It was recognised by Jevon (2009) that caring for the dying patient can be the most fulfilling whilst also most challenging times for nurses and healthcare professionals. This paper will introduce a case study based on personal experience within clinical placement, exploring and analysing the above statement. In accordance with the Nursing and Midwifery Council Guidelines (2008) names have been changed to protect patient confidentiality. The paper will seek to address issues relating to the case study examining relevant theory. Current policies and guidelines will be considered in relation to the patient. It will identify a framework involved looking at literature to assess the effectiveness against the case study. Finally, focusing on a …show more content…
This was a comparative study between 785 subjects in 1969 and 639 subjects in 1987. Results revealed an increase in the amount of people living longer with prolonged illness, greater awareness of death and dying alone within acute hospital settings. However, it did highlight an improvement in home help although, fewer visits where occurring (Cartwright, 1991). Referring back to Mrs Jones, the latter of the findings was evident. Although Mr Jones was appreciative for support being received within the home and community environment, he was having difficulties controlling his wife’s symptoms and pain management between health professionals visits. An implication of this is the possibility that Mrs Jones preferred place of care was compromised resulting in re-evaluation of the family’s situation, therefore, potentially meaning that Mrs Jones wishes were not met. It is from studies such as the ones stated above that progression in end of life care has evolved with the introduction of palliative care nurses such as Macmillan nurses and an increased number of hospice’s being provided worldwide. The main focus at end of life care was predominantly based on cancer patients. Initiatives such as the Comprehensive Cancer Care Programme was initiated in 1980 focusing on areas including prevention of illness, early detection, treatment and pain relief and palliative care. This programme was introduced by the World Health
The World Health Organisation (2010) defines palliative care as: An approach that improves the quality of life of patients and their families facing problems associated with life threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other problems, physical, psychosocial and spiritual. It is also our duty to support John and his wife`s in their decision for John to die at home, Department of health (2008) patients should have a choice over the care they receive and where.
A survey was conducted in 2000 on more than 9,000 patients discharged from more than 2,000 hospices on the services they received (Carlson, 2007). It revealed that 22% of them received five major palliative care services, which varied among the hospices. These palliative care services were nursing care, physician care, medication management, psychological care, and caregiver support. Approximately 14% of the hospices provided all five services and 33% provided only one or two services. Only 59% of these patients received medication management services. These included administering medication, dispensing correct dosages, and setting and following dosage schedule.
Caring for patients at the end of life is a challenging task that requires not only the consideration of the patient as a whole but also an understanding of the family, social, legal, economic, and institutional circumstances that surround patient care.
Nurses: Assist the patients and families to cope with the end-of-life process such as assessing and
According to Allen et al. (2012), “millions of people with chronic illnesses endure unrelieved pain, uncontrolled physical symptoms and unresolved psychosocial or spiritual problems.” This issue occurs because palliative care is often considered a form of end-of-life care. Palliative care is a treatment that can be used for patients who suffer from chronic illnesses and diseases while receiving curative treatment. (Horowitz, Grambling & Quill, 2014) purposely states the misconceptions of palliative care and advocated for seriously ill patients that education must bring under control the misconceptions. Some patients do not receive appropriate symptom management because the palliative care treatment needed is often confused with end-of-life care. However, end-of-life care attempts to relieve pain and suffering when a disease is no longer responsive to curative treatment. Pain and suffering could ultimately be controlled or even eliminated through the proper utilization of palliative care. Patients who are not referred to palliative care in a timely manner is more likely to have poor quality of life, uncontrolled symptom management and increased amounts of visits to the emergency room during the disease process. Patients with life limiting illnesses bear the burden of increased discomfort and increased suffering. Nurses experience clinical practice issues and difficulties in the clinical setting during the delivery of comfort and symptom management. These issues
In reviewing the two studies I found, it is very clear there is a difference in quantitative and qualitative studies. To start, Lee et al. (2017) conducted a qualitative study in which the problem statement recognizes that end of life care (EOLC) in dementia patients is less than optimal when compared to cancer patients. The researchers aimed to determine what service managers and frontline staff at different facilities felt were the key aspects in improving EOLC in dementia patients (Lee et al., 2017). As a result, the researchers purpose was to contribute to the current evidence base on good EOLC and interventions to increase quality of care of end of life dementia patients.
