Running head: Neonates: A Vulnerable Population for Research
Neonates: A Vulnerable Population for Research
Elizabeth Smith
Evidence Based Practice in Nursing
Professor Paula Wellde Abstract
Neonates are a vulnerable population for research studies. They are unable to give their own voluntary, informed consent. There are special considerations to obtaining informed consent of neonates with strict guidelines from Health and Human Services, splitting studies into 4 levels and which includes parental permission. The ethical issues surrounding research studies can be navigated using the principles of respect, beneficence, and justice. Nurses involved in research studies with these vulnerable populations have certain implications to them. Neonates: A Vulnerable Population for Research
There are many populations that are vulnerable in a research study including: pregnant women, fetuses, neonates, children, elderly, prisoners, veterans, racial minorities, mentally or physically handicapped, and educationally or economically disadvantaged. Respect, beneficence, and justice help nurses, doctors, and parents decide on the right course of action for neonates. It’s important to weigh the risk versus benefit to each study. There will be special considerations for obtaining informed consent because the subjects involved cannot give it themselves. For neonates informed consent comes from the parents and also includes strict guidelines from Health and Human Services.
Discuss
The United States of America is the place known to many as the land of the free, home of the brave, and the place to start a better life. With any place that has good qualities, some have not so good qualities. The homeless population in the United States is at a staggering high, and many individuals are suffering because many lack employment/financial resources, housing resources, support from family and friends, and others negligence; such as natural disasters or fires. Homeless individuals may have no other choice than to live on the streets, trains, and alley ways to name a few places where homeless people seek shelter. The history of homelessness, social problems, demographics, common clinical
Healthy communities depend on the promotion of collaboration between health care providers, equitable utilization of health care resources and access to care for disease prevention. The Affordable Care Act (ACA) has increased access to insurance, but has not necessarily contributed to increased access to care (Lane et al., 2012). Limited access to health care and insurance, along with socioeconomic status, ethnicity, race, gender, sexual identity, and age contribute to health care disparities in the United States ("Disparities," 2014). The Appalachian Region has many factors that increase the risk of health disparities among this population, including poverty, unemployment, limited access to care,
Based on your readings for this class, discuss how your population of interest meets the definition of a vulnerable population.
Community nursing is a very challenging, yet vital and important aspect of nursing for the community in the borough of Brooklyn, NY. It is located on the southwestern end of Long Island, southeastern of New York and it is connected to Manhattan by three bridges (Brooklyn Bridge, Manhattan Bridge and Verrazano Bridge). Brooklyn is separated from Manhattan by the East River (Britannica, 2017) and it is considered the largest of the five boroughs in New York City with an estimated population of about 2,629,150 in 2016. Its width is approximately 71 square miles with 52.6% female, and 47.4 male residences in 2016 (Census.gov, 2016). It is highly populated, with the ethnic makeup
(Goodman, Dimidjian, & Williams 2013) There are no real ethical issues that were addressed in this article. The Institutional review board (IRB) would put this type of study in the exempt review category. Although it involves pregnant women, there is no physical harm being done as the study is based on survey questions.
They may want to skip obtaining informed consent, in order to save time and funds by not designating staff to distributing, collecting, and record keeping. In reference to the specific provisions in the NASW Code of Ethics that are applicable to research, it is the responsibility of those engaged in evaluation or research, to obtain voluntary and written informed consent from participants. The agency needs to ensure anonymity and confidentiality of the participants, as well as the data obtained from them (NASW, 2008). A provision I would recommend to ensure that the evaluation will be ethically conducted, would be to provide an explanation of the obligation we have to conduct an evaluation that uses consent procedures. This applies not only to the foster parents being interviewed, but also the clients’ whose existing records are being examined. This process may be time consuming and require agency resources, is necessary. We must also inform participants of their right to withdraw from evaluations and research at any time without penalty, according to the NASW Code of Ethics (NASW, 2008). Another key ethical issue that may arise could be that some members of the team are not in agreement on the importance of informing participants of the any limits of confidentiality, and the measures that will be taken to ensure confidentiality on the part of the agency. I would recommend that the team collectively assesses and discusses responsible research practices, to make sure they are acting in accordance with the code. For example, it is necessary to make sure the information collected is evaluated accurate, without bias, and the results are not falsified or fabricated
In this assignment I will select a vulnerable population sub-group and consider how social science contributes to understanding the social problems encountered by this group. I will do this by firstly explaining and identifying and locating the chosen sub group within the broader societal context. Next by explaining why the chosen sub group is considered to be vulnerable with reference to relevant theory and research based evidence. Then I will be identifying and explaining the role of relevant agencies, both non-governmental organisations and governmental in relation to welfare provision for the chosen sub group. Finally I will discussing the role of social science in informing public health and welfare practice in relation to the chosen
The APN leader interviewed for this paper is a Board Certified Nurse Practitioner (CNP), Chery Arnett works in the Neonatal Intensive Care Unit for Memorial Hospital of Carbondale. She began as a registered nurse in 1981, then in 2001earned her CNP title. She manages and cares for the ill neonate, collaborates with Neonatologist and Pediatricians to improve overall health outcomes. She provides support and assists ventilation, assists with deliveries both “normal” and high risk infants, provides care for the healthy newborns, also providing guidance to parents for caring for the “neonate” or healthy newborns. She is also responsible for assessments, orders, treatment plans, medications, and discharge of the infant. CNP’s provide initial, ongoing and comprehensive care, including managing patients with acute and chronic illness and diseases for both premature infants and term infants.
