CHAPTER 1
The Problem and Its Background
Introduction
Autism is a pervasive developmental disorder that affects the brain’s development of social and communication skills and said to be a behaviorally-defined condition. (www.ncbi.nlm.nih.gov) a person with autism has to deal with great consequences due to the different adjustments they have to follow. Along with the stress felt by the autistic person, their families are the ones who should handle the responsibilities in raising their autistic children. Since they have to raise the children with a disability, a big burden corresponds to the adjustment they have to initiate to their autistic child and for the whole family as well. Their responsibility is even more difficult since there are
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With these two principles constantly followed, the family functions well and accordingly and benefits the whole family and each member. But raising a child with autism can create great emotional stress and can fully affect the family’s system and interaction because of the problems related to autism. For the family to form their organized family life cycle they must go through different adjustments and adaptation for the family’s development, applying the third principle that says that any system functions as an organized whole.
Research Paradigm
Raising a child who has been diagnosed with autism can be a very challenging role for any family. Since they are the ones who are primarily responsible for dealing with the needs of the child with a disability, they also have to deal with great stress regarding the autistic child. The presence of a child with a disability may involve some difficult adjustments for the rest of the family.
Different effects are implied to the whole family, changes in family roles are highly affected and because of this they have to reorganize the family’s functioning and activities. Autism affects the enormously, they are challenged physically, mentally, emotionally and financially as well. Everyday things have to be carefully planned and executed. Families are somehow put into
Autism spectrum condition affects a range of different individuals and is a spectrum condition and affects people in a number of different ways. It is important when supporting an individual with autism to identify and recognise each individuals’ abilities – what they can do successfully, needs – what the individual needs support with, strengths and gifts – what the individual is good at, what they have a real talent in, and interests – what is motivating for the person.
Autism, also known as Autism Spectrum Disorder, or ASD, is a complex developmental disability. I happen to have two nephews with autism, one who I am very close to and interact with a lot. A child is usually diagnosed with autism during the first three years of life. It is a result of a neurological disorder that has an effect on normal brain function, and affects the development of the person’s communication and social interaction
Autism, a developmental disorder is becoming widely diagnosed here in the U.S. and throughout the world affecting children in all different types of backgrounds. From children living in rural or urban, rich or poor. Currently there are many speculations and superstitions as to the causes for developing autism but science has no clear evidence as to why autism affects certain people and not others, autism can greatly affect the families and its patients for their entire lives. Most of you do not know that I have twin younger brothers with Autism. Before this speech, I had no clue what autism really was. Through my research I am now able to relay this information to you. Today I want to talk about Autism. The three things I will be speaking about is what is Autism? How does autism affect the family and how does autism affect people who have it?
The goal of this review was to examine ASD and how it has impacted families. The literature was consistent in its findings, which stated that, Autism is a complex disorder that is diagnosed in childhood and has a wide range of symptoms. Many of the studies showed that children with ASD have the same symptoms such as hyperactivity, anxiety and self-injurious or aggressive behavior. The initial autism diagnosis leaves parents and siblings confused and they may have a hard time accepting that the child/sibling they were anticipating is not the child/sibling they expected. This transformation in their family can impact the relationship in the family, as feelings of fear and worry overwhelm the family system. ASD impacts parents and siblings as it changes the dynamics of the family. It is significant for families to find coping mechanisms that work for them as they
A lot of people don’t realize the challenges of living with a child who has been diagnose with Autism can be. It is a twenty-four-hour seven day a week job no vacation, no sick time and no pay. From the time the child is diagnosed it is a constant worry especially if the parents don’t know much about the condition. It starts with continuous Doctor visits, social services, and therapy sessions, just to figure out how serious the condition may be and what level of the disability the child has and this is only this beginning. Next, to find the tools the child needs to overcome the disability, like learning development and cognitive process, social skills, comprehension capabilities, and many more depending on the severity of autism.
