Discuss how end of life communication impacts service user experience of ?death and dying?.
Introduction
Communication is an act of imparting information from one person to another in the way that it is understood. Communicating can become more complex and diverse, as is the subject matter that makes it so diverse.
Within the field of Death and Dying ,communication and practice a hotly debated and peoples opinions and approaches can be very hugely. Various models of care i.e. such as biomedical is critical and nature and has no scope for the development of feeling. I would have favourite person centred approach, but this can only be as good as the persons understanding of this model, different methods of communication and it approaches
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(Oliver, 2012).
As a practitioner in the social care field, I understand how important it is to implement an effective plan of care that is delivered at the tight time and place. This needs to be a partnership between the patient and the principle caregivers.
Death is often associated with those who have a life limiting condition and often receiving what is known as pallet of care, which can be in a hospice, okay home or hospital. We know death because in many different settings including home and sadly in the custody setting, these can be very different circumstances, which can be, and including sudden death or suicide. However where in when people die together with specific health needs, socio-economic status, gender and ethnic city will affect communication with others during the dying process. We have a duty of care to be open and honest to dispel preconceived ideas, support individuals thoughts and support feelings with clear skilled communication by the multidisciplinary team.
However if we solely concentrated on the biomedical approach to its delivery we would only provide symptomatic management for the condition itself with possible symptoms and treatments (Rogers, 2009, pg.71). It should also be pointed out that there are to be expected clashes, as the truth is not always interpreted, as
Death is inevitable. It is one of the only certainties in life. Regardless, people are often uncomfortable discussing death. Nyatanga (2016) posits that the idea of no longer existing increases anxiety and emotional distress in relation to one’s mortality. Because of the difficulty in level of care for end-of-life patients, the patient and the family often need professional assistance for physical and emotional care. Many family caregivers are not professionally trained in medicine, and this is where hospice comes into play. Hospice aims to meet the holistic needs of both the patient and the patient’s family through treatment plans, education, and advocacy. There is a duality of care to the treatment provided by hospice staff in that they do not attempt to separate the patient’s care from the family’s care. Leming and Dickinson (2011) support that hospice, unlike other clinical fields, focuses on the patient and the family together instead of seeing the patient independent of the family. Many times in hospitals, the medical team focuses solely on the goal of returning the patient back to health in order for them to return to their normal lives. They do not take into account the psychological and spiritual components of the patient’s journey and the journey that the family must take as well. For treatment of the patient, Leming and Dickinson agree that hospice does not attempt to cure patients, and instead concentrates solely
My perception of palliative and Hospice care has changed slightly when it comes to communication with the family. I walked into the hospice unit mentally preparing myself to talk with patient families about their loved one and the dying process; this was certainly not the case. The family and the patient did not want to be bothered unless comfort interventions needed to be carried out and there was no conversation to be had about the patient and his situation. This shows that each family is different, each patient is different; and we need to respect and accommodate their unique
Family practitioners are well suited to provide end-of-life care because their training emphasizes treatment of the whole person, managing comorbidities, and coordination of care. Hospice care by definition is interdisciplinary and available around the clock, to allow even solo practitioners to manage terminal patients using a multidisciplinary team. Treatment focuses not only on medical
Death is a unique domain of human life in that it is commonly considered to be a discrete end to individuals’ development, and dying is also a process that begins before and ends after the actual death event. Death is the culmination of a lifetime of biological, psychological, and social development from the individual’s perspective, but taking a system-based perspective shows that an individual’s dying process intersects with others’ lifespan development. So the question, “How does one die well?” is flawed – dying is never fully in the individual’s control, and nearly always involves others in its process. A better question might be, “How do we (as individuals, families, care providers, and society)
We live in an increasingly multicultural world, with global inequalities and world events such as natural disasters and wars. This means that we are surrounded by many different competing and challenging ideas about a ‘good death’ (Block 1, Unit 4, page 120). Trying to recognise different attitudes, beliefs and cultural practices could assist those caring for the dying and could contribute towards greater equality (Block 1, Unit 5, page 120).
