Why Is Henrietta Lacks Unethical

Henrietta was discovered to have HeLa cells. These cells were cells that created an immortal cell line. They grew and reproduced like wildfire giving humans a limitless supply of human cells for which they could experiment on. These cells were used in labs across the globe and were used in some lifesaving medical discoveries. These cells were obviously an amazing discovery However there was one major problem with this. Henrietta’s family was completely unknowing of this or even knowing Henrietta’s cells were being used for a long time.

After Henrietta’s death, her family heard about her cells. The information was confidential, but a researcher from The National Cancer Institute let the secret slip. Eventually, Scientists began asking the Lacks’ for permission to draw their blood for more tests. The doctors discovered that the HeLa cells had infiltrated various cell lines from across the world, and wanted to contain them for experiments. The Lacks family did not understand the labs and tests that were occurring.

“The Immortal Life of Henrietta Lacks” by Rebecca Skloot is a medical biography that has forced me to question the ethics of the methods used in past scientific discoveries. HeLa cells are an immortal cell line that has been a major tool used in biological discoveries; such as the vaccine for polio, discovery of genetic diseases, cloning, and HIV and cancer treatments. Although most of the general public rarely has heard of HeLa cells, they receive the benefits of the medical research HeLa cells have been instrumental in creating. Even those who know of HeLa cells most likely did not know they originated from a poor, black, uneducated woman named Henrietta Lacks, before the release of Skloot’s biography. Lacks had a fatal case of cervical cancer

Henrietta Lacks died never knowing the impact her life would have on the world of medicine. A poor, black woman living in Baltimore, Maryland in the 1950s, Henrietta was diagnosed with cervical cancer and died only nine short months after her diagnosis at the age of thirty-one. The mother of five children, Henrietta most likely died thinking her family would be her legacy. Little did she know her doctor at John Hopkins hospital, George Gey, had taken some of her cells before she died. With Henrietta’s cells, Dr. Gey was finally able to achieve a goal he had been working toward for decades – creating the first line of immortal cells (Freeman). These cells have been used for countless scientific research and have solidified Henrietta Lacks’ place

Both the novel and the case of John Moore share similar ethical issues of privacy and lack of informed consent. According to the book In 1951 Henrietta Lacks walked into a Johns Hopkins Hospital. It was later confirmed that she had a type of cervical cancer called epidermoid carcinoma. A doctor at Johns Hopkins took a piece of her tumor without telling her and sends it to a scientist

Due to the fact that Henrietta’s cells were the first human cells grown in a lab that did not die after a few cell divisions, they could be used for conducting many experiments. Her cells were considered “immortal”. This was a major breakthrough in medical and biological research. One major breakthrough was the development of a vaccine for polio. To test the vaccine the cells were quickly put into mass production in the first-ever cell production factory. Another enormous breakthrough was the successful cloning of human cells in 1955. Demand for the HeLa cells grew quickly. Since they were put into mass production, Henrietta’s cells have been mailed to scientists around the globe from “research into cancer, AIDS, the effects of radiation and toxic substances, gene mapping, and countless other scientific pursuits.” (Smith, 2002, "Wonder Woman: The Life, Death, and Life After Death of Henrietta Lacks, Unwitting Heroine of Modern Medical Science".) HeLa cells have been used to test human sensitivity to tape, glue, cosmetics, and many other products. Scientists have grown some 20 tons of her cells, and there are almost 11,000 patents involving HeLa cells. (Batts, 2010)

Bobette met a research scientist who said he had been working with cells from a woman named Henrietta Lacks, Bobette’s reaction can be seen here, “But Bobette kept shaking her head saying, ‘how come nobody told her family part of her was still alive?’ ‘I wish I knew’ he said. Like most researchers, he’d never thought about whether the woman behind the HeLa cells had given them voluntarily’” (Skloot 180). The research scientist she talked to, along with countless other scientists, had never thought about the woman behind the cells and this is part of the reason nobody ever told the family about the cells. Bobette finally found out about the HeLa cells after twenty-five years of no information and a revolution in medicine caused by her late mother-in-law. But it did not get better for the Lacks family after discovering Henrietta’s cell line. Every time one of the Lackses asked questions about Henrietta’s cells, the professionals would never take time to answer their questions, to help them understand what had happened at Johns Hopkins with the cells, or to explain to the Lackses what Henrietta’s cells accomplished. The doctors did not care about the patients and their families, but more about what was in it for them. The doctors did not look at the situation ethically by not telling the family about the cells. They also violated privacy values, which are now rights. They

The scientific community is culpable of viewing Henrietta Lacks as an abstraction rather than a human being in that they disregarded her right to privacy in extracting her cells

The main ethical issues in this case is that researches at Johns Hopkins Hospital used Henrietta’s cell in multiple researches and send her cells to other researchers around the world without her family’s consent. Moreover, the Lackes themselves were used in medical research without informed consent, and Henrietta’s medical records were release to journalists without her family knowing.

The truth is the doctors that took Henrietta’s cells were doing it for a good cause. They didn’t do it to ruin her and her family’s life, they did it to help people and save lives. There were no laws prohibiting the taking of one’s cells, in fact in a later Supreme Court of California ruling, it was actually defended. When tissues are removed from your body, with or without consent, any claim to ownership

The Immortal Life of Henrietta Lacks focuses on many issues that Henrietta and her family have faced over the years resulting from the discovery of HeLa cells. One such issue that was recurrently present was the ethical issue of informed consent, or the lack of it, in the Lacks’ case. In the beginning when Henrietta was first being treated with radium to kill her cancerous tumor, her primary doctor, Dr. TeLinde, took a sample of the tissue and sent it to Dr. Gey, head of tissue

In the example with the HeLa cells, a great debate was raised when the book The Immortal Life of Henrietta Lacks was published. The debate centered around the lack of information of where the cells came from, who should have known about the original harvesting, and the lack of compensation for Henrietta’s family once the cells started generating income. Also discussed was the tendency of the medical community to

The cells were kept alive long enough to allow the researchers to go in depth with studies and examinations. The ethical issue was, like stated before, that the Lacks family did not give physicians permission to take samples of her cells. But during that time permission was not required and that is why they were able to take the samples. In the court case of California v. Regents of UC in 1990 it was ruled that a person’s discarded tissue was not their property and could be used. The ethical concerns are still around today because recently researchers published their results and this affected the family. Things like lack of respect for the Lacks, just and even race and social class come into the conversation because of the use of her tissue without her consent.

Rebecca talks about whether or not people should have the rights to their own tissues. She points out two issues, consent and money. In the past there was no informed consent, so the doctors and researchers felt free to use tissues in whatever way they wished, with little concern for patients' rights. Nowadays there is a different system, and it's required by the law to ask for a patient's informed consent.mThe money issue is a question of whether doctors should be required to tell patients if their cells or tissues are going to be used for commercial research, and what rights those donors should have. Later on, “scientists sequenced Henrietta Lacks's genome and made it public, without asking the family's permission” which was just another way in which the family was violated and looked over (Silver). Apparently Henrietta didn't get her rights, and neither did her children. Any way we look at it, if the family had received any benefits from the cells, it

Third, although the public health discovery of the HeLa cells improved the quality of life for many families/communities and the overall nation, it did not positively influence the quality of life of Henrietta Lacks or her family. Henrietta Lacks cells were not only taken from her body once and sent to unauthorized holders, but a second time after she passed away from cervical cancer. Neither Henrietta nor her family had given consent for Dr. Gey or the coroner to remove cells from her body and send them off for research