Leo Kanner (1943) believes autism is a result of emotional deprivation. He notes that parents of autistic children are intellectually and analytically oriented, but lack emotional warmth (Meyer, Chapman, & Weaver, 2009).Some psychodynamic theorist believe autistic children were born normal, but became autistic after experiencing painful interactions with hostile or cold parents (Hansell & Damour, 2008). The term autistic implies a failure to effectively relate to the environment. Autistic individuals are perceived as elusive and distant (Meyer, Chapman, & Weaver, 2009). Behavioral programs are most effective with autistic children and are used to teach them language, communication skills, self-care, and adaptation to the community (Hansell & Damour, 2008).
In the instance of a family facing the crisis of raising a child with disabilities, this situation can be both ineffective and confusing. For example, if a family faces the challenge of raising a child diagnosed with autism life can change instantly. Immediately decisions
As a teacher who works in a school for children with autism, I have seen first hand how the families are affected by the disability of their child. The parents in my school have shown tremendous strength and support for their children, contributing positively to their quality of life. They come into school and learn how to work with their child, have continuous contact with the teacher, and tremendously help the school with fundraising efforts. I have been lucky enough to see the positive effects that parent support can have on a child with autism, but I am sure that there are many cases that are opposite of this. Having a child with autism does put a great strain on all family members, physically, mentally, and emotionally.
The work of Liu, King, and Bearman (2011) report that autism ""¦is a developmental disorder characterized by impairments in social interaction and communication, often accompanied by stereotypical or repetitive behaviors." (p.1387) Reported as well is that substantial resources are spent providing treatment to children in families who have been diagnosed with autism and specifically stated is that the resources needed are "significantly more than for other children neuropsychiatric and developmental disorders." (Liu, King and Bearman, 2010, p. 1387)
When it comes to autism spectrum disorder (ASD), many people don't understand what the disability is or how children who suffer from ASD live their everyday lives. “Autism is a serious nuerodevelopmental disorder that impairs the ability to communicate and interact.” (Psychology Today, 2015). Usually, autism is diagnosed in children from as early as the age of 2 and symptoms can impact individuals throughout their lifespan. Common symptoms of autism include impaired social interactions, impaired verbal and nonverbal communication, problems processing information from the senses, and restricted and repetitive patterns of behavior. Anxiety is also common among children with ASD, and parents of children with ASD are more likely
Autism negatively influence a child’s intelligence and ability to achieve things by compromising mental functioning. This weakens their ability to gain knowledge, implement it and accomplish
Every single day is a struggle for an autistic child and his or her family. Autism affects all aspects of a child’s life from their ability to show affection to their family to being able to do simple tasks such as communicating and thinking in ways that we take for granted. Autism is defined as a developmental disability in which children experience abnormalities in social functioning, language, often act in puzzling ways, and usually appears before the age of three (Mash &Wolfe, 2010). Although the exact causes of autism are unknown there does seem to be a strong genetic component. Having a child or family member with autism is a constant battle of emotion and frustration. Everyone wants to help the people they love when they have
Autism is a disorder that can wreck havoc in the lives of many, and all it takes is one diagnosis. Most families never expect autism to occur in their family. But once it does, the family will never imagine the effect it will have. The family of a child with autism “[is] faced with intolerable mental, economic, and social pressure” (Mosayebi 4). Could a child with autism have a substantial enough effect on the family to cause separation and divorce of their parents?
In today society, there are various physical and mental issues that is being discussed that affect human beings from all around the world. The life of person living with a disability is never understood by the people on the outside but only people living with the disability. The impact of various disability ranging from physical disability and mental disability impairs an individual ability to function. Reading the book Thinking in Pictures by Temple Grandin had a profound impact on my view about Autism. “Autism spectrum disorder is a condition related to brain development that impacts how a person perceives and socializes with others, causing problems in social interaction and communication” (Mayo Clinic 2018).
There is no doubt that raising a child with autism is challenging. There is endless research on Autism Spectrum Disorder (ASD) but a very limited amount on the costs and benefits of caring for a person with the disorder. In order to gain a comprehensive perspective on the biggest challenges parents and caregivers of autistic children face, a look into the private lives of these families and close networks is necessary. The only way to give support and provide the much needed services required to help, one must ask them what the most difficult parts about managing autism are. Below examines three of the most common struggles these families face when trying to understand and help their autistic children develop into the capable people they are certainly able of becoming.