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Hospice exists in the hope and belief that, through proper care and the encouragement of a caring and sensitive team, patients and their families may be free to achieve some level of mental and spiritual preparation for death that is comfortable to them. The goal is to help
Death is inevitable. It is one of the only certainties in life. Regardless, people are often uncomfortable discussing death. Nyatanga (2016) posits that the idea of no longer existing increases anxiety and emotional distress in relation to one’s mortality. Because of the difficulty in level of care for end-of-life patients, the patient and the family often need professional assistance for physical and emotional care. Many family caregivers are not professionally trained in medicine, and this is where hospice comes into play. Hospice aims to meet the holistic needs of both the patient and the patient’s family through treatment plans, education, and advocacy. There is a duality of care to the treatment provided by hospice staff in that they do not attempt to separate the patient’s care from the family’s care. Leming and Dickinson (2011) support that hospice, unlike other clinical fields, focuses on the patient and the family together instead of seeing the patient independent of the family. Many times in hospitals, the medical team focuses solely on the goal of returning the patient back to health in order for them to return to their normal lives. They do not take into account the psychological and spiritual components of the patient’s journey and the journey that the family must take as well. For treatment of the patient, Leming and Dickinson agree that hospice does not attempt to cure patients, and instead concentrates solely
Caring for patients at the end of life is a challenging task that requires not only the consideration of the patient as a whole but also an understanding of the family, social, legal, economic, and institutional circumstances that surround patient care.
This article can be used as a way to further support my argument about how most patients don’t utilize all of the benefits that hospice has to offer. There are some cases where people choose not to receive spiritual support due to
The present-day misconception of palliative care possibly comes from the circumstance that palliative care was used interchangeably with hospice care until the 1980s. (Clark & Seymour, 1999). Clark and Seymour (1999) extensively write on the beginnings and evolution of palliative care. They describe the progression of palliative care as a whole and explain the movement from palliative starting out as supplemental care to terminal patients to the concept division of palliative and hospice care. They describe the differences in each and explain why palliative is its own concept that differentiates from hospice care. In 2002, the World Health Organization defined palliative care as “an approach” that increases the quality of life of
The World Health Organization (WHO, 2017) defines palliative care as a care that improves quality of life of patients and families who are facing problems associated with their life-threatening illness. This is by preventing and relieving suffering by the early identification, immaculate assessment, treatment of pain, and other problems like physical, psychosocial and spiritual issues. The goal to palliative care is to not only treat the patient but also provide comfort to both the patient and family members. Therefore the review of these literatures will provide insight on the barriers and specific needs that a patient with dementia may have.
When it comes to the experience of grief that goes along with a terminal diagnosis or death the focus of care, therapy, and concern is often placed solely on the patient and his or her family and friends, and rightly so (Woolhouse, Brown & Thind, 2012). However, the health care professionals that help to care for these patients and their loved ones are often left in the shadows to cope with the grief that they may be feeling, alone (Woolhouse, Brown & Thind, 2012). Often, their grief is deemed unacceptable by their colleagues and society, and they are certainly not provided with the same level of care as someone who is experiencing real grief, first-hand (Leming & Dickinson, 2016). This paper discusses the differences that health
What was once believed to be a form of neglect has resulted in a change in practice with the idea that doing less is more. Culture is an important factor in how care is rendered and thus, the limitations of palliative and hospice care lie within the desires of the family and patients. A thorough understanding of our surrounding demographics helps to ensure a seamless approach to providing care without bias or imposition of ones beliefs. However, just as with all things, providing care for the sick and comforting the dying should be rendered in moderation as to prevent the effects of burn out. Likewise, the same effects occur in the caregivers who sacrifice their responsibilities in order to care for their love ones. Finally, and with some closing thoughts, the writer wishes to express with gratitude the benefit of having taken this course to better understand oneself and others in the realm of healthcare. The lessons learned throughout have expanded this writer's knowledge and understanding of the human desire to make a connection through communication, emotion, compassion, and spiritually - the platform from which this writer wishes to continue seeking further knowledge and
Dying due to an incurable illness can be devastating With responsibility of caretaking falling chiefly on the patient’s family. While dealing with the normal every day activities that families encounter, becoming a primary caregiver to the terminally ill is an emotional as well as financial burden. The ill person usually lives in the house of a family member, which forces the family to witness the person dying every day. Having to watch a person suffer in your own home is depressing to even the strongest of people and knowing there is nothing that can be done to stop their pain makes things that much worse. Studies have shown that people who receive a terminal illness diagnosis become depressed and develop anxiety. Because of the mood disorders that can
The authors MacKinnon, Smith, Henry, Milman, Berish, Farrace, Korner, Chochinov, and Cohen (2016) revealed a receipt of the several financial support for the research, authorship, and/or publication of the article. The Canadian institute of Health Research (CIHR) studentship to the main author: the CIHR/Canadian Cancer Society Stratiegic Training Program in Palliative Care Research and the Family Caregiving at End of Life New Emerging Team (Mackinnon, Smith, Henry, Milman, Berish, Farrace, Cohen, 2016).
Within these components, practitioners of this field have found themselves getting burned out very quickly. To prevent this from happening, social workers must identify individualized self-care techniques that allows them to deal with grief as a counselor. According to Hill-Jones (n.d.), “The key to a hospice professional’s self-care is the ability to fully enter into relationships with patients while maintaining one’s personal life and well-being. Challenges to this balancing act include preserving the professional relationship framework and managing powerful emotions evoked in hospice work”. As I further assess what could be down to take care of myself and many others.
Sampson, E. L. (2010). Palliative care for people with dementia. British medical bulletin, 96(1), 159-174. doi:10.1093/bmb/ldq024
Caring for a palliative patient will include a multidisciplinary team of professionals to assist in meeting the patients and the family needs. This is because the palliative care approach is designed as a holistic approach for the patient. The reason for a multidisciplinary team is, as patient with a life threatening disease such as Mrs Hetherington, the needs of Mrs Hetherington will vary greatly over time; therefore it is not possible for just one professional to be able to provide sufficient care (Crawford & Price, 2003). The multidisciplinary team may include;
I have always believed that health cannot be optimized through the treatment of disease only. Rather, health should be addressed on a biological, physical, psychological, social, and spiritual continuum. Palliative care addresses an often-overlooked aspect of the patient experience, which is symptom management of their chronic illnesses. Health care professionals tend to treat acute episodes of
3. Palliative Care Council of South Australia. (1996). Good palliative care project: final report. Retrieved September 4, 2002, from Palliative Care Council of So