a lot of controversies. Many of these controversies concern the application of this new scientific finding and its ethicality. Genetic information from a project, once aimed towards mapping the human genome in hope for curing diseases, are now being used in businesses. It shouldn’t be permissible for employers to require that all employees, as well as potential employees, be screened for genetic vulnerabilities and to use the results of such screening when they make hiring, retention, and job assignment decisions. These genetic vulnerabilities may include diseases, unsuitable personality traits and other traits the company deems undesirable. Employees shouldn’t be judged by their genes, because the results do not adequately speak for what the employees will do in life, the employee’s position in the society, and the employee’s financial standing. Genetic testing should be an option for the employees to decide on job assignment rather than influence the hiring decisions of employers. Genetic testing only shows genetic potential, not potential growth. Conducting genetic testings on employees infringes on their privacy and encourage more social gaps with genetic classes.
With so many advances in medical technology, ethical dilemmas often accompany the advances. Genetic testing continue to be one of the most heated ethical debate in today’s health care. In 1963, newborns began to be tested for phenylketonuria (PKU), an amino acid buildup in the blood that causes mental retardation. This is the earliest genetic testing documented in the health care of the United States. Today, more than 2,500 available genetic testing are available to the public where the lowest cost reported is a DNA home kit for one hundred dollars. In 2013, the famous actress, Angelina Jolie, undergone a preventive double mastectomy after the BRCA genetic tests that revealed she was at a high
In this critique, I will be discussing my opinion on Mr. Pollard’s article about genetic screening. These genetic screening began in the 1960’s and since then they have found themselves in the middle of major controversy throughout the years (Press, 2008). Genetic screening a series of test performed when a mother is pregnant in order to figure out whether or not her child may have a developing disorder. Some genetic screening are also performed after the baby is born. Genetic screening can play a major role in personal parenting decisions and medical treatment if and when deemed necessary. Although genetic screening has much debate surrounding it, testing for any potential disorders and diseases can be live saving.
Breakthroughs in genetics have allowed parents to test their babies DNA in the womb for potential genetic diseases and disorders. The test is done by isolating the babies’ genetic material that is coursing through their mothers veins through a blood test on the mother. After the genetic material is found it is put under multiple diagnostics to determine if the baby has any of a wide variety of conditions such as Down’s syndrome, Tay-Sachs and cystic fibrosis. This Prenatal Genetic Screening can also tell many different traits on the developing baby such as its gender. Many believe that this procedure to be unethical but genetic screening can do more good than harm.
Type of lifestyle, diet, and mindset are some examples of choices a person can make to better his/her life. Race, height, and genetic disorders are some characteristics that we cannot control. However, for genetic disorders, there are options to lessen the likelihood of having a child born with a disability. Taking prenatal vitamins, attending routine checkups, not drinking alcohol and not smoking are just a few proactive options that can help prevent an abnormal pregnancy. Another option to ensure a safe pregnancy is to have prenatal genetic tests (PGT) done. The use of PGT’s have spanked many controversies over the years simply due to individual's morals differing. Those who are not in favor of PGT’s believe that these tests can promote