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Justina Pelletier Case: Boston Children's Hospital

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This is Justina Pelletier. When she was fourteen years old, she became sick. Her parents took her to Tufts Medical Center, seen here, where she was treated for mitochondrial disease, described by the United Mitochondrial Disease Foundation as a rare disorder in which the mitochondria in cells fail to create the energy needed to survive. She was taken to Boston Children’s Hospital, pictured here, where the parents were hoping to get a second opinion. The doctors there believed Justina to be suffering from a psychiatric disorder instead. When her parents tried to remove her from the Children’s Hospital’s care to take her back to Tufts, Boston Children’s Hospital claimed Justina’s parents were being medically negligent, meaning they were not adequately …show more content…

To address the first issue, it should be noted that there are many more resources available to parents today online which they can use to gain background information on diseases and treatments, including websites like the American Cancer Society’s. Also, many parents make an effort to see more than one specialist when discussing treatment options. Oftentimes, parents will ask three different doctors for treatment plans based on the same symptoms and end up with three different treatment plans. The discrepancy between the medical personnel forces the need for a third party to make a decision in the child’s best interest and the third party should be the parents. To address the second issue, cases where HIPAA applies to the treatment of minors are rare, and even more rare in the cases of serious diseases. HIPAA allows for privacy between the minor patient and the doctor only when pertaining to concerns about sexual activity, pregnancy, and sexually transmitted diseases. The treatment of these concerns seldom are important in the treatment of other terminal illnesses, making the argument negligible. However, if the doctor truly believes the parents’ lack of knowledge is misguiding their judgment, then they can take the case to court and fight to gain legal guardianship of the child for the duration of the treatment. It was for these few cases that child abuse and neglect was extended to medical care in the court

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