Today, the Lupus Foundation of America announced the new research grants awarded to fund critical areas of research where gaps in the understanding and knowledge of lupus including; pediatric lupus, cutaneous (skin) lupus, mid-to-late stage translational research, adult stem cells, and neuropsychiatric lupus, which affects the brain and nervous system. The LFA National Research Program; Bringing Down the Barriers, Is committed to accelerating the pace of medical discovery in lupus and directing support toward promising areas of study where other public and private organizations have not focused their efforts. Several studies this year focus on areas of pediatric lupus research, including lupus nephritis in children, quality of life, and …show more content…
More than half (63) percent of respondents with lupus quit working or retired earlier than planned, about two-thirds (67 percent) reduced the number hours worked. And 51 percent of patients changed to a less strenuous job. Lupus can occur at any age, but appears mostly in young people aged 15 to 44-prime working years. Inability to work seems to weigh heavily on patients, emotionally and financially. For example, 82 percent of patients reported that not working makes they feel they are not contributing their fair share to the household, and 83 percent found it devastating to leave their jobs due to lupus. Many people with lupus say the disease impacts their productivity and has an undesirable effect on the Relationships with co-workers. In facts: 72 percent of patients admit they are not as productive as they could be at work as direct result of lupus. Approximately 80 of lupus patients say that their condition has caused them to take more sick days. 59 percent of lupus patients surveyed say they that other people think that lupus affects their reliability and dependability. About two-third (69 percent) of patients say they only tell a few co-workers about having lupus. It is important to reinvent yourself in meaningful ways when a chronic illness limit your original life
As a group, we have close personal connections to people that suffer from this disease. Our efforts are to raise awareness with students of the symptoms because people who suffer with lupus are among us every day and we cannot comprehend the struggle that they are going through. When creating the pamphlets that we will use to educate the masses, we will include stories of people who suffer from this disease. By including the personal testimonies it will allow students to understand how lupus affects the victim’s everyday life. Once students understand how painful it to live with this disease, they will be aware of the symptoms and be able to educate others. Grasping what people with this disease go through and what they suffer from, has motivated our group to inform others of how important knowing the symptoms of lupus and how important the quest for a cure is. The reasoning is that this is a genetic disease that is affecting 1.5 million Americans and a total of 5 million throughout the world, and there has yet to be a cure for this disease, just treatments to help the sufferers through their
Lupus is a rare and crippleing disease. This disease is as rare as it is hard to undertand. Lupus being a not well known disease is hard to pinpoint. This disease causes insufferable pain and body problems. Such a terrible disease causes syptoms like swelling muscles, joint pains, general inflamations, organ failures, and overall fatigue. Lupus is an autoimmune disease ( AKA the autoimmune sytem attacking itself). This autoimmune disease is most common in youge woman in birth bearing age. With little known reason
Joint pain is common in Lupus. Patients suffer from arthritis-like pain, swelling in the joints, redness and stiffness. These symptoms involve one or more joints.
Approximately 1.5 million americans (5 million worldwide) live with lupus, but lupus is more common in women of African American and Native American than Caucasian women. More than 16,000 people are diagnosed with lupus each year. Everyone can get lupus but it’s mostly common in women and the specific type of women is African American women. Lupus is a systemic autoimmune disease driven by the inflammation in the immune system. Women of color are 2 to 3 times more likely to develop lupus than a Caucasian women. 90 percent of the people diagnosed with lupus are young women. Black women are diagnosed at much higher rates and are more likely to experience complications from the disease. There should me more research done, they should spend more
The most common symptoms are fatigue, rashes, or joint pain. Other symptoms that might develop are skin problems, sensitivity to light, neuropsychiatric problems, fever, changes in weight, hair loss, and/or swollen glands. Some specific skin problems are skin rashes, i.e., the facial butterfly rash. Raynaud’s phenomenon is often common, affecting the fingers, toes, ears, or tip of the nose. About 90% of lupus patients have fatigue in various degrees. Symptoms depend on what body organs are affected and how seriously they are affected. This disease can cause problems in nearly any system of the body, including the:
Those symptoms are tiredness and fever, Pain in the joints, swelling/stiffness,A rash on your cheeks and nose that is butterfly shaped, skin injuries that look worse and become worse when under the sun, White or blue toes and fingers because of cold exposure or stressful periods, breath shortness, Pain in the chest and dry eyes. Your head deals with confusion, headaches, and memory loss. These symptoms usually worsen over time if not medicated. Sometimes if you don’t control your symptoms, it can lead to death. The Lupus symptoms will also put you at risk of getting a heart failure, anemia/blood clots, and lung inflammation. If it gets to the brain, it may cause headaches, mental problems, poor concentration, seizures, meningitis, or a coma. Women between the ages of 15-44 are 90% of the people with
Lupus is a disease that afflicts an estimated two million Americans and over five million persons throughout the world. Its symptoms are widely vary, often masking themselves as other ailments which make it difficult to diagnose. However, with more people aware of what Lupus is and how it can properly be treated and managed, it is very possible for a person with Lupus to live a normal, active, and healthy life.
Depending on your specific case of lupus, lifestyle changes just may be enough to control your symptoms. Doctors suggest exercising regularly, eating a healthy diet, and avoiding smoking. If lifestyle changes aren’t helpful for your case of lupus, medicines can be prescribed by your doctor to depress your symptoms. However no "magic medicine" will rid your body completely of this disease. Today, a new drug called Belimumab is in a clinical trial to treat lupus.
Lurking around the corner awaiting its next prey, Lupus will strike a person out of nowhere. Typically, Lupus searches for women and people of color. Lupus will aggressively attack the person’s body causing a profusely amount of pain, causing a ferocious load of fatigue, causing a domino effect of other disastrous maladies. Deceptive, Lupus masquerades as the other illnesses it induces; dubbing it the infamous “Great Imitator.”
Lupus is known as “the cruel mystery” in the world of disease/medicine. 1.5 million Americans are currently diagnosed with Lupus, with the number possibly being a lot higher since it is one of the most difficult diseases to diagnose in the WORLD (5 Million some form of Lupus)
People with lupus confront very different psychosocial and affecting difficulties, for example, living with the imbalance of the disease, signs and symptoms such as, weakness, body aches, depression, and stress (Agarwal 165). The main points about Lupus I'd like to discuss would be background information, kinds of Lupus, and how it affects social life. Regarding this, Lupus is a disease found commonly in African Americans, particularly women. Although, despite Lupus being regularly found
Most lupus patients are followed very closely by many different types of physicians and specialist due to the multisystem organ involvement. These doctors may include but are not limited to Rheumatologist who specializes in diseases of the joints; there are also Nephrologists the kidney doctor, the Optometrist doctor for the eyes, the Neurologist for the brain and central nervous system, the Cardiologist for the heart and the Primary Care Physician. All of these doctors work together to manage S.L.E. It literally takes a team to help the patient manage and cope with the changes someone with lupus will undergo throughout the entire disease process.
If a person has lupus there are places to get help. The Lupus Foundation of America provides a lot of help for lupus’ patients. For help you can write to them at: Lupus Foundation of America, 1300 Piccard Drive, Suite 200, Rockville, MD 20850.
In conclusion Lupus is definitely a very serious disease that we must learn more about. My great aunt had Lupus for over ten years and during that time suffered in ways no person should have to. She would fall down constantly and break bones. Near the end of her life, she would break bones doing stuff as simple as getting out of bed.
Seems Lupus is getting disobedient ... It’s time to teach it some discipline. But, before that you have to bring it in your life.