The most important principle that can help to guide people who care for the dying and bereaved is care. Care for the dying and care for the families, this is not to undermine the empathy, support and understanding that is needed. “All social workers, regardless of practice settings, will inevitably work with clients facing acute or long-term situations involving life-limiting illness, dying, death, grief, and bereavement. Using their expertise in working with populations from varying cultures, ages, socioeconomic status, and nontraditional families, social workers help families across the life span in coping with trauma, suicide, and death, and must be prepared to assess such needs and intervene appropriately’ (Bailey, 2003-2004). This is true not only for Social workers in hospice’s, but home care nurses, funeral directors and anyone who cares for the dying and bereaved. The older adult facing the end of life has many decisions to make as well as their families. They may also have psychosocial, spiritual as well as physical issues that need to be addressed. In addition to requiring sensitivity to their culture and religion, perhaps financial decisions may need attention. Compassion, sensitivity, respect, communication, are a few of the principles that govern workers in this field. Political agendas and laws also have an impact on the dying and their families, decisions whether funding and education
At bedside, the Intensive Care Unit (ICU) Nurse is often faced with a lived experience that is multifaceted and challenging, particularly when the patient faces certain death. ICU Nurses must be present and fully participate in humanistic holistic care encompassing the patient and their family. In 2007, the American College of Critical Care Medicine (ACCM) set out to define guidelines for patient and family centered care. Fifty-three recommendations that include a shared decision-making model, family presence in rounding and and resuscitations, and family support throughout the process of dying, including after death care for surviving family (Davidson, 2007). Given the nature of the guidelines, the intention of the ACCM is that these guidelines be deployed by ICU Nurses. This paper asks, what is the nature of the roles of patient, family and Nurse in this period of potentially very rapid transition away from curative care towards palliative, hospice, and post mortem care? Three articles are examined to offer some insight into the question. Finally, the roles of patient, family and ICU Nurse are grounded in Paterson and Zderad’s Humanistic Nursing Theory.
However, group-studies indicate that family members “stressed the importance of dignified and respectful treatment of those who are dying” and they desired to acquire “better information on what to expect and how they can help their dying relatives” (Teno et al., 2001). This perspective illuminates the importance of both validating the needs of the individual patient as well as their team of familial support. In this sense, it is beneficial for family members to witness their loved one pass away most nobly on their part while being informed of the process that that unique plan
Communication as to end-of-life care within a critical care setting is discussed within this paper. Also examined will be the unexpected stress of a critically ill patient, the emotional impact the family must burden, and the utilization a family care conference to facilitate proper communication. Additionally, the first-hand experience of withdrawal of care that this author experienced during clinical is reviewed.
This paper explores euthanasia from the perspective of the supplicant and the practitioner. Additionally, this paper considers euthanasia’s impact on the clients and the counsellors coping mechanisms with crises, trauma and/or loss. Firstly, definitions, discussions and examinations about euthanasia are presented, using the term “euthanasia” interchangeably with euthanasia’s different forms of death. Second, the counsellor’s value conflicts between euthanasia and the adherence to a professional and ethical code including self-awareness and self-care solutions is discussed. People’s psychological development, personality and character traits are examined in their response to crises, trauma and/or loss. Finally, this paper concludes
Promoting well-being emphasizes a person’s physical, mental, and social resources and enhances protective factors and conditions that foster health (Ferran, 2005). The most important component in ensuring the quality of life and avoiding challenges that may arise along the way for end-of-life patients is communication. First, a patient should be asked if they want information to be conveyed to family/surrogate instead. Throughout any communications there the following must be expressed: the seriousness of illness; expected course; treatment options, risks, and benefits; and empathy, support and caring. Additionally, family and other relationships should help in decision-making/advance care planning and aid in alleviating pain and distress.
A researcher draws attention on why it is important for patients to have conversations with their doctors and states that, “Medicare’s plan comes as many patients, families, and health providers are pushing to give people greater say about how they die whether that means trying every possible medical option to stay alive or discontinuing life support for those who do not want to be sustained by ventilators and feeding tubes (Belluck).” People prefer to pass away in their house or hospice, or in any situations that patients desire essential medical care. There are four areas that a dying individual needs which are emotional and mental, physical comfort, spiritual issues, and active tasks. Someone who knows that they are close to dying are clearly sad and worried. Having conversations about their emotions might be advantageous. Physical contact with family members and the medical team are more connected and more interactive in cooperating. As patients begin to receive discomfort, it is most likely due to skin displeasure; pain; weariness; temperature reactivity; digestive and respiratory problems (Emanuel). Also, due to spiritual issues, a patient would want to finish things off in a good place with everybody they had associated with. It is also pleasant for patients to practice their religion by praying or communicating with someone in their
It is a fact that humans are born to die. What was once considered a natural part of life has changed to an experience that may be more painful for the patient, family, and caregivers due to the advances in medical care. New procedures have allowed life to be extended longer than ever before. The question is: has the dying experience improved? This paper will include a review of death and dying from the perspectives of the patient and caregivers. An unfortunate case will be discussed, and the organizational structure, culture, and governance that led
Today, issues in regard to death are not discussed or are barely discussed. However, each and every individual has their own view of how death should occur, and that would be, death that is not painful and in the presence of a dear one or loved ones so to say. As it may be the case, some individuals die as they would have wanted, and on the other hand others do not. Those that do not may have gone through uncalled for tremor. In a survey carried out by the NHS, about 43% of those people that had lost loved ones indicated that the care rendered to their loved ones at the end of their lives was marvelous while 24% indicated that the care to their loved ones at their end of life was not exceptional or good for that matter (Health, 2013).
Communication is a process where we share our feelings, ideas, thoughts, suggestion, experience, feedback, opinions, etc. It’s a dialogue in which the sharing of meaningful information are constantly coming in and going out between two or more people in order