Vulnerability, it refers to “the likelihood of experiencing poor health or illness.” (Shi, 2019, p. 437) There are different group populations around the U.S that have to deal with several obstacles when retrieve for the health care service needed. Therefore, these vulnerable groups tend to be at higher risk of poor physical, psychological, and social health. These population groups consist of: (1) racial and ethnic minorities, which tend to differ in “health-related lifestyles and health status” (Shi, 2019, p. 438) for example, only 61.4% of Hispanic women tend to use preventive care like mammography in comparison to non-hispanic whites with 67.1% use.
The [DH] Toolkit (2009) outlines a commission framework to aid with strategic development of neonatal service that highlights the need to ensure the babies and families are the focus during their pathway of care given. The following care services should be commissioned as a part of neonatal care, these include transfer services, cot location services as well as a maternity bed (DH, 2009). Family centred care throughout their stay and ongoing into community with follow up services and a range of support services throughout and post care (Smith & Coleman, 2010). The DH toolkit can be used to a strategic level with regional and network planning as well as receiving support from commissioners. The toolkit is designed to support the delivery in
Vulnerable population means a group of population that at greater risk of developing health problems due to their less awareness, availability, and access to needed resources to fulfill their healthy wellbeing requirements. Elderly population, pregnant women, homeless person, population with suicide or homicide prone behavior, substance abuser, persons living with infectious diseases such as HIV/AIDS, disable and chronically ill patients fall under vulnerable population group. “vulnerable populations are those with a greater than average risk of developing health problems by virtue of their marginalized sociocultural status, their limited access to economic resources or their personal characteristics such as age and gender”(Chesnay, M. &. Anderson, B. 2012). People with lower incomes and less education tend to be at higher risk for health problems.
Stanhope and Lancaster (2008) define vulnerable populations as “those defined at a greater risk for poor health status and health care access”(p.712). The role of a public health nurse in contrast to a vulnerable population is to establish interventions to help break the cycle of vulnerability thus aiding to eliminate health disparities within the population. The term “risk” helps public health nurses establish a person probability of something happening to them. This epidemiological term is used with the triangle of host, agent and environment in contrast to ones health within a population. The author will discuss vulnerability as discovered within a community based on surveying the community and establishing risk and interventions on the
In the case study regarding Mr. and Mrs. G, there were many questionable areas of concern regarding ethical practices and obtainment of an informed consent. As the nurse researcher, the duty to advocate for the patient is of primary concern. The first concern recognized through this case study is that of vague description of the study. As the nurse researcher, I would need to be made aware of the data collection process and the parameters upon which the research is based. Obtainment of data to be used in research must maintain patient confidentiality. Did the researchers use patient medical records, family member interviews, patient interviews or staff involvement in patient selection? Were there any HIPPA violations in the selection process? Were the subjects informed that they were being screened for participation? I would also need to assess the preliminary review of literature that is driving this particular study. What is the appropriate time to conduct a study such as this? Is the purpose of this study going to facilitate a change in patient outcomes? Awareness of the motivation for this study and the benefit that is expected to the future
Understanding numerous vulnerable populations is important for any healthcare worker. It is important to learn about the various populations to better be able to cater specific patient-centered-care to these unique individuals. Mennonites are known to be highly community oriented, and it is not unusual to consider their fellow church members as part of their families. They rely on each other in the community for many things including healthcare. When one member of the church is ill, in a sense, the rest of the church is afflicted as well.
In the perinatal and neonatal settings, the principle requirements for informed consent were only understood by 3–30% of parents. In a study where 200 parents agreed to enroll their newborns in a randomized controlled trial, 70% had difficulty in one or more areas of the consent process (Ballard, Shook, Iocono, Bernard, & Hayes, 2011). Providers should have ongoing meetings with parents to review the infant’s plan of care so that parents can feel more comfortable and know that they have the right to withdraw from the study at any time. Overall, parents should be given an informed consent that outlines the risks and benefits for their infant’s participation in the EBP study which will promote parents to have a better understanding of the elements provided in the informed