The purpose of this assignment is to demonstrate understanding of long term conditions and palliative care. Nursing care in general entails holistic care and collaborative care of individuals of all ages, families, groups and communities, whether sick or well (Royal College of Nursing, (RCN) 2007). Better management of lifelong conditions has been the priority of the National Health Service since the 1990s. When long term conditions are managed well in the community, patients’ can live a quality life without visiting hospital frequently (RCN, 2011). In Britain, six in ten people are reported to be suffering from long term conditions that currently cannot be cured; and these people are often suffering from more than one condition that makes their care challenging. It is estimated that by 2030 the UK will have double the number of people aged 85 years or over, who are living with one or more long term condition (Department of Health, 2014).
My perceptions have changed dramatically since the Clinical 1 rotation. I have noticed that the minute I walk into my patient’s room, I start to collect data. I notice if they are breathing normal, what their skin looks like, what their cognition level is, and what equipment they have in their room. I have started to connect the “puzzle pieces” of the patient’s health, rather than just feeling like I have a bunch of random information. My perception of people has continued to stay the same from Clinical 1. I continue to have an interest in learning about patients and believe that they also have something to teach us. I have learned so much from the patients and it is fun for me to get to know different
The present-day misconception of palliative care possibly comes from the circumstance that palliative care was used interchangeably with hospice care until the 1980s. (Clark & Seymour, 1999). Clark and Seymour (1999) extensively write on the beginnings and evolution of palliative care. They describe the progression of palliative care as a whole and explain the movement from palliative starting out as supplemental care to terminal patients to the concept division of palliative and hospice care. They describe the differences in each and explain why palliative is its own concept that differentiates from hospice care. In 2002, the World Health Organization defined palliative care as “an approach” that increases the quality of life of
Judge Neil Gorsuch, President Donald Trump’s nominee for the Associate Justice of the U.S Supreme Court, is soon up for a vote to join their rankings. The article proceeds to mention a book that Judge Gorsuch wrote in 2006 and his stand-point on the matter of End-of-Life Care where he is against the idea. The article switches to the perspective of Dan Diaz, the husband of a patient who needed medical aid in dying after being diagnosed with a terminal brain tumor. Diaz says that if Gorsuch would have been in his position at the time of his wife’s situation he would have a different outlook towards medical aid in
An individual patient solution may include actions of a clinician such as a trial of therapy (Schlairet, 2013). Providers may propose a trial of therapy for an impaired patient that may offer greater clarity as to whether or not the patient is end stage or has a likely positive outcome. An agreement to neither intensify nor expand critical care interventions should accompany the trial if the patient’s condition weakens.
Nurses are expected to provide physicians with quality assessments and needs of their patients to ensure when a change from curative care to palliative care is needed and to ensure good death. Death has always caused an ethical
End of life care does not just begin at the end as the name suggests, but it is the care a person receives once they have accepted the prognosis of a rapidly approaching end. The elderly population with multiple comorbidities may be “living, and dying” at the same time. This was a new idea brought about by this very class; The patient may be living with one or more chronic illnesses and may require a lot of assistance and care for days, weeks, and sometimes even months leading up to their death. The continuity of care is even more pertinent at this late stage in life. Continuity of care is, at its most basic of definitions, the quality of care over time. Establishing continuity of care is based on promotion continuous, caring relationships between patients and healthcare providers. It also includes ensuring a safe, coordinated transition of patients between healthcare environments, either from
End-of-life care encompasses the aspects of helping patients and their families through the demise process, pain management, culturally sensitive practices and during ethical decision-making process (Hebert, Moore & Rooney, 2011). However that was not the case in the story of the 20-year-old Hailu, a college a freshman from the University of Nevada who was at the center of end of life controversial with St Mary’s hospital Nevada who in April 2015 was placed on life support following complications (decreased blood volume and lack of oxygen to the brain) from anesthesia after surgical procedure to remove her appendix. Hailu, in May, was declared brain dead by the doctors with no possibility of recovery and proposed on removing the life support
Key importance of the palliative care approach in nursing is for it to be responsive, rather than