Dercum’s disease (DD), known medically as adiposis dolorosa (which literally translates to painful fat) was first recognized by Dr. Francis Xavier Dercum in 1888. Though Dercum’s disease is its most recognizable name it is really a syndrome (a collection of symptoms that indicate a disease) and sadly, it being one of the rarer of the orphan diseases, there are not many medical professionals that even know it by any name let alone how to diagnose or treat it.
Dercum’s is known to effect the vascular and lymphatic systems. There are many symptoms that can present but the main indication of Dercum’s is painful growths in the subcutaneous fat. These fatty growths are called lipomas and can happen all though out the body and because they are so
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The Ice Bucket Challenge was a wonderful feat of awareness and fundraising for ALS. I marvel at the simple brilliance of using social media in the way they did and I am so happy that it was so successful. Now let me tell you all a secret. All of us suffering from other really rare and lessor known diseases had a thought or two go through our heads through the entire summer of watching video after video of friends, family and famous people drench themselves in ice cold water, “Where is our awareness? Where are our funds for research coming from? What about …show more content…
One disease it has a lot in common with is lymphatic cancer, but without having the malignant cells most doctors cannot justify to an insurance company that we would benefit from radiation. In all reality, we don’t even know if we would benefit anyhow because there is just not enough of us to do trials on.
I’m Tired of Talking and Not Being Heard
OK, I’ll admit, I love to talk. I love to write. I love to explain. In fact I have been told that I am a chronic over-explainer but some days I am just too tired of explaining just what is going on with me. One day I may be up and fine and another day I am out for the count.
For some reason I feel that if someone tells you they have cancer there is just that understanding and no explanation is needed. Since I love to explain so much, let me try to make this clear: If someone has a sickness that is going to be with them until the day they die, whether it is that sickness that is the cause of their death or something else, it remains a burden every day. Some days are better than others but it is still there insinuating itself in our bodies and waiting to strike again. Oh and usually it strikes with a vengeance if we mere sickly mortals think we have overcome it even for one single sunny
The ice bucket challenge is with cold ice & water because the water makes your bones shiver, which make your bones weak like one of the symptoms where your bones weaken. The challenge is when someone challenges you, you have 24 hours to donate $100 to the ALS or pour cold water with ice over your head. The challenge is 22.9 million as of August 19,2015. The challenge donates the money to research toward the disease. Steve Gilson was diagnosed with ALS in
If you or someone you love has cancer, the fear and confusion that follows can be overwhelming so understanding the basics of the disease can help. To understand the effect of these abnormal cells it helps to look first at how healthy cells function. Each of us are made up of
The ice bucket challenge seemingly drenched the world back in 2014. It involved dumping a bucket full of freezing ice water on oneself in order to bring about awareness for the disease ALS. One would then nominate others to do the challenge as well, whilst giving a monetary donation of their choice to the ALS association for research funds thereafter. The challenge is basically broken down into three steps: accepting the challenge from nomination, uploading a video of the person doing the challenge, and giving a donation on that person 's behalf. Even after the ice bucket challenge craze, many people nationwide are unaware of what the disease is actually about.Informed individuals know that ALS is a life-devastating disease that can immediately turn a person 's life in a completely different direction. This disease can cause immense amounts of heartache on those that are part of the patient’s life, especially on the own patient. A strong, independent, and healthy being can turn into an incapacitated and no longer self- sufficient person in only a matter of few years. Control of the body gradually becomes irretrievable, but the mind is always aware; as a whole, it can be thought of as being mentally imprisoned in a dysfunctional and foreign body, only being able see life pass away like water through their fingers. Given that there is a boundless range of information on the subject in terms of ALS, only so much can be covered to be able to be considered an overview. There are
Cancer has one of the biggest effects on the patients mental health but also the patients loved ones and friends. It is one of the hardest things to get a grip on when the doctor tells someone that they have cancer and a fifty-fifty chance of making it. "The disease can bring many changes-in what people do and how they look, in how they feel and what they value" (Dakota 4). It makes people look at the world and their lives in a different way, valuing now what they took for granted and seeing the bigger picture in every scenario. It is something that no one can actually brace, even after the doctor tells them. Through it all though, the person must remain strong and optimistic because the cancer can affect the person's moods and in return affect the outcome of the person and the chances of their making it
Furthermore technology contributes money and awareness for organizations. In the past there was an ALS Ice Bucket Challenge, which is where people pour buckets of ice cold water on their head in order to spread awareness for ALS. “2.2 million twitter
Being diagnosed with cancer can be very scared because the person that is been diagnosed is not prepared to receive the tremendous news. When Henrietta find out that she had cervical cancer, she did not tell anyone and went on with her day as if nothing had happened. Rebecca Skloot states that Henrietta told “Day and the children not to worry,” “A int’ nothing serious wrong, she said““Doctor’s gonna fix me right up” (Skloot 31). In the article “Keeping Cancer a Secret” author Dr. Mikkael Sekeres ask his patient “how are they [children] dealing with your diagnosis” (1). The reason he chose to not tell was that this son was away in duty on
The challenge has taken off and is know across the nation, maybe across the world. “Gleason said, ‘We see thousands of people participating and it’s raised more awareness of the disease that anything in the history of ALS since Lou Gehrig’s announcement 75 years ago’ “ (Brodear). Many famous people have also participated in the Ice Bucket Challenge including Jimmy Fallon, Martha Stewart, Oprah, Bill Gates and Satya Nadella. “The ice bucket challenge spread across culture and politics, backyards and boardrooms”
My condition brought me into a situation, were i had no other option than getting marihuana for medical purposes, “- some people actually need to ask for the doctor to cure the symptom…when unfortunately the cancer doesn't go away-”. I was spending money on a variety of medicines, until my kidney failed. The moment when you realized medicines you take to save your life are also killing you at the same time, you are screwed…Cancer does not only kill you physically it kills you mentally too. After a chemo, you suffer a phycological downturn that doesn't allow you to spend time with your family. Cancer did not kill me yet, but it made me stop enjoying life.
The ALS ice bucket challenge is one of the most known movements in the US. It raised more money than they even imagined. The ALS association raised over 115 million dollars over two years. The movement is one of the most successful movements in the US as well. The movement made a legacy over the US and other countries spreading almost worldwide
It is hard enough for a cancer patient to deal with everything have going on after they are told they have cancer, but it is devastating to have to tell the ones you love most about your diagnosis. In Stuarts case, he had an
When she died five years after first symptoms ,the cancer had spread throughout her body over those five years. My mother was very depressed
Thesis: The knowledge of understanding what skin cancer is and what to look for can
The study conducted provided information that is completely necessary in the comprehension process of this particular undefined disease of the integumentary system.
One of the many of the world's problems is sickness, but some diseases have no cure which can result in death. Cancer is a code we just can’t seem to crack and it has taken hundreds of thousands of lives. Everyone knows of someone who has died of or had cancer in their life. It’s a hard sickness to beat but many strong people do beat it, some being children. I have personally seen my family members go through this and of course, some didn’t make it out alive. If you have seen anyone who has cancer, you’ll see how it can take over your body, how that person doesn’t even look like themselves anymore.
But to be shortly put, I actually just hate explaining things. Explaining myself, explaining my actions, explaining how I feel, explaining my love experiences and explaining how the first person I genuinely love are just as jumbled up as I am — unfortunately? No, I guess more like, apparently.