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Samantha's Disease In The Memory Book By Lara Avery

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In The Memory Book by Lara Avery, Samantha has always been socially awkward; however, after getting diagnosed with Niemann Pick Type C, she becomes insecure and unconfident. Niemann-Pick Type C, or NPC, causes her to experience memory loss, incoordination, blackouts, and other symptoms. To cope with her disease, Samantha starts writing in a journal in order to remember important events and memories. However, her closest friend and debate partner, Maddie, starts to drift away after learning about her disease. Samantha is in a similar situation with her boyfriend, Stuart, when they start having problems after she informs him of her disease. Critical Disability Theory examines of the representations of people with disabilities throughout literature …show more content…

First of all, Samantha comments on her outfit while dressing for a date:“This is an outfit that says, ‘I am just a normal, ambitious, laid-back young woman who does not have a debilitating disease.’ Right?” (144). When Samantha says she wants to look “normal” she gives her disability a negative portrayal, saying she wants to hide her disease from the public. This suggests that she denies the fact that she has a disease, representing disability as shameful or disreputable. When Samantha says a “normal” person cannot have a “debilitating disease”, she marks disabilities as undesirable or non-normative. Furthermore, Samantha describes her disability as “debilitating”, contributing to the stigma that people with disabilities are helpless or weak. The adjectives “ambitious” and “laid-back” are both associated with “normal” instead of her disease, giving the impression that people with disabilities are lazy or lethargic. Additionally, Samantha overthinks a text from Stuart before her date:“Oh god, he said, ‘See you in a bit.’ Okay, I will see him in a bit. I will see him in a bit for the second date of my entire life and perhaps the last because watch me forget my own name. Watch me enter the Canoe Club and everyone I know is there, like an intervention” (144). Avery employs anaphoras throughout the quote to demonstrate the overthinking that occurs in Samantha’s thoughts. One example of this is “See you in a bit”, the text sent by Stuart that she repeats in her head. This gives off a rambling effect that develops into a nervous tone, seen throughout the paragraph. This anxious tone indicates that although going on a date in general can be stressful, her disability adds another layer of anxiousness. Additionally, she states, “watch me forget my own name”. This demonstrates that she is nervous because of her disease, and fears that her disability will be the

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