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Dann Kyte Case Summary

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“Patient DeAnn Kyte, forty-four years old, Caucasian, female.” That is how I imagine her doctors begin to dictate their notes from her chart. DeAnn Kyte is a patient diagnosed with Chronic Fatigue and Immune Dysfunction Syndrome. She is also my mother. My mom was a labor and delivery nurse for almost fifteen years before she became ill. Her initial symptoms were primarily extreme fatigue and fogginess which were quickly dismissed as being caused by exhaustion. The fatigue and fogginess persisted and began to interfere with her ability to work. She could no longer keep track of the fetal monitor strips and chart them on the same computer screen; something which she had been doing every day at work for years. She knew she was sick. That was …show more content…

In that time, a treatment plan has been formulated and is as follows: take the medicine prescribed, eat healthy, exercise daily. This treatment plan is lacking in ways to actually improve daily quality of life and is a result of hurried, inattentive, and prejudiced physicians with whom my mother has a troubled relationship. In an article on concordance, Bissell, May, and Noyce emphasize the importance of the patient’s experience, goals, and knowledge in interactions between doctors and patients (Bissell et al, 2004). The treatment plan does not acknowledge or address my mother’s experiences, goals, or knowledge of her disease. Her experiences with doctors has been disappointing at best. She recalls a former primary care physician who, after listening to her describe her symptoms and the way she felt, would pat her on the knee and tell her, “Well, you look pretty good so you can’t feel that bad.” In an appointment for a cyst on her knee, the doctor chastised her for being on a plethora of medications, saying she was too young to be having so many problems. Upon examining her cyst, he told her that the cyst could not be causing the amount of pain she was having and if she really wanted it gone, she needed to “Give it a good ol’ whack with a Bible.” He further accused her of doctor hopping and drug seeking before sending her out of his office in tears. The doctor she saw specifically for pain was “too busy” to administer the …show more content…

CFIDS is an invisible disability. Most days, my mom does not “look” sick, but looks have nothing to do with disability. It is incredibly common for my mom to get dirty looks from people when she parks in a handicapped parking spot because they cannot see nor do they understand that even getting out of bed and driving to the location is already exhausting and the extra energy it takes to walk from the parking lot to the store can mean the difference between being able to function the next day or being so exhausted that going to the restroom is difficult. I vividly remember coming out to our car after going into the pharmacy with my mother and a note was on the windshield. A complete stranger felt so strongly about my mom parking in a spot she legally has a right to, that they wrote a note saying that she should be disgusted with herself and shame on her for taking the spot away from people with “real” disabilities. I have never seen anyone as defeated and hurt as my mom was right then. In Kleinman’s The Illness Narratives, stigma is a result of both society’s reactions to the illness and the person’s recognition of a stigmatized identity (Kleinman, 1988). The stigma is a result of how others shun those with certain diseases and how the individuals feel shame in response to the reactions of those closest to

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